Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Rinne...good to see you!! :D

Its so nice to see that many of us are feeling much much better this year! I'm glad you're doing well! :)

I sense an excitement for the holiday season that was not here last year...it makes me really happy! :)

By next year we'll all be ready for a Rachelville gathering!! With plenty of Rinne Bars of course. ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
AndreaB Contributor
AndreaB
Posted
Right now, I'm going through the whole chicken/egg thing. Did the low iron cause the thyroid problems? Did the various food intolerances cause the low iron? Was it the food intolerances or the thyroid problems that caused the heavy menses that led to the low iron? Did the mercury cause the food intolerances? Was it my diet or the thyroid that's causing the cysts? Round and round it goes....

I would guess the mercury was behind the food intolerances. Everything seems to be connected somehow but I'd have no idea how to put the pieces together.

I got a blaylock article recently that talks about the cancer cells and something that helps them from spreading so much......I'll see if I can find the info today.

Hi everyone, I am so behind I am not even going to try to catch up. :ph34r::)

All's well with me, I am doing so much better and I am amazed by that, a year ago I was in so much pain all the time that I had forgotten what "better" felt like and I had nearly given up on ever feeling better.

It's good to see you Rinne! You need to pop in once in awhile (like you do) so we know you are ok. :D

Unless I'm confused and you never had those positive tests??

I thought her tests were positive. Maybe she wants to see if any of the bands have changed. She also had a low cd57.

Is that suppossed to happen?? :huh: I'm still a toothpick. :(

Some people obviously remain sticks......not me. I take after my grandmother more as far as body build.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I thought her tests were positive. Maybe she wants to see if any of the bands have changed. She also had a low cd57.

Oh yeah....I had forgotten about the CD57 results.

I'm not sure if chelation would cause IND's or previously negative bands to become positive but I think its possible. I would imagine that chelation is stirring up the infections and the immune system might be more *aware*....and also more capable of fighting as the heavy metal load is reduced.

I think its likely to change the Western Blots....there was already alot of positive bands...but there might be more now.

AndreaB Contributor
AndreaB
Posted

Here's some things from one newsletter of Blaylocks.

What Your Doctor

Doesn

confusedks Enthusiast
confusedks
Posted

Ugh, the results won't be in until tomorrow! GRR. The PICC line is a little more involved than we thought. We have to have it put in at a place that's right next door to a hospital so in case anything goes wrong, we'd be right next door. They also have to draw more blood to see my blood's clotting ability, so I don't bleed out...lol! :rolleyes: Once the Dr. who is going to put it in gets the bloodwork back, we will make an appt. to get it in, THEN we will start the IV's. OMG, this is taking forever!!!

I knew this would happen, here it is Thursday and I don't know when we are going to start the IV's. I got into a fight with my mom about all of this last week because she "didn't feel like calling" and now we an entire month after the first time I had blood drawn! :angry:

I will know more in a couple hours, but then my mom has to go to work, so it's really hard to coordinate all of this. I wish she would let me do it, it would have been done weeks ago. LOL!

Kassandra

AndreaB Contributor
AndreaB
Posted

Kassandra,

I'm so sorry this is going to be delayed even more. :(

I've got to get lunch for the starving pack......I'll be back in a bit.

rinne Apprentice
rinne
Posted
.....

Yeah...I had this type of ultrasound done last year. You guys recall the alien baby?? :lol:

NOT FUN!!!! I did not like this procedure one bit!

Is that suppossed to happen?? :huh: I'm still a toothpick. :(

Nice to see you too Rachel. :)

I am thinking the toothpick look is quite likely connected to a deficiency of pink, I am quite confident that if you add enough pink that will change. :lol::P

EEK! The specifics of this ultrasound are what? I am telling you I think there is something seriously twisted going on, like whose idea was this? I feel the same way about mammograms and had avoided one until I found the lump in my breast. Silly me, I thought that if you could feel the lump you wouldn't need to take a picture of it. :angry: So, that was and will be my only mammogram.

I have to laugh when I think of it though, I don't know if you remember but at the time I was seeing the acupuncterist and he was saying, "no cancer" and all the conventional medical folks were like, "cancer, cancer, cancer....." I remember feeling like I had one foot on the road to healing and that the other foot was still in the world of conventional medicine which offered nothing but misery. Hah, I got away. :lol:

Yes, it is wonderful that so many of us are now feeling better. I think this place, in so many ways, is one big reason for that. :wub:

...

By next year we'll all be ready for a Rachelville gathering!! With plenty of Rinne Bars of course. ;)

I am seriously optimistic about this. :)

...

Some people obviously remain sticks......not me. I take after my grandmother more as far as body build.

Me either, I am a round person and have put on a few more pounds recently that I would be happier without, funny though I am grateful now to have the pounds after being as thin as I was. A friend told me the other day that at my sickest I had looked like a zipper!!! :lol:

Nice to see you Andrea. :) I am always so glad to find you here and appreciate how much you do to mother us along. :wub:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Green12 Enthusiast
Green12
Posted

melmak, my gyno has always said probiotics can also be applied vaginally, or yogurt packs.

nyxie, sorry about your dr. issues.

