Omg...i Might Be On To Something

[dlp252]

Rinne - yes, there will be dancing! I haven't danced in a long time, but I used to LOVE it.

Evie - have prayed for your husband.

Patti - LOVE the picture!!

Celia - Okay, I'll try to take over the rollcall, lol. As soon as I find the page it is on and copy it and then go over the 100 or so pages afterwards to make sure I didn't miss anyone.

Ugh, stool tests, lol. I've had enough of those.

Needles - I think I actually should have been a nurse. I don't mind and I can look at blood and all, but about half of the time when I have blood drawn, I can feel the blood drain from my head down to my toes. I was mentioning that to the nurse on Thursday while she was putting in my IV and my mom was looking away, lol. The nurse said it is a real condition, although I can't remember what she called it. My mom is just afraid of needles...I just pass out from the blood drain, lol.

I think I had my own OMG moment last night...can't wait to hear Rachel's. I think I may have mentioned my severe itching on my legs. The coconut oil seemed to help slightly but only for a few minutes. I read on another board yesterday where someone said sugar may play a part in it (heat also). I have been plagued with this itching for years, but a few years ago it kind of went away....guess what...I was on a low carb diet during the time it went away. I thought about that as I sat at work yesterday and noticed that my legs didn't itch...I hadn't had any sugar yet...didn't have any for lunch or late afternoon snack either. On the way home from work a small spot on my thigh right above my knee started to itch...I'm pretty sure that was from the sun hitting it, but it still wasn't bad. I didn't have any sugar yesterday until dinner time, where I had frozen pineapple and a couple of squares of chocolate. It took maybe an hour, but my legs started to itch more and more as the evening went on. I had more sugar as a snack, and by the time I went to bed I was stratching like crazy. Another grasping at straws thing, but hey it's worth a test I think.

Again this morning I haven't had any sugar and my legs aren't itching!

I also think I figured out why I had glutening symptoms yesterday...I ate a tiny communion wafer at Church on Sunday. DOH!!!!! How idiotic am I anyway?!

[jerseyangel]

Celia--Great news from your appt!!! Yea

[AndreaB]

oh but I did ask her if I could cut back on my Cyanocobalamin injections cuz maybe I can regrow my Intrinstic Factor and not need it... I got this look from her and with that look I knew the answer... NOPE, I will forever and ever have to be on it, every other Friday... uggg... I'll tell you guys it sucks, if you've ever gotten a tetanus shot you'll understand... it hurts and your arm hurts forever... I have to rotate arms because the first one still hurts by the time I need the next shot... but other then that, I felt really good about the visit.

Celia,

I had a b12 injection and brought more home to do but I had my regular doctor do a blood draw and see what my levels were. She said they were normal but I've read other posts that normal differs. I really need to call and see what the number was. My point is, the doctor I saw for my allergy testing and the b12 presription gave me the injection so I could see how it was done (since I was going to do them at home). You need to go real slow with the injection or it does hurt. It barely bothered me at all. Slow is the trick.

Glad the rest of your appointment went so well. Good job and a pat on the back for you....or a hug if you prefer hugs over pats on the back.

Rachel,

Has it be almost a month already for your new med? I hope all goes well with your check back test.

Miamia,

Keep us posted on how the new med does for you as well. That's great that your doctor is letting you go on it.

Susan,

Doesn't sound like you had much fun with c-diff. I never heard of it till I came on this site.

Good Morning/Afternoon all depending on where you live.

Evie,

Hope and pray for good news today for your husband.

Donna,

Sounds reasonable to me. Also if you go off refined sugar and reduce all sugar intake you'll have the added benefit of weight loss. I lost 18 pounds doing that a few years ago.

[Rachel--24]

I hope that nasty bugger's gone from you, if it IS still there, I think it shows that your immune system is strong enough to fight it off. But honestly? I think we need a whole team of us, in R-ville, to just lay hands on your intestines and pray like heck for you! Because somethin' ain't right in there...

You are too funny...

Yeah...can we pleeeze get rid of whatever the heck is plagueing me all this time. Is it the alien baby, the C. Diff....or something else that we have yet to discover??

I know my immune system is really strong at fighting stuff because I NEVER get sick....This whole time I think I might have gotten maybe 2 colds. I seriously am so healthy other than this intestinal problem....which pretty much makes me extremely ill...so for get about what I just said about being so healthy.

Anyways, if the C.Diff's still there it could be keeping my flora all out of wack...no good flora and a bunch of Candida and C.Difficile *cannot* be a good thing.

