Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

dlp252 Apprentice
I had my appt. with Dr. P....I totally like him so far!! :D

Wow, sounds like a GREAT appointment. That's it...after I find out about the ampulla thing, I'll start thinking about seeing Dr. P! :lol: Also VERY interested in the voodoo lady! :lol:

On a side note, I'm really excited about these NAET treatments I'm having done. I am feeling better...having about a decent day at least once a week. She told me to slow down and NOT go overboard on the decent days because I have no "reserve" and it will be self defeating.

Yay!!!! Yes, and listen to her!!! This is what we were talking about a couple of days ago...it's easy to overdo when we feel good.

Speaking of pins (and needles) LOL, I have been sewing like crazy...made a dress for one of my daughter's bridesmaids...to see if my daughter likes it for the wedding. She hasn't seen it yet, but I think it looks great.

Wow, you are very talented!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
dlp252 Apprentice
What's a voodoo lady? Is she a healer or something?

Nah, someone who is more alternative. It's our little nickname for someone who does testing/treatment outside of the mainstream. BioSET or ART is considered voodoo by most people, lol.

aprilh Apprentice
I can't wait to be telling you all about the fun stuff I will be doing...SOON! :):D

Kassandra,

I am so glad that the NAET treatments are working for you! Hope you can get that bleeding under control.

April-

I wondered about that...but i don't know. I get thyroid hormone toxicity...it's not an allergic reaction, it's like an overdose and only when I take T3.

I know of a place that does NAET. I will call and ask them.

Thanks for the idea-

Nancy (nanjkay)

Does it have to be filtered through the liver? I know the liver has to filter a lot of hormones and if its blocked then the hormones build up in the body causing toxicity.

I wonder if Naet or acupuncture would help with this. Sounds like you and Rachel are similar.

aprilh Apprentice

I started Enula last night. 1 drop 2 times a day, then I move up from there.

Green12 Enthusiast
I loved Music and Lyrics also, mainly because Hugh Grant can do NO wrong in my book.

I totally agree with you about Hugh Grant Nancy!

That is so cool you are a movie critic for your newspaper. I LOVE watching movies too, having every movie channel on cable helps the cause :lol:

But I am a real Star Wars freak. I'll watch anything Star Wars. I don't care if it's good or not. And I will go see Attack of the Clones. :D

I know I'm a nerd.

:lol: Lisa, you're not a nerd!

I loved the older Star Wars movies. I haven't watched the new generation stuff though, can you believe that? Is it as good as the older ones?

I went to the gyno today and of course my pain was gone! LOL! :lol: She said if I had gone in yesterday she would have given me a shot of a narcotic to help...since nothing was helping.

On a side note, I'm really excited about these NAET treatments I'm having done. I am feeling better...having about a decent day at least once a week. She told me to slow down and NOT go overboard on the decent days because I have no "reserve" and it will be self defeating.

But it's amazing to have days where I don't feel like I'm dying. :) I don't feel great, but definitely some improvement. :D

Just wanted to report some happy stuff along with all the other crazy stuff that's going on for me.

Kassandra, good to hear from you!! I have been thinking about you, hoping you have been ok :wub:

I'm so happy the NAET treatments are making a difference for you, and I'm glad the cramping pain is gone.

Ditto on how amazing you are!!!!! Keep hanging in there :)

Everyone, I am starting to feel like a pincushion I am taking so many shots. Lets see, its up to 13 a week I think.

Sherry, you are so brave! Just the thought of needles and being stuck makes my veins hide :lol:

That's so neat you are making the bridesmaid dresses for your daughter's wedding :)

Hubby starts an 11 day vacation. Im hoping to keep feeling good so we can do soemthing on this vacation, unlike last vacation lol

I hope you have some good days so you can do something fun while your hubby is on vacation Paula :)

I forgot to mention that he wanted to do an iodine test. Anyone familiar with that??

I did an iodine test years ago Rachel, I painted iodine on a body part (like the top of my foot or abdomen in a 4 inch by 4 inch square I think) and if it absorbed quickly it meant you were deficient in iodine...something like that.

But I don't think that is the type of iodine test you are talking about.

I started Enula last night. 1 drop 2 times a day, then I move up from there.

Yay April. How do you feel so far?? Probably too early to tell :lol:

CarlaB Enthusiast
And Carla- did you ever ask Dr. H if it was OK to take ALA with Mepron?

