Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Makes You Happiest About Being Gluten-free?

Guest BERNESES

By Guest BERNESES
in Coping with Celiac Disease

Recommended Posts

debmidge Rising Star
debmidge
Posted

as per my husband Mike: I finally have a name for my health problem. I finally have a solution for my health problem. I am not crazy like the doctor said I was.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I feel glad that I have a source in all of you and know where I can turn to get support.

I am glad that I don't have cancer, which is what I thought.

I am glad that my husband has realized that this is serious and talks to the waiter before I get a change to open my mouth (I think :huh: ). He has seen so supportive and helped me with trash bag with my favorite jeans in them :angry:

I am glad that I can heal myself, although the burden is high. I sometimes feel that I have handle on the diet and I get slack and it bites me in the a-- all the time - literally.

I am glad that I know what I am dealing with and I am in full controll.

I am glad that I know that Altoids have many uses. Shush, don't tell my husband. I am 51 and my husband is 66 - Karen can have all of mine. ;)

I am glad that we are together in this and we can joke and be friends. :)

Judyin Philly Enthusiast
Judyin Philly
Posted

I'm so glad I've lost 45 #'s without trying except for going gluten/soy free and mostly dairy...

Tried for years to get weight off and now I have a 'tool' to use

I'm so glad i don't have the horrid big "D" anymore. It was controling my life and that of my husbands.

I'm so glad i don't have the pain of fibromyalgia anymore.

I'm glad that if i keep feeling better, one of my life goals will be to return to Italy and Switzerland. With healing I believe my dream will become a reality. :)

I'm so so so glad I have this group of friends on the forum...You all are amazing. :):):):)

hugs and love

judy in philly

jkmunchkin Rising Star
jkmunchkin
Posted

I love not feeling sick every single day.

I love being able to make plans and actually not cancel because I feel so sick.

I love having more energy than I used to.

I love knowing that something really was wrong with me all those years and it's not just that I'm they "type of person" that never feels well.

I love having the power to make myself feel better.

And I love my support team here and in most of my family.

Rusla Enthusiast
Rusla
Posted

I love not having the big D anymore.

I love that I have lost 35lbs without doing anything and continuing I am continuing to lose. I love that I found this forum and I love all of you and what wonderful and funny things you all come up with. I love that when I see or smell glutenous food that, I don't crave it or even want it anymore. I love that even though I don't feel perfect, I do feel better than before and look forward to eventually being near perfect. I love that everyone on here is getting better and feeling better.

Laura Apprentice
Laura
Posted

I love it all. Love the sense of serenity and joy I have almost all of the time, and the lack of despair when things don't go well. I love that I had a cold this week and it sucked but I hadn't had one in months and I know just how much worse it could be. Shoot, because I'm something of a control freak, I even love having the excuse to always have dinner parties at my house rather than having to trust someone else's cooking.

luvs2eat Collaborator
luvs2eat
Posted

I'm not lovin' it so much. I'm resigned, but not lovin' that I can't have my favorite food... my homemade breads... ever again. My "big D" wasn't so bad and I didn't feel crappy. I didn't get to lose ONE POUND without trying desperately ... rather, I've GAINED weight I didn't need!!

So, now I'm on Weight Watchers, not eating the fav foods I CAN have because I have don't have enough willpower to keep from eating more than I should. I've become much more gluten sensitive, so that now the "big D" IS a big deal... and I'm still huge and still can't eat my homemade bread.

Oh, don't mind me... I'll go get some cheese to have with my whine.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Judyin Philly Enthusiast
Judyin Philly
Posted

HI LOVE YOUR-----Oh, don't mind me... I'll go get some cheese to have with my whine. wine / whine/ what a hoot :lol:

Just a tip if you want....

