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Does Anyone Just Have Celiac Only?

Moongirl

By Moongirl
in Coping with Celiac Disease

Recommended Posts

Moongirl Community Regular
Moongirl
Posted

I feel like the more I read posts and stuff here the more i see people that have multiple diseases or allergies or intolerances.....

So I was wondering if anyone just has Celiac, and nothing else....? :blink:

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ravenwoodglass Mentor
ravenwoodglass
Posted
I feel like the more I read posts and stuff here the more i see people that have multiple diseases or allergies or intolerances.....

So I was wondering if anyone just has Celiac, and nothing else....? :blink:

I think if we were all diagnosed as children, as we should be, we would have lots of people that would say 'Yea, only celiac' but since we have to be almost dead before they diagnose us most of us have multiple problems because of having this toxin acting on our systems for years. My goal is to have grandchildren of normal height and celiac related problem free. I know my grands on at least my DS side will never have the toxin in their homes.

Canadian Karen Community Regular
Canadian Karen
Posted
So I was wondering if anyone just has Celiac, and nothing else....? :blink:

I wish.......... <_<:angry:

Most of us have lasting damage and picked up additional diseases due to delay in diagnosis..... <_<

Hugs.

Karen

flagbabyds Collaborator
flagbabyds
Posted

Yeah i defenitely wish. Suddenly like all these allergies poped up out of no where.

elonwy Enthusiast
elonwy
Posted

Sofar as I can tell, I've only got Celiac. I might have a problem with nightshades, but its been kinda hard to pin down, because my reactions aren't the same every time. Other than the Celiac though, I appear to be perfectly healthy, which is nice. I wasn't even really anemic or anything, which surprises me because of how absolutely crappy I felt. I have chronic sinus allergies, but I don't think its related at all.

Elonwy

jerseyangel Proficient
jerseyangel
Posted

If I had been diagnosed at 9, instead of 49, I may not have developed the additional health issues that I now have.

nikki-uk Enthusiast
nikki-uk
Posted

Ummm,fraid not.

Hubbie dx with Psoratic Arthritis 4yrs before celiac disease dx.

As Jersey Angel said,if he'd been dx with celiac disease in childhood instead of at 40yrs maybe it would be different!

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penguin Community Regular
penguin
Posted

I wish, too. The other things are just annoying little things that are wrong with me though...

Like being allergic to air and tree nuts...

and the roadmap of vericose veins on my legs...

I wish the gluten-free diet would fix everything <_<

Lauren M Explorer
Lauren M
Posted

Knock on wood, I think that Celiac is the only thing wrong with me, physically speaking of course :lol:

- Lauren

nettiebeads Apprentice
nettiebeads
Posted
Knock on wood, I think that Celiac is the only thing wrong with me, physically speaking of course :lol:

- Lauren

Same here.

Annette

hez Enthusiast
hez
Posted

At this point I just seem to have celiac. So far no intolerences or allergies. When they checked my blood levels the vitamins looked great and my bone scan looked almost normal. I feel very lucky since my GI thought I had about 15 years worth of damage to my intestine.

Hez

Ursa Major Collaborator
Ursa Major
Posted

As somebody else said, too much damage. If I would have been diagnosed at the age of 2 instead of 52, that would likely have been all. I did have symptoms then already, but unbelievably, it took 52 years of being ill, before I diagnosed MYSELF!

flagbabyds Collaborator
flagbabyds
Posted

That would be so nice to have just celiac, so easy to dealy w/. But no never just one problem w/ me. As my doc said, if it's not one thing it's another. :)

taylor- Rookie
taylor-
Posted

I only have celiacs.

When I was little and I would go to the support group meetings(they always gave out free cookies and stuff i didn't normally get so I went to them even though I was only 6 or 7). All the older women would tell me how lucky I was to have only celiacs and be diagnosed so early. I never believed them, despite the fact that more than half of them had some kind of tube in them or a wheel chair or took pills with everything.

After reading some of the post on here though Im very thankful that I was diagnosed at 18 months and not once I had 10 million other problems that went along with it

~taylor

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

I too, "only" have celiacs. I guess I am amongst the lucky ones for just this one problem so far. Right after my hospital stay and diagnosis, I was a bit intolerant to a lot of different foods. I am pretty sure that was just b/c of the mess in my intestines. I hope to stay this way.

