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Member Poll - Who Abstains From Other Foods Besides Gluten?


Jeepster

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CMCM Rising Star
Patti, I use (and may have to modify that) a mix of buckwheat flour, tapioca flour, arrowroot flour and ground hazelnuts (you can use ground almonds, but they are high in salicylates and out for me). I find that makes a nice flour. I don't know if you can bake cake with that. But I use it to make crumbs (with lard and maple syrup) to make a nice apple crisp. It also works well for cookies, and pancakes if you add liquid (almond milk is nice, if you can tolerate almonds).

Potatoes are high in lectins AND salicylates, and I can't tolerate them at all, so can't use potato flour.

I confirmed the salicylate intolerance, by taking aspirin and eating foods high in them yesterday, and I am quite ill today as a result. Oh well, at least now I know.

Deb, your husband might be intolerant to salicylates (all the things he can't tolerate are high in salicylates, except for the cheese). Check out the link in my signature and see what you think.

Ursula

Ursula...I'm curious what kind of reactions you get from potatoes. I have trouble with them myself....the worst are mashed although I can't imagine why that would make a big difference. But mashed definitely upsets me more than a baked potato. And tomatoes can bother me....a small amount of raw tomato isn't a problem, but the cooked tomatoes do...like spaghetti really can give me a bad reaction. And the aspirin connection is interesting....I haven't taken aspriin for years because it would always upset my stomach. I never realized all these connections.

Carole


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  • Replies 66
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sillyyak Enthusiast

I cannot eat potatoes or eggs. I get really bad pains and they just "feel heavy" in my stomach. I am also just about done with eating bananas. I can eat rice, which is good and rice pasta. I like quinoa because of its lightness. I am tending to eat lots of veggies, fresh and frozen and fresh fruit.

I like Kozy Shak pudding a lot They come in small manageable eatable portions and are a great evening snack. I am also now putting myself on a strict timed diet. I no longer eat anything past 9:00 p.m. I find that I wake up feeling much better and lighter.

Ursa Major Collaborator

Carole, potatoes will cause (within 24 hours usually) bowel cramps, bloating, gas and diarrhea (actually, they will cause a reaction similar to being glutened in me). Tomatoes cause awful migraines.

I haven't eaten potatoes in four years (well, with the occasional exception, knowing what to expect :blink: ). And of course, they used to be my favourite food (along with rye bread)!

I don't know why mashed potatoes are worse, but I've read somewhere else that they are. So, you don't appear the only one who has that problem. Maybe it is something you add?

Krispin (the owner of the site my Lectin link leads to) calls the nightshade family the 'deadly nightshades', because they are supposed to be especially toxic. And from everything I've read over the years, they aren't good for anybody.

Did you know that your body will convert cooked potatoes into sugar faster than white bread after eating them? I bet they're one of the biggest causes of type 2 diabetes. But since they're a 'staple' food, it's not politically correct to say that (well, I've never been politically correct, and I am blunt, due to Aspergers I can't help that).

CMCM Rising Star
Carole, potatoes will cause (within 24 hours usually) bowel cramps, bloating, gas and diarrhea (actually, they will cause a reaction similar to being glutened in me). Tomatoes cause awful migraines.

I haven't eaten potatoes in four years (well, with the occasional exception, knowing what to expect :blink: ). And of course, they used to be my favourite food (along with rye bread)!

I don't know why mashed potatoes are worse, but I've read somewhere else that they are. So, you don't appear the only one who has that problem. Maybe it is something you add?

Krispin (the owner of the site my Lectin link leads to) calls the nightshade family the 'deadly nightshades', because they are supposed to be especially toxic. And from everything I've read over the years, they aren't good for anybody.

Did you know that your body will convert cooked potatoes into sugar faster than white bread after eating them? I bet they're one of the biggest causes of type 2 diabetes. But since they're a 'staple' food, it's not politically correct to say that (well, I've never been politically correct, and I am blunt, due to Aspergers I can't help that).