If it is there I'm not getting the "d" from it so we'll just have to wait and see what the tests say. I totally would rather have a parasite than C.Diff cuz they are much easier to get rid of. C.Diff has like "claws" and it gets ahold of your intestines and just wreaks havoc...not a pretty picture I have in my head. Maybe thats why my intestines werent looking too happy on the ultrasound...maybe they're jumping all over trying to shake off nasty bugs like the C.Diff.

[Camille'sBigSister]

Ok, whose hubby is being left behind in his seventies world? Can my hubby stay with him? They can eat tv dinners and wear goofy clothes all they want.

Celia, migraines are the worst- I hope you feel better. They can be such a nightmare, I know. I hope you can get relief. I used to take cafergot and regularly got the phenergan shots when they were so bad. Also demerol -good stuff

It's my husband, Robbin. He's stuck in the 1940s, but may have one foot in the 70s because he LOVES those horrid, ugly paneled walls! Certainly your hubby can move in with him! Does your's also wear polyester, double-knit pants? I just adore going out all dressed up and looking chic and sophisticated, but guess what he wears! A short-sleeved sport shirt (He's partial to the Hawaiian ones.), double-knit pants, and scruffy brown boots!!! His poor little ol' mama, rest her soul, used to BEG him to wear a suit and tie when we went to a restaurant, to no avail. When he and I are out, I usually pretend we're not married - just friends.

Have your migraines gone away?

Cissie

Oh, by the way, Susan has suggested that we do an intervention on my husband. Don't know if it would help, but it's worth a try!

[Rachel--24]

Celia, glad your appt. went well. Sounds like you're healing girl!

[DingoGirl]

When he and I are out, I usually pretend we're not married - just friends.

OMG that is the funniest thing ever....yes, we definitely must do an aesthetic and style intervention on him, when we all get to R-ville...

Rachel - - pardon my forgetfulness, do you find out TODAY if it's C. Diff? don't have time to search this giant tome....

Celia - glad you're better -

I'll tell you something, I am getting really confused sometimes as to who has what condition, who's taking injections, etc., there's just so much in here so please forgive me if I ever get anyone confused with anyone else!

Donna - is it you that gets itchy from sugar? that's nuts! but glad you figured it out....

[Rachel--24]

Rachel - - pardon my forgetfulness, do you find out TODAY if it's C. Diff? don't have time to search this giant tome....

No....not today. I think its been about 5 months since they told me I had it but I just never retested after the antibiotics....mainly because the stool test is kind of a PIA.

I just started the test this morning but its one of those ones where you have to give about 5 different samples over that many days...so I wont even be done with the tasting until around the weekend. Then I'll have to ship it the lab and I just scheduled my Dr. appt. For Aug. 4th. So...thats when I'll hear the results. They'll be looking for alot of stuff....not just the C.diff.

[AndreaB]

Celia,

I was only supposed to take one cc 2-3 times a week and then move to once a month after that. The bottle I have says 1000 mcg/ml and it is 30 ml...I don't know how much one cc works out to though.

Will you get to eventually move to once a month with this?

[DingoGirl]

OMG, leaving R-ville for a bit....my brother's MIL died this morning.....it was expected, she was down to 75 pounds, throat cancer....v. v. sad.

So, I'm going to go get the girls (my bro has five daughters and the three youngest are home just now) and hang with them...I am working very hard to mend tensions I caused through the years with my two brothes, so I would appreciate any prayers toward this end....I want the closeness back we once shared. A very sad day here, Grandma Rosie was a treasure, a feisty little dear thing, adn my SIL is devastated.....

blessings - - -

[Camille'sBigSister]

CELIA, I'm so glad you're feeling better! What did the doc say about the cafergot?

RACHEL, what is C. Diff? Yucky, hateful old stool tests. Does a local lab do the testing, or do you use EnteroLab?

Has anyone had a problem with pickup by DHL? I'm having the complete workup offered by EnteroLab, IF my specimen ever reaches them!!! After I received the kit, I had to wait three weeks before I could use it, for valid reasons too boring to mention. Finally made my "deposit" last Wednesday; called DHL and was given a pickup time for that same afternoon. No one showed up. Called again - pickup date was set for Monday (yesterday). No one showed up. (Mind you now, the entire, 3-layered-hermetically-sealed package was sitting in my freezer. Shudder, shudder!) Called their customer service office this morning and raised cain. Success at last; package was picked up half an hour ago. HALLELUJAH!!!!!

I've been on completely gluten-free, msg-free diet for a week, and already feeling much better. I didn't need to be hit over the head to figure this thing out, but wanted to wait until after I had my specimen before going on the strict diet.

Needed to vent, so thanks for being there. (My daughter L. says there's a fine line between venting and whining!)

Cissie

[AndreaB]

Oh Susan,

I'm sorry. Our prayers will be with you for strength as well. Will you be gone awhile, will the critters go with you?