Carla- do you think removing the bartonella from the GI has rid you of your food intolerances?

I did not ask because the PA specifically told me to keep taking the ALA at the same appt. she prescribed the Mepron.

I think the bart treatment was one piece of the puzzle, but I think that the parasites were an even bigger piece.

I did see the new Batman and I thought it was too long and I didn't care about the characters or what happened to them. The action was good, but it was too depressing. I liked Iron Man much better. I can't wait to see Tropic Thunder with Ben Stiller and Robert Downey Jr.

Nancy

I was beginning to think I was the only one out there who didn't like Batman. I loved the last one. This one considered the Joker to be the comedic relief, which though the performance was excellent, it was too intense to be the comedic relief for the movie. It was too dark.

I loved Iron Man .... and Hancock.

She told me to slow down and NOT go overboard on the decent days because I have no "reserve" and it will be self defeating.

But it's amazing to have days where I don't feel like I'm dying. :) I don't feel great, but definitely some improvement. :D

I'm glad you're making progress. I know what you mean about these days .... It was hard to lay down and rest when I was feeling good, but I forced myself so that I could use some of that energy for healing.

Oh...about the one-fingered typing. I think I type just as fast as you guys...AND I still have a free hand! :P

No way. I type very fast, without looking. You can't move your one finger around the keyboard as fast as I can type. We will have to have a typing contest sometime. :lol:

I hope the Lyme isn't binding the metals for you. Sounds like a great doc.

dlp252 Apprentice

Completely off topic....

I'm just sitting here watching a VERY greedy squirrel hanging off my neighbors hanging bird feeder eating all the bird seed. Two birds just tried to land and the darned squirrel just ran them off. He's discovered that the top comes off and almost fell inside. :lol:

Birds are lining up on the roof waiting for the thing to get off, but nope, dang squirrell is going to clean that feeder out of every single seed. :lol::P

Did you know squirrels can eat upside down! :lol:

Oooopps he just jumped off....small bird jumped on. :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Green12 Enthusiast
Completely off topic....

I'm just sitting here watching a VERY greedy squirrel hanging off my neighbors hanging bird feeder eating all the bird seed. Two birds just tried to land and the darned squirrel just ran them off. He's discovered that the top comes off and almost fell inside. :lol:

Birds are lining up on the roof waiting for the thing to get off, but nope, dang squirrell is going to clean that feeder out of every single seed. :lol::P

Did you know squirrels can eat upside down! :lol:

Oooopps he just jumped off....small bird jumped on. :P

:lol: Donna, this is what happens when you are all copped up like that for so long!

Does anybody know what causes those little tiny blood blister looking things all over the body? They are just little tiny raised bumps that are bright red like blood......

Have we talked about these before? I don't even know what I would look for in a search.

AndreaB Contributor
Does anybody know what causes those little tiny blood blister looking things all over the body? They are just little tiny raised bumps that are bright red like blood......

Have we talked about these before? I don't even know what I would look for in a search.

Mercury.

According to my dentist, it's where mercury blocked a vessel and a way around was made.....something like that anyway.

I can follow trails of them on me and hubby has them too.

Donna,

Squirrels are definately pigs and love bird seed! We had an open feeder that one would climb in and gorge on......that was many years ago......like 10-12 years ago.

CarlaB Enthusiast
Does anybody know what causes those little tiny blood blister looking things all over the body? They are just little tiny raised bumps that are bright red like blood......

Have we talked about these before? I don't even know what I would look for in a search.

Mine were caused by bartonella. They're called petechiae.

dlp252 Apprentice
Does anybody know what causes those little tiny blood blister looking things all over the body? They are just little tiny raised bumps that are bright red like blood......

Have we talked about these before? I don't even know what I would look for in a search.

I don't think the raised ones are petachae...I've got both. One doctor said the raised ones where cherry angiosomething....nothing serious. Now, she was a regular duck and I fired her eventually, so while I believe they are nothing serious, I do think they have a cause...just don't know what they are. I also have petachae (sp??)...those are not raised but look just like a spot of blood...sort of like you were pricked by a tiny pin.

I have some bookmarks at work...I'll see if I can remember some and post in a minute.

