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What's wrong with me?):


Maddi

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Maddi Community Regular

So I've never been an allergic person other than allergic to pollen. Well, this morning I decided to give soy milk a try since I havent been eating dairy and I need to get calcium somehow. BIG MISTAKE. I had a cup full of soy milk with Chia seeds. Within an 30 minutes of d

rinking it I started getting really nauseous then within an hour I started getting itchy eyes, throat, ears, and mouth. Then I started sneezing like crazy and my eyes and head started hurting. Now my nose is really stuffy. Is this an allergy to soy? I had less than an ounce last week  (to taste it) and I don't recall having any problems. Anyone else with issues with soy? Is this common? 

 

Oh and one more thing last summer I started being intolerant to casein...well I'm imagining it's casein because I can't drink Lactaid or goat's milk bc I get the same reaction (extreme sleepiness and fatigue with a headache). I'm not quite sure what's happening but I'm becoming more and more intolerant/allergic to foods and supplements. I'm going to talk to my gastro about this tomorrow. 

 


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mamaw Community Regular

You are  still in the infant  stage  of  healing  celiac. some  people  have  found  they  are sensitive  to  many other  food  items... Doctors  sometimes  tell patients  to stay away from  any  type of  dairy for at  least 6 months... Dairy  is also broken down at the tips of the villi .....There  are  many  who react  to  soy products, I  for one  can not tolerate  any soy....or MSG which is another beast....

I would  suggest  eating  only  grass fed  beef, organic  chicken, wild  caught  fish,  veggies &  fruits  until  your  gut  settles  down. It  does  sound  very limited but  it  works....When  your  gut  is  better  it  will tell you what it likes & dislikes. You maybe  surprised that  things  you never thought  were an issue  are  &  things  you thought  were  nasty  are  now  okay... plus  cravings  do  go away .....good luck

cyclinglady Grand Master

People with celiac disease often have food intolerances due to intestinal damage.  I know you are not officially diagnosed, but you are attempting the gluten-free diet.  Like the rest of us, you are discovering that you have developed intolerances or allergies along the way.   The most common is lactose, but corn and soy are other top offenders.  Eat plenty of leafy greens (I sautee them for breakfast) and consider a calcium supplement for now.  

Talk to to your doctor about your concerns, but remember, it takes time to heal.  Lots of it.  Do not try too change so many things in your diet or what you supplement all at once.  Introduce new things slowly.  Chances are you just consume too much soy at one time.  Everyone is different.  Often with intolerances you can have a little of the offending food.  Problem is you do not know how much is too much!  It could be an allergy.  Often allergies are minor.  It is like a cup.  Fill it too full and you react.  Of course, you should discuss with your doctor because allergies can be deadly, but that is rare!  I am allergic to NSAIDS (anaphylactic) so I never take them.  I am mildly allergic to horses.  Do I ride, yes!  I just take an antihistamine to avoid the sneezing, itching, runny nose,etc.).  

eat those simple foods that MaMaw suggested.  That is my fall-back diet when I get glutened!  Eat them for a month or longer until symptoms resolve.  Keep a food and symptom diary.  Remember, what is healthy for some (like garlic and onions) could cause allergic or intolerance reactions.  (I used the onion/garlic example because they make me sick! ). 

knitty kitty Grand Master

It may be the chai seeds.  You said you were allergic to pollen. Chai seeds can trigger that pollen allergy response. I'm suspicious chai seeds may be cross contaminated in the field as well.

Maddi Community Regular

Thanks for the suggestions. I didn't know Chia seeds could be CC. Although my reaction wasn't how I normally react to gluten well besides the nausea I got 30 minutes after I drank the soy milk with the seeds. I am now getting what seems like ibs type issues (no D, but pain under my belly button and sooooo much morning sickness... not pregnant, currently on my period). Hopefully it's just a new period symptom bc I'm having A LOT of gas. Weird. I never really had abdominal pain before going gluten free. 

GF Lover Rising Star

Maddi, stick to simple foods while you heal.  Anything can make you sick.  Don't start eliminating foods until there is a reason.  

I think you need to settle into the new diet, don't eat out and heal.  Keep anxiety and stress low as this can also effect your immune system

Colleen

mommida Enthusiast

Keep a food journal.  Include your activities to find a possible airborne allergen, like horse back riding.  If you are trying a new food, like the soy milk, small amounts~ in pure form~ for 3 days as a challenge.  Keep note of your reactions, symptoms, and B.M.s.

I don't really have much faith in allergy testing, but it may be something for you to consider.


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    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
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