April, the early puberty is alarming. I have to agree with what everyone else said about the hormones in the milk and meat, estrogens in plastic, but also it's just estrogens in general EVERYWHERE. One of my practitioners was on the environmental board here for the northern region of the state and the results of water testing is quite shocking, high estrogen levels are present, they even found high levels of prozac :o These are things that aren't efficiently filtered out.

Carla, that's awesome about your son! Is this the son you've had so much difficulty with? I hope this mission will give him a different outlook on life and fill him with purpose.

My boyfriend is fluent in Spanish. I can understand it pretty well, I just am not good with using it in conversation, my brain/tongue connection is just faulty, disconnected wire or something.

Gosh Kass, these iron IVs have been a royal pain in the behind...and you haven't even started them yet! I hope you get it all worked out and coordinated.

Andrea, great info, thanks for posting.

Donna, that is cruel of your friend :lol: Maybe she is trying to break you so you will go to :lol:

Rachel, if you are detoxing out smoke and junk from the cigarrettes I would think that is a super good sign, you're excreting and detoxing and getting healthy :D

I'm glad you are feeling good and cheerful. I also have bitten by the holiday spirit bug, even thought I feel like poop, not even pink sparkly poop.

Rinne, so good to hear you are feeling so wonderful too :D

Patti, I do not know the source of Vitamin E, sorry I can't be of more help.

Ridgewalker Contributor
Ridgewalker
Posted

Rachel,

Thanks for sharing your quit-smoking story! :D My mom quit shortly before she was diagnosed with Celiac-- like you, she had gotten to the point where they just made her really sick. Once she was diagnosed and started getting better, she refused to pick the habit back up.

On the young puberty age thing...... I started developing when I was 8. Hips, breasts, hair, etc. But my period didn't start until I was 13. I was actually the last of my friends to get it. Odd.

Ironically, I am a little concerned about Lucas for the opposite problem. I didn't used to worry about it, until I read all the bad things about feeding baby boys soy formula. Lucas was on soy formula until shortly after his 1st b-day-- he couldn't tolerate cow's milk or milk based formulas when he was a baby, although he is fine with dairy now.

Now I've read that baby boys who are fed soy formula are more likely to have problems developing LATE because of high estrogen levels in the formula! :( If I had known then what I know now, I would've tried a lot harder to get him to nurse.

The hospital pretty much ordered me to give him formula, because he was jaundiced and my milk came in late. I had NOTHING for nearly a week. He was starving and getting sick! I could've tried to switch him to the breast once it came in, but by that time I was like, "Eh... just let it be." I didn't know any better.

Then he got sick on the formula, and we switched him to soy... Gawd, for the first 2 months of his life he could only sleep if I held him tummy to tummy for the heat... and lots of Mylicon.

Ok, enough rambling, I got off on a tangent! :P

AndreaB Contributor
AndreaB
Posted
April, the early puberty is alarming. I have to agree with what everyone else said about the hormones in the milk and meat, estrogens in plastic, but also it's just estrogens in general EVERYWHERE. One of my practitioners was on the environmental board here for the northern region of the state and the results of water testing is quite shocking, high estrogen levels are present, they even found high levels of prozac :o These are things that aren't efficiently filtered out.

Now that is scary! :ph34r: We have city water which we do filter but this is a farming/industrial area so who knows what's in our water.

AndreaB Contributor
AndreaB
Posted
Ironically, I am a little concerned about Lucas for the opposite problem. I didn't used to worry about it, until I read all the bad things about feeding baby boys soy formula. Lucas was on soy formula until shortly after his 1st b-day-- he couldn't tolerate cow's milk or milk based formulas when he was a baby, although he is fine with dairy now.

You can only do what you know, and you were in a bind.

We went on the vegan diet for one because we thought one of the benefits would be later puberty. We ate tons of soy......soy milk, soy sauce (braggs), chik seasonings (which are soy flour), lecithin, tofu.....I even made my own. Plus gluten everything. And we wonder why we have so many problems. I had no idea that metals would be a problem and best to stay on some animal products for those.

dlp252 Apprentice
dlp252
Posted

Speaking of feeling better...I knew I was feeling better this year, but heck, I think I've had a little bit of a sinus infection and didn't even know it. :P:lol: THAT's improvement. Last year this would have knocked me on my butt!

I am so NOT in the holiday spirit! I can't even think of going and getting gifts, especially considering Hannukah is in almost a week!! :o

Well, my situation is probably helped by the fact that I don't actually have to buy any presents. :P

Hi everyone, I am so behind I am not even going to try to catch up. :ph34r::)

Sometimes you just can't... :P

More food is staying down

Yay for this at least! No real advice on the other. I haven't had one of those kinds of yeast infections since I was in my teens. The only other thing I can think of is cutting out any sugar...but you probably know THAT already. :P

Yeah...I had this type of ultrasound done last year. You guys recall the alien baby?? :lol:

NOT FUN!!!! I did not like this procedure one bit!