Rachel--24 Collaborator
Does anybody know what causes those little tiny blood blister looking things all over the body? They are just little tiny raised bumps that are bright red like blood......

Have we talked about these before? I don't even know what I would look for in a search.

I think Bartonella causes tiny red blisters.

EDIT: I see Carla already mentioned this. :)

I have two of them. One on my breast and one on my leg...only slightly raised. I dont get additional ones....just the same two I've had for most of the time I've been sick.

For some reason at times they will appear to be a brighter red.

I have no idea what caused them....but I'm fairly certain its not Bart.

dlp252 Apprentice

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

dlp252 Apprentice

Yeah, I've got lots and lots of both kinds...raised and not raised. Fortunately for me the unraised ones are really really small so barely show up. The raised ones are mostly on my chest/abdomen and a couple on my legs.

Rachel--24 Collaborator

Mine doesnt sound like either of those.

Its never gotten larger like the cherry angioma...and it doesnt look like the pic.

It also doesnt disappear....its always there...the only thing that changes is that sometimes its brighter.

dlp252 Apprentice

I found my favorite picture (the one that doesn't gross me out, lol) of petechaie:

Open Original Shared Link

dlp252 Apprentice
Mine doesnt sound like either of those.

Its never gotten larger like the cherry angioma...and it doesnt look like the pic.

It also doesnt disappear....its always there...the only thing that changes is that sometimes its brighter.

My cherry angiomas get kind of big...the other ones stay the same.

Rachel--24 Collaborator
I found my favorite picture (the one that doesn't gross me out, lol) of petechaie:

Open Original Shared Link

Thats actually what mine look like. There's only two though....they're both real small like in the pic.

I've had these same two for years now. What could it be? :unsure:

AndreaB Contributor
Mine doesnt sound like either of those.

Its never gotten larger like the cherry angioma...and it doesnt look like the pic.

It also doesnt disappear....its always there...the only thing that changes is that sometimes its brighter.

Thats actually what mine look like. There's only two though....they're both real small like in the pic.

I've had these same two for years now. What could it be? :unsure:

Yep, the picture is what mine look like to, with the exception of one which is raised. My dentist says they are caused by mercury. He has a lot of them.

aprilh Apprentice
I loved the older Star Wars movies. I haven't watched the new generation stuff though, can you believe that? Is it as good as the older ones?

Yay April. How do you feel so far?? Probably too early to tell :lol:

I don't think the new ones are as good. But it could be nastalgia. I went to all the star wars movies with my dad. I was a kid and it seemed like such a "big" kid movie for some reason.

I feel fine - nothing wierd yet!

Does anybody know what causes those little tiny blood blister looking things all over the body? They are just little tiny raised bumps that are bright red like blood......

Have we talked about these before? I don't even know what I would look for in a search.

I was told those are cherry angioma's. Sort of like a capillary that bursts at the skin.

I have some on my chest area.

Mercury.

According to my dentist, it's where mercury blocked a vessel and a way around was made.....something like that anyway.

I can follow trails of them on me and hubby has them too.

Could be that too. I never had any until I became overloaded with toxins.

aprilh Apprentice

Mine look more like the Petechie. I got mine when I was most toxic and my lymph system was really blocked.

Rachel--24 Collaborator

April, I got mine when I was most toxic too. All of a sudden I got two red dots...out of nowhere...and it loooks like I'm stuck with them now. :rolleyes:

This reminds me...and I dont know if I mentioned it yet??

Remember the vein that got damaged during one of my mineral IV's. It was really swollen, hard and discolored...and the nurses said it would probably stay that way.

Well guess what...its totally healed. :D

Its been healed for awhile now and there is no sign of it at all...I cant even feel it anymore....its totally disappeared. :)

mftnchn Explorer
Does anybody know what causes those little tiny blood blister looking things all over the body? They are just little tiny raised bumps that are bright red like blood......

Have we talked about these before? I don't even know what I would look for in a search.

Try petechia, plural petechiae.... I see you got a lot of answers already.

I have some of these too.

Sherry

Green12 Enthusiast

Is there anything that can be done to remove them?? Anybody know?

AndreaB Contributor
Is there anything that can be done to remove them?? Anybody know?

I don't know for certain, but I assume not.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,919
    • Most Online (within 30 mins)
      7,748

    globello
    Newest Member
    globello
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.