Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Curious Question


num1habsfan

Recommended Posts

num1habsfan Rising Star

I have a question for everyone on this board:

If you were in a situation where you had no back-up gluten-free food, and had not eating for a long period of time...

Would you starve and be sick with increased nausea from hunger pains.....or would you eat something with gluten to fill the hunger, even though you know you'll pay for it later???

~lisa~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Good question. I have done both, and found in the long run I was much happier being terribly hungry. Because you'll be okay once you eat. But if you eat something with gluten, you'll be sick for days or weeks afterwards!

A little fasting has never hurt anybody, as long as you drink enough.

frenchiemama Collaborator

Define "a long period of time". One day? Several days? A week? I have been caught out without any gluten-free supplies, and I went 20+ hours without a single bite to eat. Not once did I even contemplate eating something gluteny. I was hungry, but I would have to be absolutely desperate before I resorted to gluten.

ravenwoodglass Mentor
I have a question for everyone on this board:

If you were in a situation where you had no back-up gluten-free food, and had not eating for a long period of time...

Would you starve and be sick with increased nausea from hunger pains.....or would you eat something with gluten to fill the hunger, even though you know you'll pay for it later???

~lisa~

I would starve, literally, before I knowingly ate gluten. But for me glutening now causes severe pain and bleeding that does not stop usually for hours. To be truthful since I get that reaction from even trace amounts I would be to afraid to deliberately eat it.

Smunkeemom Enthusiast

Define "a long time"... I would probably have to be near death to even think about touching gluten again, I am pretty sure that if I was really starving to death though, gluten would push me to death faster than not eating.

Becky6 Enthusiast

I could not touch gluten again.

ebrbetty Rising Star

I'd stay hungry, not worth the pain


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elye Community Regular

The answer for me is an easy one, being celiac and type one diabetic. I would HAVE to eat something eventually, and if all I had at my disposal was gluteny food, I'd be preparing for some pain later on. It's only happened a few times where I have had to eat quickly and there was no gluten-free choice. Such is another yucky thing about having these two diseases... :angry:

penguin Community Regular

I'd have only one choice also - EAT! I'm hypoglycemic and I could either 1: not eat, throw up, get shakey, pass out, and deal with blood sugar problems all week or 2: get glutened

I'd rather get glutened, but is there coke available? If there's coke available, I drink that to keep my blood sugar afloat until I got to some food. Unless that made me more sick, then I'd have to eat!

zip2play Apprentice

I would have to agree with Chelsea, being hypoglycemic I would have to eat something and if the low bloodsugar had already started, SUGAR would be necessary! But I would strive to find the coarse of least pain later!

Monica

mmaccartney Explorer

Eating gluten almost killed me. I would starve rather then eat that poison again.

There is always something one could eat...roots, berries, animals, etc.

jerseyangel Proficient

I've been thinking about this since I read your question earlier. I would not eat the gluten. If applicable, I would scrounge around for other things to stay alive (like Michael said) but I don't think I could bring myself to ever knowingly eat gluten after what it has done to me. Actually, if I really was half-starving and I ate gluten, the reaction would probably completely do me in!

schuyler Apprentice

I honestly don't know; I think it would depend on how I was feeling at the time. Yesterday, I had a seizure after mistakenly ingesting a small amount of gluten. But, at the same time, I've had low blood sugar problems in the past (not diagnosed as hypoglycemic yet, but drs are considering it). So it's a catch-22 situation for me.

elye Community Regular

This is slightly an aside, but something I always keep on hand for low blood sugars that is small and handy and VERY effective in a matter of seconds is glucose tablets. They are made up of 100% glucose, which gets into you bloodstream much faster than any other sugar source that is found in other I-need-to-grab-something-quick hypoglycemic choices like coke, fruit, candy, etc. I can't kid around, because my hypoglycemic reactions are caused by an overdose of insulin, so I have had to find the fastest thing to administer. They are gluten-free, too, of course. You can get them in the drug store, and while pricey, they are well worth it if you need your blood sugar up quickly.

tarnalberry Community Regular

I would not eat the gluten, and I've never found myself in a sitaution where I couldn't find a piece of fruit or nuts, even if it meant a very inconvenient drive to a grocery store, and some barely paletable fruit.

CarlaB Enthusiast

I would not eat gluten. I have blood sugar issues, not as bad as some, but bad enough. I would leave wherever I was, and I mean wherever, and go find something to eat. I usually carry food with me. I remind myself of my son we adopted from Russia who would practically hoard food because of his past. I find myself buying bags of Ruffles at gas stations when I'm not hungry in case I'm hungry later. I'm slowly getting over my compulsive behavior! :blink: I would literally have to be in a foreign country where I wouldn't be able to eat for days before I'd consider eating it again.

