Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

AndreaB Contributor

Oh Kassandra! :( I don't know what to say.....

Hopefully everything will be fine and go smoothly.

Your old doctor..... :angry:

Hugs. :wub:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
CarlaB Enthusiast

I'm sorry Kassandra. :( :( :(

You know where to find me if you want to talk. :)

jerseyangel Proficient

Kassandra,

When there is abnormal bleeding and the uterine lining is thickened, they will always rule out uterine cancer. I went through a uterine biopsy since I had this issue also. Chances are everything will be ok in that respect. Try not to worry yourself sick over that at this point.

The D&C is really not that bad at all--seriously. You are out of it, and won't remember the procedure itself. Afterwards, you will have some cramping, but I was able to handle it with Tylenol.

As always, if you have any questions that I may be able to help with, don't hesitate :)

miamia Rookie

Kassandra-

I just wanted to say I am so sorry you are going through all of this. My thoughts are with you. Hopefully things will start to sort themselves out- stay strong.

Miamia

aprilh Apprentice
:(

Ugh. Really rough appointment. She started out by saying that she wanted to put me on some hormones to induce my period, so we could get the really thick lining of my uterus out.

Sorry about that Kassandra. :(:(:(

Rachel--24 Collaborator

Kassandra,

I cant blame you for being scared....you're going through so much right now. :(

I actually felt better for you after reading Patti's post...so hopefully its somewhat reassuring. :)

The good thing is that you now have an obgyn who is not ignoring these things and that everything is getting addressed as far as the bleeding/thickened lining goes. I hope everything goes well....try not to get too stressed and once you get through this process you'll know more about whats going on. Chances are its not cancer....like Patti said. You'll be in my thoughts though....good luck with everything. :wub:

mftnchn Explorer

A quick run by, I made it to this side of the Pacific okay today--headed to bed with some Ambien as I really need to sleep.

Kassandra, I am sorry about all this happening at once but am glad the doctor is dealing with it, and hope it all goes smoothly as possible. Do you have the time yet?

Sherry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest tamedandfoxed

Kassandra,

that is a lot to handle.. i hope at least now you have found an obgyn who you can trust to help "fix" things..

good luck!

dlp252 Apprentice

Gosh Kassandra...seems like one thing after another! I'm so sorry!

Everyone,

I saw my GI yesterday. I thought I was going to have to talk him into doing an endoscopy, but he actually brought it up and suggested we should go ahead and get it checked out. For those that don't know (it was slightly before this thread), two years ago my PCP found blood in my stool. She suggested a colonoscopy and referred me to a GI. The GI decided to do an endoscopy at the same time to check out my villi (although I'd already been gluten free for several months).

During the endoscopy he found some things...minor damage to my esophagus, polyup in my stomach, but the biggest thing was a growth on my ampulla of vater (the opening where the bile and pancreatic duct meet and empty bile into the intestines. It's supposed to be the size of a pen tip, but mine was quite large. The equipment he used didn't allow him to reach it for a biopsy, so a week later I had another endoscopy so he could biopsy. Three labs (including Stanford) couldn't decide if it was precancerous or not. The GI put me on prilosec for a couple of months to see if reducing inflamation would help. So in a couple of months we did another endoscopy...he never really said what the labs said, he basically just said it was fine and that we didn't need to check unless I was feeling bad.

Meanwhile my PCP asks me everytime I go in for my annual exam about this. This year I asked her if it had turned to cancer would it appear on my bloodwork and her answer was that we didn't want to wait until it shows up in a blood test. She put in a referral for me (even though I don't need one, lol) for the GI.

He asked how I was feeling and I told him basically pretty good but am having ramdom pain from my ribcage down to my pelvic area...different places, different intensities, etc., and that I am also having the feeling like things are getting stuck in my esophagus--not food so much, but like pills and things. I didn't even mention doing another endoscopy but he suggested it was time to go in and check the ampulla! Phew, what a relief. It's been two years and by now we should have a clearer picture. He said while he's in there he'll check the esophagus too.

So I'm relieved...I feel like we'll finally know for sure what's going on.

On an even happier note...did I mention I'm going to Las Vegas?! :lol:

CarlaB Enthusiast

Have fun in Vegas!

We're going to Miami Sunday .... neither of us is bringing a computer ... and Adam is forbidden to bring his cell phone as well. :D So, I'll be out of touch till July 3rd. Kassandra knows how to get a hold of me. :)

confused Community Regular

Donna,

When is vegas, ill drive up lol.

Kassandra,

They always want to rule out uterine cancer. They had me scared when i was in my 20's. We have an high incidence of it in my family. But luckily i never had it. But i do have an severly tilted uterus and they said having kids would be hard. So dont worry, im sure everything is going to be just fine.

Everyone,

Im on a mission to find an shower filter today lol

paula

kalen317 Newbie

I hear ya about sticking to gluten-free diet and not really feeling better. I, too, have been gluten-free for a couple of years and yet still seem to react to food that is considered gluten-free. I was taking thyroid meds recently and felt bad, just as I did with other medications. The pharmacist looked up the common ingredients in all the meds I've had reactions too and found 1 common link = microcrystalline cellulose. Not only is this a filler in meds, but it's found in most foods including those which we consider GL. Here's the link I found which is very helpful... Open Original Shared Link

Good luck!

Kerry

srakal905 at yahoo . com

AndreaB Contributor

Donna,

when do you have the endo?

Have fun in Vegas!

