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For Those With Gluten Tolerant & Intolerant Family Members

Guest momx3

By Guest momx3
in Parents, Friends and Loved Ones of Celiacs

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jaybirdsmom Newbie
jaybirdsmom
Posted

I have two kids but the youngest (17 mo. ) is the one with the possible Celiacs (not DX by docs yet) I changed his diet because he had been sick for 4 months. At the begining i started with a couple of things (1 week) but then threw everything glutened in my pantry away (which was almost everything!!) And went and bought everything gluten free with the exception of cheze it for my 7 yr old daughter. When we started the diet I told my daughter that before giving my son anything she needed to ask me first. We had her glutened snacks for school in a lower latched cabinete and told my daughter that she could eat anything she wanted with gluten at school and outside the house. well, my hudini like son somehow got in to the cabinete and ate some cheze its and that was the end of that!! Now we are completly gluten free and my daughter doesnt care. She eats gluten free pasta and gluten free everything and she likes it very very much! It's become second nature in three months for all of us and she really doesn't miss it. She even has her sandwiches on gluten free bread for her lunch at school!!

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Smunkeemom Enthusiast
Smunkeemom
Posted

Our house is 90% gluten free now (with the exception of some of hubby's snacks) but when it wasn't all the gluten was out of reach for my girls and they had a "safe snack cabinet" that had healthy gluten free stuff for them. That way they could get their own snacks and I didn't have to check everything every single time.

Also, I don't keep gluten in my fridge at all so everything in there is safe (except for Daddy's butter that has a big red X on the lid in marker)

anerissara Enthusiast
anerissara
Posted

We have a mixed lot around here...my son and I are gluten-free but everyone else isn't. I spent most of this year with 2 extra students home schooling at my house, and ended up making tons and tons of gluten PB&J's for them...I think this has really effected my health because I have been really up and down but I've been very careful about what I eat myself. I am just about ready to cut everyone off the gluten and go completely gluten-free, that way I'd at least know if I'm getting CC'd or if I may have some other problem in addition to the gluten. It should be easier this summer since the students won't be here.

Felidae Enthusiast
Felidae
Posted

Other than my husbands breakfasts and lunches which include regular bread and non gluten-free deli meat, everything else is gluten-free.

VydorScope Proficient
VydorScope
Posted

Only our son is gluten intorlernt, but we just made the whole house gluten-free. Its much easier, esply now that he helps in the kitchen!

psawyer Proficient
psawyer
Posted

Hershey's Kisses are gluten-free.

Hershey will clearly disclose gluten sources in the ingredient list, so if you don't see wheat, rye, barley or oats mentioned, the product is gluten-free.

AndreaB Contributor
AndreaB
Posted
I don't have the package anymore and I'm starting to react to something so I was worried about eating them today.

Floridian,

How do you do with soy. They may have soy lecithin in them. I know chocolate chips and carob chips do.

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    • trents
      Newly diagnosed mam to coeliac 11 year old

      By trents · Posted

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
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