Can you believe I talk like this, yet I'm still in denial over this whole thing, questioning it every day?? LOL

corinne Apprentice

I almost had that decision to make on a snowshoe trip this winter. I accidentally left my lunch on the table in the morning DUH! and didn't realise it until we were was 7 miles up the trail. I skipped lunch but by 3 pm I was getting really weak and shaky. It was absolutely necessary to eat or I wouldn't be able to walk fast enough that we could make it back to the trailhead before dark. It was also minus 30 and with 40 mph I was having a hard time staying warm without food in my system. Fortunately, my snowshoe buddies dug through their packs and found a banana. I think I would have eaten a granola bar or something with gluten just to make it back safely even if I had to pay the consequences later.

eleep Enthusiast

I've thought about this one too -- partly because my brother is big on the "we'd all better learn to grown our own food" scenario (he's an ecological economist). All I can think is that -- should that actually be a necessity for me some day -- it's a whole lot easier to grow potatoes and beans in a home garden than it is to grow wheat!

I wouldn't eat the gluten -- not anymore.

natalunia Rookie

I wouldn't eat anything with gluten in that case, unless you put a big bowl of mac & cheese from Luby's in front of me. I'd cave in that case. I really miss their mac & cheese...

lorka150 Collaborator

assuming this is not a death situation, i would not touch anything. like tarnalberry mentioned, i really don't think that there would be NO possibilities... even if it's a rank one! i'd probably swallow gum if need be.

Guest nini

I would not willingly put that poison in my mouth... I'd rather starve than willingly be glutened! LOL! Seriously, I don't think I could do it. No matter how hungry I was.

DingoGirl Enthusiast

If I'm about to pass out from hunger or low blood sugar, I need PROTEIN, and in a big and satisfying amount.....but, I think I would go up to only 24 hours without food, and then would consume whatever was around, gluten or not. Nobody wants to see me when I'm starving....

Rachel--24 Collaborator

I would have to be pretty bad off to willingly put gluten into my mouth. I cant see that I'd ever be that desperate but thats pretty much the only way I could see myself doing it...if I had no choice.

Guest Robbin
I've thought about this one too -- partly because my brother is big on the "we'd all better learn to grown our own food" scenario (he's an ecological economist). All I can think is that -- should that actually be a necessity for me some day -- it's a whole lot easier to grow potatoes and beans in a home garden than it is to grow wheat!

I wouldn't eat the gluten -- not anymore.

Your brother sounds like me--I grew up hearing stories about the Depression from my Grandma and I think about this a lot--(pantry has a huge stockpile of dried beans and rice!!) I probably would cave and eat it if there were nothing else. I 'd resign myself to the idea that I lived through the sickness for 20 plus years, I can do it to survive a little longer. This would only be if there were no alternatives whatsoever, though, those were not pleasant times :blink:

prinsessa Contributor

I would probably eat the gluten if I was really, really hungry. I don't get many bad symptoms besides bloating and gas unless I eat gluten for a couple of days in a row (I did that about a month ago and had gas pains so bad I though I was going to die). I can handle small amounts of gluten as long as I don't eat any more for a long time. I still avoid gluten because I know it could cause damage without any symptoms....but I might cave if I was so hungry I felt weak. I try to remember to carry a Lara bar with me just in case that happens though.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,966
    • Most Online (within 30 mins)
      7,748

