Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Just Have Celiac Only?

Moongirl

By Moongirl
in Coping with Celiac Disease

Recommended Posts

Moongirl Community Regular
Moongirl
Posted

I feel like the more I read posts and stuff here the more i see people that have multiple diseases or allergies or intolerances.....

So I was wondering if anyone just has Celiac, and nothing else....? :blink:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
I feel like the more I read posts and stuff here the more i see people that have multiple diseases or allergies or intolerances.....

So I was wondering if anyone just has Celiac, and nothing else....? :blink:

I think if we were all diagnosed as children, as we should be, we would have lots of people that would say 'Yea, only celiac' but since we have to be almost dead before they diagnose us most of us have multiple problems because of having this toxin acting on our systems for years. My goal is to have grandchildren of normal height and celiac related problem free. I know my grands on at least my DS side will never have the toxin in their homes.

Canadian Karen Community Regular
Canadian Karen
Posted
So I was wondering if anyone just has Celiac, and nothing else....? :blink:

I wish.......... <_<:angry:

Most of us have lasting damage and picked up additional diseases due to delay in diagnosis..... <_<

Hugs.

Karen

flagbabyds Collaborator
flagbabyds
Posted

Yeah i defenitely wish. Suddenly like all these allergies poped up out of no where.

elonwy Enthusiast
elonwy
Posted

Sofar as I can tell, I've only got Celiac. I might have a problem with nightshades, but its been kinda hard to pin down, because my reactions aren't the same every time. Other than the Celiac though, I appear to be perfectly healthy, which is nice. I wasn't even really anemic or anything, which surprises me because of how absolutely crappy I felt. I have chronic sinus allergies, but I don't think its related at all.

Elonwy

jerseyangel Proficient
jerseyangel
Posted

If I had been diagnosed at 9, instead of 49, I may not have developed the additional health issues that I now have.

nikki-uk Enthusiast
nikki-uk
Posted

Ummm,fraid not.

Hubbie dx with Psoratic Arthritis 4yrs before celiac disease dx.

As Jersey Angel said,if he'd been dx with celiac disease in childhood instead of at 40yrs maybe it would be different!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


penguin Community Regular
penguin
Posted

I wish, too. The other things are just annoying little things that are wrong with me though...

Like being allergic to air and tree nuts...

and the roadmap of vericose veins on my legs...

I wish the gluten-free diet would fix everything <_<

Lauren M Explorer
Lauren M
Posted

Knock on wood, I think that Celiac is the only thing wrong with me, physically speaking of course :lol:

- Lauren

nettiebeads Apprentice
nettiebeads
Posted
Knock on wood, I think that Celiac is the only thing wrong with me, physically speaking of course :lol:

- Lauren

Same here.

Annette

hez Enthusiast
hez
Posted

At this point I just seem to have celiac. So far no intolerences or allergies. When they checked my blood levels the vitamins looked great and my bone scan looked almost normal. I feel very lucky since my GI thought I had about 15 years worth of damage to my intestine.

Hez

Ursa Major Collaborator
Ursa Major
Posted

As somebody else said, too much damage. If I would have been diagnosed at the age of 2 instead of 52, that would likely have been all. I did have symptoms then already, but unbelievably, it took 52 years of being ill, before I diagnosed MYSELF!

flagbabyds Collaborator
flagbabyds
Posted

That would be so nice to have just celiac, so easy to dealy w/. But no never just one problem w/ me. As my doc said, if it's not one thing it's another. :)

taylor- Rookie
taylor-
Posted

I only have celiacs.

When I was little and I would go to the support group meetings(they always gave out free cookies and stuff i didn't normally get so I went to them even though I was only 6 or 7). All the older women would tell me how lucky I was to have only celiacs and be diagnosed so early. I never believed them, despite the fact that more than half of them had some kind of tube in them or a wheel chair or took pills with everything.

After reading some of the post on here though Im very thankful that I was diagnosed at 18 months and not once I had 10 million other problems that went along with it

~taylor

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

I too, "only" have celiacs. I guess I am amongst the lucky ones for just this one problem so far. Right after my hospital stay and diagnosis, I was a bit intolerant to a lot of different foods. I am pretty sure that was just b/c of the mess in my intestines. I hope to stay this way.

