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Cure For Celiac Disease!?


bobhayes1

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bobhayes1 Newbie

Hello, This is my first time using a forum and hope I get it to work. Question...Is there a CURE for Celiac disease? There is a doctor advertising on this site. His name is Dr. Skip Snow. He says, in his site that he can and does cure Celiac disease, as well as other diseases. It will cost me a lot of money, that I don't have, in order to try him. Has anyone had any experience with him? Any success or failure to report? Thanks, Bob


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MySuicidalTurtle Enthusiast

No, there is no cure for Celiac Disease.

Carriefaith Enthusiast

I wouldn't trust this information until I saw published articles with concrete studies.

teebs in WV Apprentice

Where on this forum did you see the claims made by this doctor?

jerseyangel Proficient

I was wondering the same thing--I don't remember ever seeing the name or a post.

There is no cure for Celiac. :angry:

Claire Collaborator

Buyer Beware!

Celiac is a genetic disorder. There is no cure for a genetic disorder. Someday there may be a valid and safe intervention but at this time the gluten free diet is the one and only way to go. Claire

Rusla Enthusiast

I have not seen anything from that Dr.? on this site.

There are snake oil salesmen born every minute. There is no cure and unless there was undisputed proof on the news etc., everywhere, I do not believe it.Unfortunately, there are tons of con men and quacks out there.


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jenvan Collaborator

No cure, and I'd be hard-pressed to trust anyone who said they had one...

VydorScope Proficient

Maybe it was in one of the GOOGLE ad's? I could see that happen, Celiac.com has only very limited contorl over the Google ad's.

tiredofdoctors Enthusiast

NOT to blast chiropractors, but they often advertise locally that they can cure celiac here. They insist that if the spine is in proper alignment, all disease processes will diminish and eventually leave . . . Hmmmm. . . .

nettiebeads Apprentice
Hello, This is my first time using a forum and hope I get it to work. Question...Is there a CURE for Celiac disease? There is a doctor advertising on this site. His name is Dr. Skip Snow. He says, in his site that he can and does cure Celiac disease, as well as other diseases. It will cost me a lot of money, that I don't have, in order to try him. Has anyone had any experience with him? Any success or failure to report? Thanks, Bob

I agree with Carriefaith - need empirical evidence, or published articles in the New England Journal of Medicine or JAMA. But I'm from Missouri so you have to show me. My brother and his wife tried to get me on Reliv with claims of people who were "cured" by the nutritional supplement. I figured it out by looking at the ingredients - one was L-glutamine which really heals the intestine. I take that ($4 as opposed to $70)

and it has helped me get through accidental glutenings immensly. My mother is one to believe everything she reads and spends money she really doesn't have on supplements and literature. And almost all of the claims she reads is anecdotal. No empirical evidence. Also, a big tip off here is - MONEY!!! does this Dr offer a money back guarantee? Also, where did he get his diploma and in what field? Anyone can call themselves Dr on the internet. And anyone can legally be a Dr, but have the degree in any field, just so long has the person has passed his/her PhD. So, sorry to dash your hopes, but while celiac cannot be cured at this time, it is very livable and best of all, no prescriptions! Just a major radical change in diet, and your life is just about as normal as everyone else's!

Annette

mamaw Community Regular

sorry, but I wouldn't bite on that one.... I wonder if he has anyone willing to back up his claim???????

then I still would be very very VERY leery........ I never noticed this on this site.....

Save your big bucks and have yourself a great vacation......

mamaw

elonwy Enthusiast

I went to the link that was posted, and have one opinion SEVERE QUACK ALERT!!!!! He also says he can cure herpes and a whole bunch of other things that aren't curable, and he says he can cure you OVER THE PHONE!!!

<pppppppppppffffffffffftttttttttttttt>

Elonwy

debmidge Rising Star

Just a thought here but if there really was a cure, which I am sure isn't true, it would be broadcasted by the Celiac Sprue Assoc or the wonderful hospitals that are involved in celiac research (which I can't remember who they are but they are in Maryland, Chicago, Calif and NYC).

Until they (see above) declare a cure exists I wouldn't start chasing rainbows anytime soon.