That's interesting about potatoes....that's exactly the reaction I get. Not as bad with a baked potato, but as I said, mashed are killer for me. I haven't noticed tomatoes causing migraines for me, but it happenen enough when I would eat spaghetti with meat/tomato sauce....horrible stomach pain, burning. Of course, it could have been the pasta.....but I had eaten pasta in other ways without tomatoes and didn't get that. As much as I loved my spaghetti recipe, I just couldn't face eating it any more. I've also noticed that some foods affect me more in combination. As I mentioned, corn chowder...which is potatoes/corn, and I guess that would be a mega hit of starch converting quickly to sugar.

What are all the nightshades again?

Ursa Major Collaborator

The nightshades are potatoes, tomatoes, peppers (all kinds, including chili peppers and paprika) and eggplant.

And the reaction was not likely the pasta (unless it wasn't gluten-free), but the tomato sauce. Or you might be intolerant to the combination of meat and tomato, like one of my daughters (she is also intolerant to the combination of meat and potato, as well as sugar and wheat, she won't believe me that it might be more than just wheat).

When you are intolerant to combinations you can usually eat those foods three hours apart from each other. Mind you, in the meantime I believe that you really are intolerant to one of those (or both), but get a really bad reaction to the combination.

My combination was grain and fruit. Now I know that I can't tolerate any grains, and the same goes for most fruits. Alone I didn't clue in to the reaction (especially because I was on codeine 24 hours a day for 'fibromyalgia' pain, which has pretty much gone away after going off salicylates). But the combination would be a killer, and cause obvious symptoms like huge hives all over, and being terribly itchy for a couple of days.

Guest BERNESES

I avoid gluten (of course), not much dairy (I will occasionally have mozarella, parmesan or cheddar cheese and sometimes I bite the bullet and have ice cream- the reaction differs every time- if I've gotten gluten in my system, bad news!).

I'm not a big soy fan- makes me queasy.

Nightshades definitely aggravate my arthritis so i eat them in small amounts (and usually pay but God- I LOVE Mexican food). Not lots of red meat although this might change as I'm low in iron and very fatiguede right now.

No vinegar except apple cider. I may as well have eaten a slice of 7 grain bread.

No alcohol except white wine and even that lately has left me feeling wrecked after a glass or two. I miss vodka but right now it's just not worth it!

Peanut butter and chocolate- my two favorite things in the world- are currently not agreeing with me :angry: Boo-hoo!

drewsant Rookie

I'm allergic to wheat, soy, fish of all kinds, tree nuts, and chicken. I'm pretty much gluten free. It's the soy I'm having a hard time with. Soy eliminates chocolate which is one of my favorite things, as well as anything that has been fried, even tortilla chips, and things I never would have thought of. I've been on what I call my "allergen-free diet" for about 2 weeks. Really not much change yet, but I got a stomach virus that caused a lot of problems for about 3 or 4 days, so I'm still waiting to see if it helps.

The fish and nuts and wheat and soy cause stomach cramps and diarrhea. Not sure about the chicken. I love chicken, but haven't eaten it since I was told about the allergy. I might have to eat some and see what happens.


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Guest Zmom

my son: gluten-free and no dairy,soy,pork,poultry,rice,citrus(including tomatoes),peas,nuts,navy beans, bananas,grapes...

Me:gluten-free. I can only eat corn pasta (new) colman beef,land o'lakes eggs, chebe bread mixes (dairy free,gluten-free) some hormone-free chichen, occationally amy's marinara sauce, and spectrum canola mayo.

The brand of eggs makes a difference with my son.I guess its what they feed the chickens.

Went gluten free march 2005 but it was not until I gave up all rice products that my fibromyalgia improved 80%.-all the rice products had been certified gluten-free.

traveljunkie Rookie

I love these polls! :)

Myself: gluten, dairy, melons, citrus fruits, juice, beef, chicken, pork and processed foods

My son: gluten, dairy, all meat and seafood

My son and I are the gluten intolerants in the house, but my hubby and younger son, pretty much eat what I cook them and that's my diet! :P

  • 1 month later...
danikali Enthusiast
Hi- Hope you don't mind that this is a question that is off the topic but I was curious as to your diagnosis which is just so recent.

