Test results

[Eileen B]

hi all,

i know I’m clutching at straws here but is there any chance with the blood results below that my 12 year old might not be Coeliac? We have another two weeks to wait for his scope  he has some mild symptoms ( vomiting) that only started very recently  no family history  

 

 

 

midated Gliadin IgA
Deamidated Gliadin IgG
Tissue Transglutaminase IgA
Tissue Transglutaminase IgG

H 38      U/mL
H 66      U/mL
H >250    U/mL
H 31      U/mL
(<15) (<15) (<15) (<15)

 

any help appreciated. 

[RMJ]

With all four positive it’s very likely celiac.  Be sure to feed him all of his favorite gluten-rich foods between now and his endoscopy. You don’t want the damage to heal before the endoscopy by going gluten free too soon, plus he’ll probably be gluten free afterwards.

[trents]

Slim to none, Eileen.

And his tTG-IGA, which is the center piece of celiac antibody testing, is significantly greater than 10x normal. I'm guessing by the way you spelled "ceoliac" that you are in the UK. If so, it is common for physicians there to give an official diagnosis of celiac disease without an endoscopy/biopsy when the serum antibody test scores are 10x greater than normal readings.

Welcome to the forum, by the way.

Saying, "with no family history" does not necessarily mean none of your son's relatives have or have had celiac disease. It simply may mean they were not diagnosed. Many celiacs are asymptomatic for years until the damage to the small bowel lining is so great that symptoms start to appear. We call them "silent celiacs". Many of us who have been diagnosed with celiac disease look back and realize we had vague symptoms for years before they got bad enough that we were motivated to look into it. And on top of that, celiac disease is commonly missed and passed off with other diagnosis such as IBS.

[Eileen B]

5 minutes ago, RMJ said:

With all four positive it’s very likely celiac.  Be sure to feed him all of his favorite gluten-rich foods between now and his endoscopy. You don’t want the damage to heal before the endoscopy by going gluten free too soon, plus he’ll probably be gluten free afterwards.

Thanks for the reply. Just on our way home from a weekend away, stopped at McDonald’s for some pancakes, there was no shortage of gluten this weekend LOL

[Eileen B]

3 minutes ago, trents said:

Slim to none, Eileen.

And his tTG-IGA, which is the center piece of celiac antibody testing, is significantly greater than 10x normal. I'm guessing by the way you spelled "ceoliac" that you are in the UK. If so, it is common for physicians there to give an official diagnosis of celiac disease without an endoscopy/biopsy when the serum antibody test scores are 10x greater than normal readings.

Welcome to the forum, by the way.

Saying, "with no family history" does not necessarily mean none of your son's relatives have or have had celiac disease. It simply may mean they were not diagnosed. Many celiacs are asymptomatic for years until the damage to the small bowel lining is so great that symptoms start to appear. We call them "silent celiacs". Many of us who have been diagnosed with celiac disease look back and realize we had vague symptoms for years before they got bad enough that we were motivated to look into it. And on top of that, celiac disease is commonly missed and passed off with other diagnosis such as IBS.

Thanks T, we are Irish (so higher % of coeliac) but living in Oz. His blood results were just such a shock. Looks like we better enjoy our few weeks prior to scope. 

[trents]

30 minutes ago, Eileen B said:

Thanks T, we are Irish (so higher % of coeliac) but living in Oz. His blood results were just such a shock. Looks like we better enjoy our few weeks prior to scope. 

Oz?

[Eileen B]

11 minutes ago, trents said:

Oz?

Sorry! Australia

[cristiana]

Hi Eileen

A UK coeliac here.  

Just out of interest, when you eventually find yourself in the gluten-free aisle at the supermarket I'd like to know if they are now selling Gluten Free Tim Tams in Oz?  I lived in Sydney for a few months back in the 1980s and loved them!

C.

[Eileen B]

34 minutes ago, cristiana said:

Hi Eileen

A UK coeliac here.  

Just out of interest, when you eventually find yourself in the gluten-free aisle at the supermarket I'd like to know if they are now selling Gluten Free Tim Tams in Oz?  I lived in Sydney for a few months back in the 1980s and loved them!

C.

Haha I’ll take a look next time I’m in!

[trents]

Is Oz really used for Australia? Must be an unofficial abbreviation. The only Oz I'm familiar with are where Dorothy and the Tin man live.

[cristiana]

If you are from Australia you are an Aussie, which the British and Australians pronounce as Ozzie - hence abbreviation to Oz.  