Carla,

Have fun in Miamia. No computer......I wonder if I could survive that. :lol:

CarlaB Enthusiast
Carla,

Have fun in Miamia. No computer......I wonder if I could survive that. :lol:

Well, I'll have my iPhone so I can still check my mail, LOL. It's just too hard to post because every time I lose the connection I have to re-sign in and I lose the post.

You said, "Have fun in Miamia"!!!! :lol: :lol: :lol:

AndreaB Contributor
You said, "Have fun in Miamia"!!!! :lol: :lol: :lol:

Oops! :lol::lol::lol:

Green12 Enthusiast

Kassandra, just wanted to let you know you are in my thoughts and I send my love :wub:

I was also encouraged after reading Patti and Paula's posts, sounds like they want to cover all bases and rule everything out.

Keep us posted as you can.

Donna, that's good news you are going to have the endoscopy to have the ampulla and your esophogus issues checked out :) Have you scheduled it yet?

Vegas??? When are you going?

Carla, have fun in Miami! You are always going somewhere :lol:

jerseyangel Proficient

Donna--I'll be thinking about you :) Glad they're keeping good tabs on you ;)

Have fun, Carla! B)

confusedks Enthusiast
We're going to Miami Sunday .... neither of us is bringing a computer ... and Adam is forbidden to bring his cell phone as well. :D So, I'll be out of touch till July 3rd. Kassandra knows how to get a hold of me. :)

:) Yes I do.

mftnchn Explorer

Donna, that's great that this is getting checked. Hopefully all will be well.

Have fun in Vegas, and Carla, have fun in Florida!

I'm having fun today playing with grandbabies! ;)

dlp252 Apprentice
We're going to Miami Sunday .... neither of us is bringing a computer ... and Adam is forbidden to bring his cell phone as well. :D So, I'll be out of touch till July 3rd. Kassandra knows how to get a hold of me. :)

No computers!!! Take a break, lol!

When is vegas, ill drive up lol.

Vegas??? When are you going?

July 6-9. :) Staying in a SUITE!!!! My friend found a really good deal! :P

when do you have the endo?

Donna, that's good news you are going to have the endoscopy to have the ampulla and your esophogus issues checked out :) Have you scheduled it yet?

July 2 (nex Wednesday). I'd be lieing if I said I hadn't thought about the possibility of it already turning to cancer...especially with the cancer miasm that Anna found and the fact that some of my bloodwork is a little tiny bit off...none of which probably has anything to do with anything, but I'd still like to know why it was enlarged. :P

Have fun in Miamia.

:lol: :lol:

Donna--I'll be thinking about you :) Glad they're keeping good tabs on you ;)

Thank you! Me too, lol.

Donna, that's great that this is getting checked. Hopefully all will be well.

Have fun in Vegas, and Carla, have fun in Florida!

Thanks!

AndreaB Contributor
July 2 (nex Wednesday). I'd be lieing if I said I hadn't thought about the possibility of it already turning to cancer...especially with the cancer miasm that Anna found and the fact that some of my bloodwork is a little tiny bit off...none of which probably has anything to do with anything, but I'd still like to know why it was enlarged. :P

I don't blame you for being concerned.....I would be too. It will be nice to put this to rest, although it doesn't sound like a fun proceedure......course, are any of them fun? :huh:

aprilh Apprentice

Hi everyone,

I went to the ND today because my sinuses just don't seem to be gettting better AND I started having a bad earache last night. She used this special machine called a Frequency S...... Machine. Darn, I can't remember the name!!! But it transmits energy that tells your cells to kick it up a notch to do what they are supposed to do.

They used to use it in the early 1900's for Tuberculosis before ABX were used. It was very interesting! I wanted to research it some more, - but now I forgot the name!

So, any that along with Vit A drops (supposed to dry up the mucous membranes), an immune enhancer supplement, b12 shot, and steam inhalations using tea tree and eucolyptus.

I will let you know how it goes. She says this protocol has really been helping her sinus sufferers - like me - to kick the sinus infections without resorting to antibiotics.

I REALLY HOPE THIS WORKS!!! :D:D

dlp252 Apprentice
I will let you know how it goes. She says this protocol has really been helping her sinus sufferers - like me - to kick the sinus infections without resorting to antibiotics.

I REALLY HOPE THIS WORKS!!! :D:D

Me too! I really hopes this works for you. As someone who had nearly constant sinus infections for 3 whole years, I know just how miserable it is!

confused Community Regular
Hi everyone,

I went to the ND today because my sinuses just don't seem to be gettting better AND I started having a bad earache last night. She used this special machine called a Frequency S...... Machine. Darn, I can't remember the name!!! But it transmits energy that tells your cells to kick it up a notch to do what they are supposed to do.

They used to use it in the early 1900's for Tuberculosis before ABX were used. It was very interesting! I wanted to research it some more, - but now I forgot the name!

So, any that along with Vit A drops (supposed to dry up the mucous membranes), an immune enhancer supplement, b12 shot, and steam inhalations using tea tree and eucolyptus.

I will let you know how it goes. She says this protocol has really been helping her sinus sufferers - like me - to kick the sinus infections without resorting to antibiotics.

I REALLY HOPE THIS WORKS!!! :D:D

Does it matter what kind of vit a drops. Also what it the immune enhancer supplement. I would love to try this to help mine. They have been really bad lately. Also how much tea tree and eucolyptus. you can pm the info if want to.

paula

AndreaB Contributor

Sounds promising April.

I used to get sinus infections pretty regularly, but thankfully haven't had one for at least a few years now.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,118
    • Most Online (within 30 mins)
      7,748

    Cwbtex
    Newest Member
    Cwbtex
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.