Tinkerbell

skoki-mom Explorer
skoki-mom
Posted

Yeah, as far as I know. I have hayfever and I get hives on my mouth if I eat uncooked cherries/peaches/nectarines etc, but that's it. The allergies probably go along with just have a whacked out immune system.

francelajoie Explorer
francelajoie
Posted

I think I only have Celiac...thats if I even have it. I know I'm gluten intolorent. If it's the same treatment either way, why go through the biopsy?

I don't think I was really sick. I had occasional D and C for about 6 months when I said enough!

Went to the doctors and after a blood test, she said I was gluten intolorent. After 2 days on the diet, I was back to normal...haven't been sick since.

nettiebeads Apprentice
nettiebeads
Posted
Yeah, as far as I know. I have hayfever and I get hives on my mouth if I eat uncooked cherries/peaches/nectarines etc, but that's it. The allergies probably go along with just have a whacked out immune system.

My immune system was funky to begin with. Certain foods and things like pollen and dust . But lately it's gotten worse. I mean more things are being added. Like now I can't have even a little red wine or champagne when before I hardly had any reactions. But so far it's not everyday common type foods; my food allergies are items that are easy to avoid. (so far)

Annette

Guest Viola
Guest Viola
Posted

Multiple problems here from a late diagnosis. It would be nice just to have Celiac, then you would be healthy as long as you stick to the diet.

If only we could get the medical system to recognize this, then future generations would just have Celiac. :)

darlindeb25 Collaborator
darlindeb25
Posted

I was 46 when I figured out I was celiac--been sick for over 20 years by then, that I remember. I have Raynauds Syndrome, intolerances to almost all grains, starches, and tomatoes. The worst is my peripheral neuropathy. Sometimes I think the celiacs is the easy part now. Deb

PBJ Newbie
PBJ
Posted
I feel like the more I read posts and stuff here the more i see people that have multiple diseases or allergies or intolerances.....

So I was wondering if anyone just has Celiac, and nothing else....? :blink:

I have just Celiac. I was diagnosed February last year after I had my son and have been physically better but mentally a little depressed. I've been sick all my life with symptoms but my mom never took me to a GI doctor. I guess it's nice to know what's wrong but I still get kind of jealous when I'm in a social group setting. I can't seem to get over the jealousy part of this even though I bring my own food. Do you have any suggestions? I'm 24 years old and I'm a stay at home mom and so far my son seems to be ok. Oh yeah, why does everyone say it's lucky to have only Celiac? I must have missed something; I feel like just Celiac is extremely difficult I can't imagine having more problems than that.

Guest nini
Guest nini
Posted

I wish I only had Celiac... if I had been correctly dx'ed as a child would I still be in constant pain from fibromyalgia?

mamaw Community Regular
mamaw
Posted

Count me in with the group that has everything plus the celiac's!!!!!!To add to my list I just got dx'd with mitral value prolapse, and spasms of my vessels and maybe my heart is throwing out blood clots.........

Sometimes I feel like a basket case.......

mamaw

lonewolf Collaborator
lonewolf
Posted
Oh yeah, why does everyone say it's lucky to have only Celiac? I must have missed something; I feel like just Celiac is extremely difficult I can't imagine having more problems than that.

A lot of us, as you can tell by the other posts in this thread, have many other problems, including food allergies. You're right, Celiac is difficult. But from my perspective, it would be "easy" if I could eat eggs, soy and dairy, and "all" I had to avoid was gluten. Others have it way worse than I do.

Guest Viola
Guest Viola
Posted

Yes, we do think it's the lucky people who have only Celiac. Please don't think we are saying that Celiac can't be hard sometimes. It is, and frustrating, sometimes even depressing. However, some of us that took 20 to 30 years to be diagnosed paid for it by being damaged through starving our bodies of the nutrients that we needed to grow properly and keep our bones and muscles strong.

I was left with early onset arthritis .. cronic constocontritis .. flangitis .. fibromyalgia ... and some allergies.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748
    ZENken
    Newest Member
    ZENken
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.