I must admit I thought you were an Ozzie for years, trents, with your Location being WA Centralia - I thought that meant Western Australia!!😄

[trents]

2 minutes ago, cristiana said:

If you are from Australia you are an Aussie, which the British and Australians pronounce as Ozzie - hence abbreviation to Oz.  

I must admit I thought you were an Ozzie for years, trents, with your Location being WA Centralia - I thought that meant Western Australia!!😄

Blimey! WA stands for Washington state in the Pacific northwest of the USA.

[cristiana]

How funny!  I've just googled it, thank you. 

And yes... Ozzie/Oz is most definitely not an official term.  But here in the UK many often refer to Australia as Oz.  In turn, the Ozzies sometimes call us Poms, which stands for Prisoners of Mother England!

[trents]

So, Christiana, I note that you identify as "British" and not "English". Have the terms "England" and "English" fallen out of favor? And is Great Britain the equivalent of the United Kingdom?

[cristiana]

I say British because I hold a British passport.  But yes, I do also say I'm English, as a citizen of the United Kingdom of Great Britain and Northern Ireland. 

I'm not sure why I put British rather than English on this website - I answer to both.  

https://en.wikipedia.org/wiki/United_Kingdom

Edited June 13, 2022 by cristiana

[trents]

2 minutes ago, cristiana said:

I say British because that's my passport.  But yes, I do also say I'm English, as a citizen of the United Kingdom of Great Britain and Northern Ireland. 

I'm not sure why I put British rather than English - I answer to both.  

https://en.wikipedia.org/wiki/United_Kingdom

Does the UK not include Scotland and Wales? Are they sovereign countries?

Edited June 13, 2022 by trents

[cristiana]

1 minute ago, trents said:

Does the UK not include Scotland?

Currently, yes, but a lot of Scottish people would like it to become independent.  Currently the United Kingdom of Great Britain and Northern Ireland comprises: Scotland, Wales, Northern Ireland and England.  

Plus a few islands, such as the Isle of Wight, the Isle of Man, Jersey, Guersey and the Scilly Isles.

[knitty kitty]

"Freedom!"

[knitty kitty]

Lots of great knitting traditions in the Isle of Man and Guersey!  

I like knitting Shetland shawls!

[trents]

32 minutes ago, cristiana said:

Currently, yes, but a lot of Scottish people would like it to become independent.  Currently the United Kingdom of Great Britain and Northern Ireland comprises: Scotland, Wales, Northern Ireland and England.  

Plus a few islands, such as the Isle of Wight, the Isle of Man, Jersey, Guersey and the Scilly Isles.

Why is it called "The United Kingdom of Great Britain and Northern Ireland" and not "The United Kingdom of Great Britain, Northern Ireland, Scotland and Wales"? Do the Scots and the Welsh feel left out?

[frieze]

41 minutes ago, cristiana said:

Currently, yes, but a lot of Scottish people would like it to become independent.  Currently the United Kingdom of Great Britain and Northern Ireland comprises: Scotland, Wales, Northern Ireland and England.  

Plus a few islands, such as the Isle of Wight, the Isle of Man, Jersey, Guersey and the Scilly Isles.

Is that not Guernsey?

[cristiana]

Sorry, Frieze, typo...  Just checking everyone is paying attention!

Trents... in answer to your question, I have no idea!🤔

Do you think I should just change my celiac.com profile/signature to "Citizen of the World" before I start an international incident here? ....

Edited June 13, 2022 by cristiana

[trents]

16 minutes ago, cristiana said:

Sorry, Frieze, typo...  Just checking everyone is paying attention!

Trents... in answer to your question, I have no idea!🤔

Do you think I should just change my celiac.com profile/signature to "Citizen of the World" before I start an international incident here? ....

No, the distraction would be good.

[C4Celiac]

 that's 100% Celiac.   don't even need to give him endoscopy unless they're looking for other things. 

[LCAnacortes]

On 6/13/2022 at 7:18 AM, trents said:

Blimey! WA stands for Washington state in the Pacific northwest of the USA.

Centralia is the city name. I live in Anacortes - also in Western Washington.  Consider where the Celiac came from.  It has to be on his mother or father's side of the family and there could be silent or unrecognized symptoms there.  Once I started remembering things that I heard family members were dealing with - it was apparent that it was rampant in my mother's heritage.  I'm letting my cousins know.