Timber4est Rookie

As we all know, there is no cure. The treatment is to go gluten-free, after being gluten-free for a while, your tests will come back negative, but if you go back to gluten foods, guess what, your tests will once again be positive.

A cure means it is gone, won't come back, so no, there is no cure for Celiac Disease, but it can be taken care of through diet to produce a "false" positive test result.

debmidge Rising Star

Good point Timber4est. That would be a sneaky way for a quack to declare a celiac as healed and move onto the next victim. Meanwhile the first celiac would be in for trouble.

Timber4est Rookie

I hate to say it, but there are many illnesses that through diet changes and supplements that DO produce a false negative test through blood or biopsy. There are many "quacks" (yes I call many doctors, herbal supplment /potion pusher that knows these things quacks) who know what to use and or how to change a persons diet to produce a false negative test. Then, they proudly proclaim "CURED, can I get a testimonial?"

When it comes to being sick, people are fighters and hang onto every glimmer of hope they can for a "cure" to be rid of what makes them sick. In the case of being Celiac, we all know if we go gluten free for a time and go back in for tests, they will come back negative. These quacks know it as well and prey upon those looking for that cure. The problem is, once they quit the "curative treatment", they will soon enough become sick all over and produce positive tests again.

My brother has a really bad skin problem, to the point that he is covered with discolored blotches. He has had this all his life, starting from birth. I remember wathching him being covered with lotions, potions, being force fed supplements and one dermatologist after another would do their best to treat the problem. After he grew up, got married, his dear sweet wife found an ad in the paper where a doctor stated he had a cure for this type of skin condition. So my brother borrowed money against their new home, sold his car, borrowed money from the family and started treatments. Keep in mind this was in the 80's.

For six months he went in for his 3x weekly sessions where the doctor would slather him with lotions and potions and then use his "scientific tool" and would massage his skin. Each session was $125, which was a great deal in the 80's. Within six months, sure enough my brothers skin looked so good. It didn't look like a "normal" persons skin, but he wasn't scared to wear a pair or shorts or go water skiing with us. The doctor asked him to give his testimonial, allow him to use his before and after images and sign a release. He didn't think much of it, because after all, this doctor had cured him just as he had said he would.

Slowly, inch by inch, leg by leg, arm by arm, we watched his skin revert back to what it was prior to treatments. In a matter of months all that money he had spent turned into a great big waste of time, money and energy. It was clear he had not been cured, only treated. As soon as he stopped being treated, his skin reverted back to its original state.

As my brother had signed a firm release form, he was unable to get his testimonal or images back from the quack. He used them everywhere. We found these pamphlets all over town with his images and in magazines where this doctor advertised his "cure". He tried to get the doctor to stop using his testimonial and images, but he refused as the release form had been signed.

We hired an attorney who hired an investigator to go through this doctors "treatments". He would record every session and take samples of the lotions and potions -in the end discovered that they were all available on the open market, some right from the grocery store, others special order from companies who made bases for cosmetic companies. The special "scientific tool" turned out to be an ultrasound device just like a physical therapist uses.

In the end, it turned out to be a class action lawsuit against this doctor, everyone got their money back and enough to cover the legal and court fees and enough for them to purchase their own ultrasound devices so they could treat themselves at home, which is what my brother has done ever since. The quack lost his ability to own a business in our state and moved to another state where he continues to this day to practice his quackery

Was he cured or treated? Well, the ad read "I will cure you", but the reality was he didn't cure a darned thing, he only treated his customers (I'd call them patients, but I don't consider him a doctor no matter what the degree paper says on his wall). What he did was to TREAT his customers and as soon as he stopped TREATING his customers, they reverted right back to their original state, some more slowly than others. Never did he CURE anyone.

Celiac, there is no cure, but treatments are amazing! You don't have to go to some expensive "CURE YOU QUACK", you simply need to find the support of a great group (like we have here), a doctor who is willing to learn or already knows about Celiac and follow his care, go to the library and read every good book and use a special "scientific tool" in your kitchen known as gluten-free foods. Soon enough you will have TREATED yourself right out of some of your problems. I say "some" as there are those like me, who went un treated for so long that I have developed other diseases along the way and will never be back to a fully "normal" state. I can however live a vibrant, active life again so long as I stick to my "scientific tool" known as gluten-free foods.

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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