Did you ever have blood work done for celiac that came back negative. What did enterolab do? Dr. Green did genetic test? I am curious ad your info caught my eye and I am thinking about my two sons who both have symptoms but had blood tests that show negative. I'm trying to decide which test to do next.

regards mj

Okay, I know this is an old old post, but I was just reading through it and didn't realize that you were asking me a question! I'm so sorry..

So, first, I did enterolab, which showed gluten sensitivity. Then I had blood drawn with a different GI and it came back negative. She also did the biopsy which she said was negative until Dr. Green looked at it and said that it was positive. He also tested the gene and I have DQ8 (a main Celiac gene). So that is what has been established now. I go back to see Dr. Green in March or April and I am going to a nutritionist on Tuesday to help me figure out my other intolerances.

You said that your son's tests came back negative. Well, that could totally mean nothing, as mine showed nothing. Maybe you should try enterolab first before getting them a biopsy though because depending on how young they are, it's not really a pleasent experience.

Hope my reply isn't too too late. Probably is, and I'm sorry.

corinne Apprentice

I tried just gluten free for a while, but symptoms kept getting worse so I finally started with just carrots and lamb and have been slowly adding foods back in. So far all grains including wheat, oats, corn, rice and quinoa, potatoes, beans, soy, fish, shrimp, dairy including cheese and caffeine and raw fruits or vegetables give me diarrhea etc. Right now, I'm eating canned peaches, diluted grape juice, any meat, well cooked carrots, zucchini and beets. Hopefully, things will settle down with time and I can expand my diet.

pixiegirl Enthusiast

On top of gluten being out, I can't have tomatoes, peppers, green beans, squash or peanuts, I'm quite allergic to all of them. I have mild reactions to: lettuce, apple banana, beef, chicken, corn, egg, orange, potato, soy, tuna yeast, these I can eat infrequently and I will have a mild reaction.

Susan

Carriefaith Enthusiast

I am allergic to milk so I also avoid dairy products. I read ingredients labels for dairy products just like I do for gluten.

wolfie Enthusiast

For me along with the gluten, I can't tolerate onions (whole or spice), garlic (whole or spice), peppers, seeds, dairy (although I will eat cheese and take a Lactaid) and now soy (that seems to be in large amounts though..like a glass of soy milk). Some fruits have given me issues since going gluten free too...bananas, pears, apples. I am eating a very bland diet right now.

Kim

slpinsd Contributor

I avoid lactose since before my diagnosis, since the reactions were obvious. Now that I have had other IgG intolerances tested, I avoid:

Bananas

Pineapple

Sesame

Egg whites and yolks

Sugar

Asparagus

Casein

Yogurt

Milk

Cottage Cheese

Blueberries

Cranberries

Lemon

Orange

Coffee (even decaf)

By experience, I also avoid High Fructose Corn Syrup and spicy foods.

CMCM Rising Star

Besides gluten and dairy, I pretty much avoid soy even though I didn't test postive to it. I also get sick from potatoes (which I love) and cooked tomatoes bother me sometimes, although I don't think raw ones do. I also avoid fried things.

covsooze Enthusiast

I'm awaiting my York test results, and am just wondering, have those of you who've done IGg testing and eliminated the foods you were positive to found a real difference? My son'd paediatrician, who specialises in allergies and food intolerances, says that he has been unable to find any scientific research that definitely links IGg with food intolerance - he was very open to doing so, so I'd be interested to know if there's any 'proof' out there.

At the moment, apart from being gluten-free, I'm also DF, and don't eat tomatoes. Trying to avoid rice also. Anything fatty or spicey gives me problems. I'm allergic to blue cheese. I have my doubts about a few other things as well, but am waiting for my test results in the hope that will make things a bit easier...Sadly, I am too much of a foodie to bear starting with one food and adding others in gradually, although it may yet come to that.

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    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
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