[jerseyangel]

Susan, I'm so sorry for your loss. I know that your help with the girls will be so appreciated, and will go a long way to mend whatever bad feelings still exist. Take care--we'll be thinking about you! I'll say a prayer for the family and Grandma Rosie

[AndreaB]

Cissie,

Let us know the results after you get them. I didn't have any problems with DHL. I called in in the morning and they showed up within the hour. I didn't even have the boxes taped up since I didn't figure DHL to be here until the afternoon.

[Camille'sBigSister]

Oh, Susan, I'm so sorry! Grief over the death of someone you love is so painful, whether it's expected or not! My prayers are with you and your family!

I send you love.

Cissie

[dlp252]

Susan - I'm so sorry...will be praying.

Celia - I'm sorry, we were posting at the same time earlier and then work happened. I hate it when they make me work at work, lol. Anyway, I am so happy your doctor thinks you are making progress. Sorry about the lifer shots.

Oh sheesh, I already forgot what I was going to respond to, lol.

Back in a minute after I re-read the pages I just read.

Donna - is it you that gets itchy from sugar? that's nuts! but glad you figured it out....

Yep, me. It is nuts, but in some ways it makes sense....I thought for a long time that I had a problem with candida, one of the reasons why I went to low carb in the first place, but after 3 years or so figured it might be taken care of--it never shows on any tests. It did show on my allergy tests 5 years ago though.

Has anyone had a problem with pickup by DHL? I'm having the complete workup offered by EnteroLab, IF my specimen ever reaches them!!! After I received the kit, I had to wait three weeks before I could use it, for valid reasons too boring to mention. Finally made my "deposit" last Wednesday; called DHL and was given a pickup time for that same afternoon. No one showed up. Called again - pickup date was set for Monday (yesterday). No one showed up. (Mind you now, the entire, 3-layered-hermetically-sealed package was sitting in my freezer. Shudder, shudder!) Called their customer service office this morning and raised cain. Success at last; package was picked up half an hour ago. HALLELUJAH!!!!!

I've been on completely gluten-free, msg-free diet for a week, and already feeling much better. I didn't need to be hit over the head to figure this thing out, but wanted to wait until after I had my specimen before going on the strict diet.

Needed to vent, so thanks for being there. (My daughter L. says there's a fine line between venting and whining!)

It's never whining here, lol! I didn't have any problems with them picking up my deposits, lol. They came as they were scheduled, but because of circumstances and my work schedule the deposits did have to sit in my freezer for a while...so I understand the shuddering.

My GI and my ENT both said that diet is a valid test, and while my GI won't go so far as to diagnose with Celiac, he does recognize I can't eat gluten, lol.

[Camille'sBigSister]

No....not today. I think its been about 5 months since they told me I had it but I just never retested after the antibiotics....mainly because the stool test is kind of a PIA.

I just started the test this morning but its one of those ones where you have to give about 5 different samples over that many days...so I wont even be done with the tasting until around the weekend. Then I'll have to ship it the lab and I just scheduled my Dr. appt. For Aug. 4th. So...thats when I'll hear the results. They'll be looking for alot of stuff....not just the C.diff.

Good Lord, girl! They make you taste it? What the h*** kind of doctor do you have?

Cissie

[dlp252]

Good Lord, girl! They make you taste it? What the h*** kind of doctor do you have?

Cissie

[Rachel--24]

Good Lord, girl! They make you taste it? What the h*** kind of doctor do you have?

Cissie

LMAO...Oooops that was a typo.

I meant to say "testing".

That would be pretty damn gross if I had to taste my samples!

[dlp252]

Rachel - are you still at work??? Did I miss your post on your OMG moment?

[Daxin]

I was wondering why in the world you would want to taste it anyway.

LOL

[Green12]

I hardly recognized the place today, doctor appts., GI advice, stool samples, itchy skin reactions. Back to reality I guess.

I'm sure glad you aren't tasting your samples Rachel

Susan, I'm sorry about the loss in your family.

[Rachel--24]

I hardly recognized the place today, doctor appts., GI advice, stool samples, itchy skin reactions. Back to reality I guess.

Yeah....see, I knew there was a reason I put this in the Post Diagonsis/Recovery forum!!

It was just kind of lost on me for awhile while I was having fun playing in Rachelville!

[Green12]

It was just kind of lost on me for awhile while I was having fun playing in Rachelville!

I know! Today I had flash through my mind about the protective auxigro detecting geese.

Protective auxigro detecting geese!!!!!!!!!

[dlp252]

Protective auxigro detecting geese!!!!!!!!!

I was wondering why in the world you would want to taste it anyway.

LOL

Nothing would surprise me after reading all 165 pages of THIS thread!!