Tinkerbell

skoki-mom Explorer
skoki-mom
Posted

Yeah, as far as I know. I have hayfever and I get hives on my mouth if I eat uncooked cherries/peaches/nectarines etc, but that's it. The allergies probably go along with just have a whacked out immune system.

francelajoie Explorer
francelajoie
Posted

I think I only have Celiac...thats if I even have it. I know I'm gluten intolorent. If it's the same treatment either way, why go through the biopsy?

I don't think I was really sick. I had occasional D and C for about 6 months when I said enough!

Went to the doctors and after a blood test, she said I was gluten intolorent. After 2 days on the diet, I was back to normal...haven't been sick since.

nettiebeads Apprentice
nettiebeads
Posted
Yeah, as far as I know. I have hayfever and I get hives on my mouth if I eat uncooked cherries/peaches/nectarines etc, but that's it. The allergies probably go along with just have a whacked out immune system.

My immune system was funky to begin with. Certain foods and things like pollen and dust . But lately it's gotten worse. I mean more things are being added. Like now I can't have even a little red wine or champagne when before I hardly had any reactions. But so far it's not everyday common type foods; my food allergies are items that are easy to avoid. (so far)

Annette

Guest Viola
Guest Viola
Posted

Multiple problems here from a late diagnosis. It would be nice just to have Celiac, then you would be healthy as long as you stick to the diet.

If only we could get the medical system to recognize this, then future generations would just have Celiac. :)

darlindeb25 Collaborator
darlindeb25
Posted

I was 46 when I figured out I was celiac--been sick for over 20 years by then, that I remember. I have Raynauds Syndrome, intolerances to almost all grains, starches, and tomatoes. The worst is my peripheral neuropathy. Sometimes I think the celiacs is the easy part now. Deb

PBJ Newbie
PBJ
Posted
I feel like the more I read posts and stuff here the more i see people that have multiple diseases or allergies or intolerances.....

So I was wondering if anyone just has Celiac, and nothing else....? :blink:

I have just Celiac. I was diagnosed February last year after I had my son and have been physically better but mentally a little depressed. I've been sick all my life with symptoms but my mom never took me to a GI doctor. I guess it's nice to know what's wrong but I still get kind of jealous when I'm in a social group setting. I can't seem to get over the jealousy part of this even though I bring my own food. Do you have any suggestions? I'm 24 years old and I'm a stay at home mom and so far my son seems to be ok. Oh yeah, why does everyone say it's lucky to have only Celiac? I must have missed something; I feel like just Celiac is extremely difficult I can't imagine having more problems than that.

Guest nini
Guest nini
Posted

I wish I only had Celiac... if I had been correctly dx'ed as a child would I still be in constant pain from fibromyalgia?

mamaw Community Regular
mamaw
Posted

Count me in with the group that has everything plus the celiac's!!!!!!To add to my list I just got dx'd with mitral value prolapse, and spasms of my vessels and maybe my heart is throwing out blood clots.........

Sometimes I feel like a basket case.......

mamaw

lonewolf Collaborator
lonewolf
Posted
Oh yeah, why does everyone say it's lucky to have only Celiac? I must have missed something; I feel like just Celiac is extremely difficult I can't imagine having more problems than that.

A lot of us, as you can tell by the other posts in this thread, have many other problems, including food allergies. You're right, Celiac is difficult. But from my perspective, it would be "easy" if I could eat eggs, soy and dairy, and "all" I had to avoid was gluten. Others have it way worse than I do.

Guest Viola
Guest Viola
Posted

Yes, we do think it's the lucky people who have only Celiac. Please don't think we are saying that Celiac can't be hard sometimes. It is, and frustrating, sometimes even depressing. However, some of us that took 20 to 30 years to be diagnosed paid for it by being damaged through starving our bodies of the nutrients that we needed to grow properly and keep our bones and muscles strong.

I was left with early onset arthritis .. cronic constocontritis .. flangitis .. fibromyalgia ... and some allergies.

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      High DGP-A with normal IGA

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      High DGP-A with normal IGA

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      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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