Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Autoimmune Diseases In Families


chrissy

Recommended Posts

chrissy Collaborator

since celiac is related or connected to other autoimmune diseases, i was just wondering how many different ones you all have in your families? in my line, my grandfather had MS, my brother has type1 diabetes, my sister has PSC, and my niece has sjogren's syndrome. in my dh's line, his grandmother had rheumatoid arthritis and his aunt has diabetes. i think that i originally counted 8 related conditions in our families, but i can't remember them all.

christine


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ms-sillyak-screwed Enthusiast

I was wondering also about autoimmune diseases because I honestly -- know nothing. :blink:

All I know is about 10-years ago my ex-hubby (not a doctor but we owned a chain of medical centers) he marched me around to all his doctor buddies they diagnosed me with all sorts of things, migraines, IBS, and etc. One was an autoimmune disease, A-type? I think I’ll go look it up in my medical files to be more accurate. I really don’t know what it means; or how it affects my other health issues.

Lately I have been doing a family tree and in reading my grandfathers death certificate I see he had an autoimmune diseases along with some of the diseases – chrissy – posted.

jnifred Explorer

one thing to remember is that autoimmune diseases are so inter-related with symptoms that they can sometimes be almost impossible to diagnose. My rhuematologist once told me that sometimes it doesn't matter what you call it, they are almost all treated the same and what works for one person won't work for another, so we just had to experiment to see what worked for me.

You can be diagnosed with one thing and start to have symptoms of another and less symptoms of the problems you originally started with. I think the most important thing with auto-imune diseases is to take care of your body, eat healthy, exercise, get sleep and drink lots of water. I know for me that when I take care of myself in all those ways, I feel so much better, let one of them slide and I immediately notice a difference in my energy, etc.

2Boys4Me Enthusiast

My younger son has Celiac. My husband, older son and I don't have any autoimmune diseases (that we are aware of...we've all been tested for celiac).

Neither my Mom, Dad, brother or sister have any autoimmune diseases. My Mom's Mom and Grandfather had thyroid problems. Most of my maternal grandfather's brothers and sisters had diabetes (not sure what kind) and one died of stomach cancer.

I have very little medical info from my Dad's side of the family other than one of his brothers died of stomach ulcers (I don't really know what that means).

On my husband's side: his dad has MS and his mom has psoriasis (which I think is auto-immune).

lorka150 Collaborator

My mom has MS.

My aunt (her sis) has MS.

My uncle (her bro) has eyeritis.

My grandma (her mom) has hypothyroidism and fibromyalgia.

My grandpa (her dad) has heart disease.

My sister has MS. My sister has IBS.

My dad's side, we are pretty sure that he has celiac disease and perhaps his twin bro.

DonnaD Apprentice

I have fibromyalgia & Gluten sensitivity

My daughter: celiac disease

My Sister Dx Fibro & Gluten sens

My younger sister ? Same symptoms as me at her age.

My Mother rheumatoid arthritis

My Dad, Motor neuron - not sure about this being auto immune

Aunt (mum's sister) Rheumatoid A. died of ovarian cancer.

Uncle (mum's brother) died of leukemia (i think this is Auto Im)

My matermal grandfather died of 'ulcers'

Cousin on dads side: fibro

jenvan Collaborator

My mom hashimoto's, her mother had thyroid dis.

My dad, psoriasis

My brother, aplastic anemia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rikki Tikki Explorer

My mom and brother were also recently diagnosed with celiac.

jerseyangel Proficient

My mom--Antiphospholipid Syndrome--an autoimmune clotting disorder (she has many symptoms of Celiac, including chronic anemia. Neg. blood test)

Cousin--MS

Mom's cousin--MS

StrongerToday Enthusiast

My father has type II diabetes and thyroid issues (his was removed 5 years ago). His mother also had her thyroid blow up to the size of an orange but refused to see a dr. My cousin has Chron's (she's on the other side of my family).

kabowman Explorer

These are just the Autoimmune that I know of:

Maternal Grandmother - Rhumatoid Arthritis, food intolerances (from discussing with family)

Maternal Aunt - Celiac disease, Lupus, Nurothopy, Rhumatoid Arthritis, sarcoidosis (sp)

Maternal Cousin - MS, Lupus

Mother - food intolerances, will not investigate, nuropothy, sarcoidosis (sp), allergies, Mortons neuroma

Patermal Grandmother - Lupus

Sister - food intolerances, just begining to investigate

Me - food intolerances, lichen schlorosis (docs keep thinking I may have lupus too)

carriecraig Enthusiast

My dad has psoriasis

elisabet Contributor

My son is allergic to almost everything and ,no one else in our family has any autoimmune condition.

TCA Contributor

Ready for this? this is all just my dad's side of the family.

Dad: Diabetes, connective tissue disorder, kidney disease, heart disease - MANY issues

grandfother: chronic ulcers

grandmother: thyroid issues (removed at around 35)

aunt: diabetes, severe allergies, thyroid issues, fibromyalgia

uncle: diabetes, severe allergies, milk sensitivities, fibromyalgiam, failure to thrive as infant

2 cousins: severe allergies, milk sensitivites, failure to thrive as infants.

aunt: rhuematoid arthritis

aunt: Thyroid issues

uncle: diabetes

great-grandmother: diabetes

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.