Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm New And Stupid!

ssMarilyn

Recommended Posts

ssMarilyn Newbie
ssMarilyn
Posted

I'm still trying to figure out how to get around on this board. It doesn't take much to confuse me! Here's my problem. The past year or so, I get kind of sick whenever I eat pasta, corn, peas, bread, etc. Last week, we went to Happy Hour at our local bar, and I had pizza and one bottle of beer. I was up all night, bloated, felt awful. Last night we had pizza here at home, no beer. I was up all night, AM STILL UP , it's 6am, feeling horribly bloated and uncomfortable. Is this celiac? I'm 54, and started having problems with wheat a couple of years ago. I used to be able to eat anything, anytime. What's going on here, I hate it!

I've read that as we get older, our stomachs lose some of the enzymes it needs to digest foods, so we start having problems. Thats not considered celiac is it?

Marilyn

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

it sounds like you could have Celiac or a gluten intolerance. If you want to try for a firm diagnosis, find a Dr. that is extremely knowledgeable about Celiac. Continue to eat gluten if you are going to have testing done, as if you go gluten free, any test results will not be accurate. OR you could simply try the diet and see if it helps you if you don't want to mess with Dr.s. Keeping in mind that if you choose that route, you probably will not be able to get a firm dx of Celiac.

celiachap Apprentice
celiachap
Posted

I'm still trying to figure out how to get around on this board. It doesn't take much to confuse me! Here's my problem. The past year or so, I get kind of sick whenever I eat pasta, corn, peas, bread, etc. Last week, we went to Happy Hour at our local bar, and I had pizza and one bottle of beer. I was up all night, bloated, felt awful. Last night we had pizza here at home, no beer. I was up all night, AM STILL UP , it's 6am, feeling horribly bloated and uncomfortable. Is this celiac? I'm 54, and started having problems with wheat a couple of years ago. I used to be able to eat anything, anytime. What's going on here, I hate it!

I've read that as we get older, our stomachs lose some of the enzymes it needs to digest foods, so we start having problems. Thats not considered celiac is it?Marilyn

It certainly could be celiac! There have been times in my life when I had what I described to people as a "Cast Iron Stomach", and I could eat anything (or so I thought) - and other times the complete opposite was true. I always had trouble with beer, though.

First, I think that you should try some Lactaid, or another Lactase Enzyme supplement. If I don't take them, I have problems, even though I am totally gluten free. I make gluten-free pizza - but I can't eat it more than once or twice a week becase the dairy in the cheeses gives me trouble, even with the lactase enzymes. Whether you have Celiac or not, the digestive enzymes for dairy may help until you find out more.

I also take other enzyme supplements, but that is because I don't know if my villi (in the small intestines) are 100% normal yet (if they ever were "normal", lol).

This sounds like you have a dairy intolerance - but don't rule out Celiac as being the root cause. I had many of your symptoms, and I could live with them for most of my life - but eventually it caught up with me and my digestive system went off the deep end - almost taking me with it.

Good luck, and feel free to keep us updated on your quest for a solution.

ssMarilyn Newbie
ssMarilyn
Posted
  • Author

Thank you so much....I hadn't even thought about the dairy part of the pizza. Hmmmm......something else to consider now.

M :)

Lisa Mentor
Lisa
Posted

M.

Just wanted to say that there are no stupid questions here so ask away.

It is obvious that you have a reaction to either wheat or cassin products. As stated before, if you choose to be tested continue as usual although painful to you.

If you choose to go gluten free, we can send you the Delfi Product List, that lists product by brand name and it is easier for you to shop for appropriate foods.

We all can get you started.

Let us know. Lisa

  • 8 years later...
ssMarilyn Newbie
ssMarilyn
Posted
  • Author

M.

Just wanted to say that there are no stupid questions here so ask away.

It is obvious that you have a reaction to either wheat or cassin products. As stated before, if you choose to be tested continue as usual although painful to you.

If you choose to go gluten free, we can send you the Delfi Product List, that lists product by brand name and it is easier for you to shop for appropriate foods.

We all can get you started.

Let us know. Lisa

I just now found this old thread from years ago. Lisa are you still there and do you have the product list?

kareng Grand Master
kareng
Posted

I just now found this old thread from years ago. Lisa are you still there and do you have the product list?

 

 

I don't know what list she is referring to - but you wouldn't want a list that is 8 years old.  Products change over time.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

Yeah, the best thing is to learn how to read labels. And it's a lot easier now than it was years ago. In the US, wheat MUST be listed on the ingredients label because it is one of the top eight allergens. Rye is pretty much only in rye bread. Barley is the only one you have to watch out for. Sometimes a product will contain malt but it won't say from barley. (Often it WILL say from barley because barley is expensive and companies want you to know they use expensive ingredients, but not always.) Oh yeah, and oats are usually contaminated unless they are marked certified gluten-free.

 

But if you're new to the diet you should be sticking to whole foods right now anyway - you know - meats, veggies, fruit, potatoes, rice. Processed foods are hard to digest with all the garbage they put into most of them. Give yourself time to heal. And DO go to the coping section here and read the Newbie 101 thread. It will give you a wealth of information about the diet and cross-contamination and so much more.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748
    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.