    Susan Allsopp
    Newest Member
    Susan Allsopp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Hello @CeliacNew, If you are Vegan to help you feel better, reconsider returning to omnivore.  Actually, since you are already on a very restrictive diet, transitioning to gluten free might be easier for you.  Read the ingredient labels, Particularly vitamin D and Choline require supplements for vegan diet because our primary source is sun, eggs and beef.  B12 also.
    • Wheatwacked
      Once you've completed testing and still don't have improvement, start a trial gluten free diet.  Looking for imprvement that may indicate Non Celiac Gluten Sensitivity, which is 10 times more prevalent than Celiac Disease. Deficiencies in vitamins B6, B12, D, and C can manifest as skin rashes.  Virtual guaranty you are deficient in vitamin D.
    • cameo674
      So those rs numbers tell researchers where the dbSNP is located in a Genome so that other reasearchers or an AI system can look in that specific spot for that Snip of information.  You can look those rs # s by pasting the numbers after rs into the lookup on this page https://www.ncbi.nlm.nih.gov/snp/ right under the Blue header bar at the top of the webpage.  Since you are not a researcher, I do not know how this will help you though.
    • cameo674
      So I posted here once before, and everyone advocated that I get into a GI doc.  I finally got into my functional health appointment on 6/16 to get my blood results evaluated and get the Gastro referral. I was told that I would be fortunate to see a gastro doctor by December, because of the number of people waiting to get in, but they did believe that I needed to see a GI doc among others.  Well, the stars aligned. I got home. I looked at MyChart and it showed an appointment available for later that same day. I never clicked so fast on an appointment time. The gastro doc ran some additional blood work based off the December values that had confirmed my daughter's suspicion that I have undiagnosed stomach issues.  Gastro has also scheduled me to get an upper endoscopy as well as a colonoscopy since it has been 8 years since my last one. She said it would rule out other concerns if I did not show Celiac per the biopsies.  Those biopsies will not occur until August 29th and like everyone here stated, Gastro wants me to keep gluten in my diet exactly as everyone suggested. To be honest, I was barely eating any gluten since I figured I would have plenty of time to do so before testing.  Doc is also looking for the cause of the low level heartburn that I have had for 30 years.  I have mentioned the heartburn to PCPs in the past and they always said take a tums or other OTC drug.  The upper endoscopy is for ruling out eosinphilic esophagitis, h. pylori, and to biopsy the duodenal bulb and second portion to confirm or exclude celiac. The colonoscopy will have random biopsies to rule out microscopic colitis. I didn't really catch her reasoning for the bloodwork.  Doc looked at the December numbers and said they were definitely concerning for Celiac.  She also said, “Hmm that’s odd; usually it’s the reverse”, but I did not catch which result made her say that. She seems very through.  She also asked why I had never bothered to see a GI before.  To be honest, I told her I just assumed that the heartburn and loose stool were a part of aging.  I have been gassy since I was born and thought constantly passing gas was normal?  Everyone I know with Celiac have horrible symptoms that cannot be attributed to other things.  They are in a lot of stomach pain.  I do not go through that.  I attribute my issues to the lactose intolerance that comes with aging, but have slowly been eliminating foods from my diet due to the heartburn or due my assumption that they did not agree with a medication that I was prescribed. I have already eliminated milk products especially high fat ones like ice cream; fats like peanut butter; acids like citrus and tomatoes; chocolate in all forms; and breads more because it is so hard to get in 100 grams of protein if I eat any foods that are not a protein.  I would not have even done the testing if my daughter had not brought up the fact that she thought I might have an undiagnosed condition since she has issues with bloating and another sibling has periodic undiagnosed stomach pain that GI docs throw pills at instead of helping.  Who knew that Bristol scale 5 and 6 were not considered normal especially multiple times a day? I watched my MIL go through basically the same bowel changes starting at 50 so to be honest, I really did think it was normal before this week's appointment.   December 2024's blood tests ran through Quest Labs were:  Deamidated Gliadin (IgA) 53.8 U/mL Above range >15.0 U/mL; Deamidated Gliadin (IgG) >250.0 U/mL Above Range >15.0 U/mL; Tissue Transglutaminase (IgA) 44.0 U/mL Above range >15.0 U/mL; Tissue Transglutaminase (IgG) <1.0 In range <15.0; Immunoglobulin A (IgA) 274 mg/dL In range 47-310 mg/dL 6/16/25 bloodwork:  Until today, I did not really know what all the four tubes of blood were for and since I did not understand the results, I got into the clinical notes to see what was ordered, but it did not exactly explain why for everything. Immunoglobulins IGG, IGA, IGM all came back in range:  IGG 1,010 mg/dL In range 600-1,714; IgA 261 mg/dL In range 66-433 mg/dL; IGM 189 mg/dL In range 45-281.  How do these numbers help with diagnosis? Google says she checked these to see if I have an ongoing infection? I do have Hashimoto's and she did say once you have one autoimmune disease others seem to follow. Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies? Comprehensive Metabolic Panel: Everything was in the middle of the normal range.  Google says this just says I am metabolically healthy. Tissue Transglutaminase ABS test results – Done by the Mayo Clinic’s Labs –  T-Transglutaminase IGA AB --Value: 3.1 U/mL – Normal Value is <4.0 (negative) U/mL; Tissue Transglutaminase, IgG -- Value: 15.3 U/mL High -- Normal Value is <6.0 (Negative) U/mL – Interpretation Positive (>9.0) – These are the only labs the GI did that have been labeled Abnormal.  I am confused at how/why these came back different than the December labs? Because these numbers seem to be the opposite of what the were in December and I know I have eaten less gluten.  They were definitely measured differently and had different ranges. This must be why she said they are usually opposite? Molecular Stool Parasite Panel said I was Negative for Giardia Lamblia by PCR; Entamoeba Histolytica by PCR and Cryptosporidium Parvum/Hominis by PCR.  So at least I do not need to do a parasite cleanse like everyone on TikTok seems to be doing. So I guess, I am just really asking why the Tissue Transglutaminase numbers are different.  Was it because they were truly different tests? Is it because I have not consumed the crazy amount of gluten one is suppose to eat prior to testing? To be honest, I thought that was only for the biopsy testing. I generally only eat twice a day, and the thought of eating the equivalent of 6 slices of bread is daunting. Even in my youth, I probably only consumed the equivalent of maybe 3 slices a day. Like I said before, now I usually focus on trying to eat 60 gram of protein.  I am suppose to consume 100 grams, but have failed to succeed. I will focus on eating gluten starting in July now that I know my procedure date.
    • Scott Adams
      I agree with @trents and wiping down the spot you eat your lunch, and eating the food your brought from home should be safe for even sensitive celiacs. Gluten can jump on your food, so it would likely better better for you to continue eating where you prefer.
×
×
  • Create New...