Ah yes, the alien baby, lol.

I sense an excitement for the holiday season that was not here last year...it makes me really happy! :)

By next year we'll all be ready for a Rachelville gathering!! With plenty of Rinne Bars of course. ;)

I hope so...this would be so much fun!!

Some people obviously remain sticks......not me. I take after my grandmother more as far as body build.

No stick here either... :(

EEK! The specifics of this ultrasound are what? I am telling you I think there is something seriously twisted going on, like whose idea was this? I feel the same way about mammograms and had avoided one until I found the lump in my breast. Silly me, I thought that if you could feel the lump you wouldn't need to take a picture of it. :angry: So, that was and will be my only mammogram.

I was trying to answer that first question, and my fingers just won't type it. :lol::P

Maybe she is trying to break you so you will go to :lol:

...

I'm glad you are feeling good and cheerful. I also have bitten by the holiday spirit bug, even thought I feel like poop, not even pink sparkly poop.

Nah, she's just cruel. :lol:

Sorry you're feeling like poop! :P

ami27 Apprentice
ami27
Posted

I am home and feeling fine, just a little tired. Thank you all for your positive support through this whole thing. I think this is now behind me and I can focus on moving forward :wub:

Ridgewalker Contributor
Ridgewalker
Posted

I'm sorry you had to go through that extra bit of hell Ami. I'll be thinking about you- get lots of rest!!!

confusedks Enthusiast
confusedks
Posted

So it's looking like we may not know until tomorrow when we can get an appt. for the PICC line. If it wasn't for my veins being so problematic, I would say forget it...but I can't. My arm is still swollen from the last 2 weeks of blood draws. I am burning out on all of this crap so quickly. I can't even imagine starting a whole NEW plan of "getting better." I am just so tired and crabby (did I mention crabby...lol!). UGH UGH UGH!!!

Ami,

I am glad you're doing okay. Keep us updated when you can...okay? :)

Kassandra

confusedks Enthusiast
confusedks
Posted

Well, some semi good news...I have an appt. with the LLMD on Friday Dec. 14th at 10.15 am!!! I am hoping that we will be able to keep the appt...I told my mom I was going to call and just make an appt. because this is getting ridiculous.

Let's just hope that all these "if's" work in the way we want. Also, the hematologist said that he wants to start with 5 IV's and see what my numbers do. If I am okay after 5, we will stop...so then we would have more room for error to still be able to make the LLMD appt. (does that make sense?)

Kassandra

AndreaB Contributor
AndreaB
Posted

Ami,

I'm glad you're back and resting. Take care of yourself and post when you can.

Kassandra,

I hope the 14th works out! That would be great! I think Rachel has her appointment with Amy on the 15th and don't know if Jin still has an appointment on the 13th but I thought she did.

I'm sorry you're arm is still so bad with the recent blood draws. Hopefully you won't need more than the 5 IV's and things will move quickly with them.

CarlaB Enthusiast
CarlaB
Posted
She is very thin. She is about 35 lbs. I have read that the more weight a kid has, the more estrogen they could be storing, but she has no fat!

She has a pediatric endocrinologist appt on Dec 14th, so maybe i'll get some answers.....

That's very strange then .... I look forward to hearing what the endocrinologist has to say.

I replied "YOU ARE A LOSER".

:lol:

That's Adam's favorite name to call people ... loser. LOL

Ok, need to vent somewhere. I'm upset, POed, scared, and now stress eating (which is baaad).
This could be called the vent thread! It's okay to vent here, we all get it!

Well, some semi good news...I have an appt. with the LLMD on Friday Dec. 14th at 10.15 am!!!
Maybe your mom will finally be tired enough of other doctors to see the LLMD this time. :)

I think you should go whether you are done with the iron IV's or not. :)

CarlaB Enthusiast
CarlaB
Posted

Okay, I see some of you online ... for a kid's school project, what kind of pie do you like?

Green12 Enthusiast
Green12
Posted
Okay, I see some of you online ... for a kid's school project, what kind of pie do you like?

I like apple struesel and banana cream

Ami, I'm glad you got through this difficult day. Take it easy and keep us posted how you are doing.

CarlaB Enthusiast
CarlaB
Posted

Thanks, Julie ... anyone else?

ShadowSwallow Newbie
ShadowSwallow
Posted

Pumpkin, Lemon Mirangue, and Raspberry.

happygirl Collaborator
happygirl
Posted

Is pumpkin cheesecake an option ;)

CarlaB Enthusiast
CarlaB
Posted
Is pumpkin cheesecake an option ;)

I don't know. :) It's a friend's kid. :)

I'll pass that one on ... they can always change it to pumpkin if they need to.

Thanks, to both of you.

AndreaB Contributor
AndreaB
Posted
Okay, I see some of you online ... for a kid's school project, what kind of pie do you like?

Pumpkin, peach and I used to love the cream pie....chocolate, butterscotch, banana.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.