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AmandaD

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AmandaD Community Regular

Anyone else here know that at one point they have or have had low Vitamin D?

And, what did you do about it?


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Jnkmnky Collaborator

Get out into the sun!

jerseyangel Proficient

Yes--I have low vitamin D--I take cod liver oil to suppliment. I can't stay out in the sun very long at all--the summer, especially. After just a couple of minutes, I feel faint.

AmandaD Community Regular

Is the supplement gross? Any suggestions on a brand...I'm willing to take a chance!

Yes--I have low vitamin D--I take cod liver oil to suppliment. I can't stay out in the sun very long at all--the summer, especially. After just a couple of minutes, I feel faint.
jerseyangel Proficient
Is the supplement gross? Any suggestions on a brand...I'm willing to take a chance!

Amanda--I use Carlson. The lemon flavor. It tastes fine--not fishy or greasy at all, really. It has just a light lemon flavor. It's best to keep it in the fridge--and it tastes better cold. Let me know if you deceide to try it, and how you like it :)

happy4dolphins Enthusiast

I had no idea I was vit. d deficient until I had blood work done at the rheumy's this winter. Though, living in Michigan, it's understandable. I was so low that she perscribed 50,000 ius once a week and I"Ve been taking that for at least three months now.

At first when I took it I hurt more then I did for about 12 hours and this happened for three weeks in a row, but the 4th week, all of a sudden the muslce pains were gone. I no longer felt like I was going to have charlie horses in my legs or arms.

Nicole

mouse Enthusiast

My Rheumy found that my D was very low. He said that I just entered the chart. I take 50,000 iu's twice weekly. When my 6 weeks is done, I then get another blood test. The end of last summer my Fibromyalgia started to bother me again after 1 1/2 years with 80% pain reduction. At the same time I started getting more tired. The tiredness and the pain both just kept advancing. I am hoping that this D will work wonders in both departments.


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AmandaD Community Regular

Ok - so my doc is having me take 400 IU's twice a day. Is that just simply way too low?

Hmmmm....what do you think?

mouse Enthusiast

I think you have to trust your doctor on this one. It would depend on where you were on the chart. I assume he will do another blood test after a certain length of time.

Clark Bent as Stupor-Man Contributor

I don't know how low I am, but I just found out this week from my nutritionist that I tested low for vitamin D. She is having me take 2,000 IU once a day. It's some concentrated liquid dropper formula. I haven't taken it yet but will probably start on Monday.

2tired Apprentice
I don't know how low I am, but I just found out this week from my nutritionist that I tested low for vitamin D. She is having me take 2,000 IU once a day. It's some concentrated liquid dropper formula. I haven't taken it yet but will probably start on Monday.

I was taking 50.000 iu of Vitamin D weekly in the beginning, but I am down to once a month. According to my dr. I may have to take it for the rest of my life.

Carriefaith Enthusiast

Salmon is very high in vitamin D. You can get over 100% of your daily intake of vitamin D in one serving!

Open Original Shared Link

Shrimp is also a good source of vitamin D:

Open Original Shared Link

AmandaD Community Regular

Interesting. I love both salmon and adore shrimp....guess who's going to stock up on those today?

Thank you, thank you, thank you.

mamaw Community Regular

Please make sure you eat wild salmon not the farm raised ...........................

mamaw

there are many places to order from. SEABEAR for one or WHole Foods carries Alaskan salmon

AmandaD Community Regular

I've heard that before - that they add chemicals to the farm raised to keep the coloring...

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      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
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      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
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