I STOPPED losing weight when I added back lactose...(milk, cheese & ice cream ALL MY FAVORITE THINGS)..MORE THAN THE BREAD---WHICH WAS MY FIRST FAVORITE THING BEFORE ICE CREAM

THE SNACK THINGS AND GOOD THINGS THAT CAN KEEP US gluten-free I FIND IF I HAVE TOO MANY WILL STOP MY WEIGHT LOSS. IF YOU REALLY WANT TO LOSE WEIGHT, I'D TRY TO KEEP IT THE SIMPLE BASIC FOOD GROUPS...IT'S BEEN 10 MONTHS FOR ME..... iF YOUR GETTING THE BIG 'D' AND DIDN'T HAVE IT BEFORE THEN I BET THERE IS SOMETHING YOUR 'GUT' DOESN'T LIKE...ALSO, THE EXERCISE IS A BIG PIECE OF IT. HAVEN'T BEEN ABLE TO SWIM FOR A MONTH DUE TO MANY ISSUES BUT I MISS MENTALLY AND SO DOES MY BODY.

Please don't think I'm screaming at you with the 'caps' . People who know me on the forum know I can't see well and the caps are easier for me to see and so many of my posts are in caps.

good luck

judy in philly

mesmerize Apprentice
mesmerize
Posted

well this is my very first post here (i've been gluten free for about 2 months now)... but i just had to say that my absolute favorite thing is the effect it's had on my SKIN. i've had ridiculously sensitive skin and constant breakouts for as long as i can remember (i'm 25 now) and within days of going gluten free it was all GONE. i've had a couple very minor breakouts since then, but then it just clears right up again and looks better than ever. i also used to always have these tiny little bumps all over my face, like clogged pores or something. they've completely disappeared now, my skin is SO smooth. i don't know why this happened as soon as i went off gluten, and i don't care! i'm just happy it did! ;)

of course another nice bonus was realizing that pretty much ALL my health problems that have kept me in doctors offices for most of my life (IBS, graves disease, etc etc etc) can be at least partly attributed to this ONE thing. it's still just so amazing to me that not even one of the countless doctors/specialists that i saw throughout the first 25 years of my life ever thought to test me for this, until my new AWESOME doctor finally put all the pieces together. :D

judy05 Apprentice
judy05
Posted
I love jnkmnky's thread about the best advice you have ever gotten from this board, and I was thinking, you know, there really are a lot of positives about being gluten-free (and sometimes newbies don't see them).

Here's mine- I think my favorite things about being gluten free are that my depression may have been related to Celiac's. My whole life I could never figure it out. It just didn't "fit" and my doctor and therapist always said I was the clearest case for a biological depression they had ever seen. Turns out they were right- 18 years ago!

i love that I like Chebe pizza crust better than "real" pizza crust.

I love that's it's brought my relationship to a new level with my hubby.

I love that I eat healthier now than I EVER did before.

I love that I can still have a lot of my favorite foods.

I'm happy that I finally figured out why I got sick so often and can control it through my diet and not mounds of medicines.

I'm happy that I feel like I'm finally starting to heal- that waas scaary.

I'm happy that my energy is coming back!!!!!!

Hi everyone,

I love that I can drive my pickup truck without wearing sunglasses anymore

I love that I can't remember when I last had a cold (I used to get 3-4 a year)

I love that Spring is here and I'm not wheezing or sneezing, I can be outside again.

I love being rid of that awful brain fog and migraines.

I love being free from some really awful aches and pains, I had to take early retirement because of them.

klemmen Rookie
klemmen
Posted

:rolleyes: Hum, well after going gluten free I don't feel much better but .... what i do like about being gluten free and not feeling much better is that after ages of never having enough time to read, i now find me and the bathroom have become quite well aquainted with many books... :ph34r::lol::lol::huh: .sooo maybe it's made me more intelligent :rolleyes: . No erm it's made me more aware of the foods i eat...always thought i ate quite healthy on a veggie diet but when i started reading the labels :o tut tut all the extra rubbish inside....and it has given me an opportunity to learn to cook..not that i have taken up that one yet :rolleyes:

and i found this board and therefore would never have been able to read such an interesting thread such as Sex and Celiac :lol::lol: tooooo funny :lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    2. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    3. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
    4. knitty kitty
      - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten! Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten. I can get glutened from the bakery section at the grocery store. The nose and mouth drain into the digestive system and can trigger systemic reactions. I find the histamine release...
    5. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Guinness, can you drink it?

      This article may be helpful:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,243
    • Most Online (within 30 mins)
      7,748
    Dorfor
    Newest Member
    Dorfor
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.