Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crazy Idea Re: Casein Intolerance


Felidae

Recommended Posts

Felidae Enthusiast

I know this sounds crazy, but I am determined to try everything when it comes to cheese. I am eating a little piece of cheese everyday to see if I can build up a tolerance. Just so you know, I would never do this with gluten! I will keep you guys posted as to if my little experiment works.

It must be my science background coming out, sample size of one is pretty bad though. I'm convocating next week with a BSc degree. Yay me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Girl Ninja Newbie

Yay for your degree! Good luck with the cheese. Can that really work?

gfp Enthusiast

I would think that if your doing this to try and build up a tolerance to similar proteins using sheeps and goats cheeses... and then add a little casein ...

just my 2c

tarnalberry Community Regular

Goats milk and sheeps milk both contain casein - even the forms of casein that are most highly prevalent in cows milk, though at a lower percentage. Still worth a try, but you're not avoiding casein that way. (You might also try buffalo milk cheese.)

eKatherine Apprentice

It looks like I have no trouble eating goat's milk cheese, but sheep's milk cheese seems to bother me. Try goat's milk cheese. If it doesn't bother you, then just eat it instead.

gfp Enthusiast
Goats milk and sheeps milk both contain casein - even the forms of casein that are most highly prevalent in cows milk, though at a lower percentage. Still worth a try, but you're not avoiding casein that way. (You might also try buffalo milk cheese.)

oops sorry, i meant to be specific about cow casein since many people seem to have the issue with cow milk and not goat or sheep.

Summer is here and you have a selection from feta through goats cheeses in salads not to mention the buffalo mozerella ... and many sheep cheeses too ...

mouse Enthusiast

I am allergic to casein. But, I can eat hard cheddar goat cheese, but not the regular goat cheese. I don't remember who posted that the hard cheddar goat cheese does not have casein (Rachel?) But, I find that I can tolerate the hard cheddar. Of course I really have it very seldom, like maybe once a month.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

I seem to have a mild allergy to all dairy except cheddar cheese. Don't know why that is, maybe because of the aging. I have added butter back into my diet though and will be using nonfat milk powder in recipes that call for it. Thinking this allergy (hoping) will go away since I'm on the gluten free diet now. I'm also allergic to goats milk but I didn't like that anyway.

Mango04 Enthusiast

Careful while you reintroduce that stuff. I did the same thing and was fine with it for a while...then out of the blue one day I had a crazy intense reaction and almost lost my ability to breathe. I don't think we really build up a tolerance. I think it just kind of builds up in our body until it starts to do harm again. That's what happened to me anyway.

I am allergic to casein. But, I can eat hard cheddar goat cheese, but not the regular goat cheese. I don't remember who posted that the hard cheddar goat cheese does not have casein (Rachel?) But, I find that I can tolerate the hard cheddar. Of course I really have it very seldom, like maybe once a month.

Do you know what kind of goat cheddar? I thought the hard goat cheddar didn't have lactose. I tried hard goat cheddar and I had a cray casein reaction, but maybe I got the wrong kind.

Felidae Enthusiast

Well, I'm still eating Kraft swiss cheese everyday and I haven't had a problem yet. It could be that possible that I'm not casein intolerant anymore. One can always hope.

I tried goats cheese in the past and I got quite sick from it. But I may be okay with it now.

Nancym Enthusiast
Well, I'm still eating Kraft swiss cheese everyday and I haven't had a problem yet.

I think it is because they make it from petroleum products, not milk. :P At least, that's how it always tasted to me!

corinne Apprentice

Cheese is casein! Rennet or other enzymes are used to convert caseinogen, a protein in milk, to casein which is water insoluble, and then separates out as curds from the liquid (whey). The curds (or collected casein) is then pressed to form cheese.

Hard cheese is very low in lactose which is why it is sometimes more digestible.

Guest Robbin

Glad you started this thread. The gluten free diet is much easier for me than the dairy. I have wondered about maybe trying the fat-type dairy products that don't have as much protein like whipped cream, butter, and sour cream. I don't think I've healed enough to "rock the boat" yet, though. I am interested in your progress in this experiment. Keep us posted!! Congratulations on the degree too! :)

taz sharratt Enthusiast
Glad you started this thread. The gluten free diet is much easier for me than the dairy. I have wondered about maybe trying the fat-type dairy products that don't have as much protein like whipped cream, butter, and sour cream. I don't think I've healed enough to "rock the boat" yet, though. I am interested in your progress in this experiment. Keep us posted!! Congratulations on the degree too! :)

im glad you started this thread, im also lactose inolerant and confused about what i can and cant eat, i thought all dairy was out but now it sounds like i may be able to have hard cheese, i miss strong mature hard cheese, but tell me is casien the same as lactose its unclear from the thread?

eKatherine Apprentice
im glad you started this thread, im also lactose inolerant and confused about what i can and cant eat, i thought all dairy was out but now it sounds like i may be able to have hard cheese, i miss strong mature hard cheese, but tell me is casien the same as lactose its unclear from the thread?

Casein is milk protein. Lactose is milk sugar. Most lactose drains away in the making of cheese, and the rest may go away in the aging of it, but casein is forever. Try it and see if it works for you.

StrongerToday Enthusiast

I'm proud to say I've been dabbling w/ dairy for a little bit now and seem to be doing ok. I eat the garlic/basil goat cheese on Knickknick pizza - YUM! :P and I found a goat's milk cheddar (reminds me of a Vermont Sharp White Cheddar that's good too. I've had a little dairy (garlic mashed potatoes at a restaraunt) and a piece of American cheese on my eggs... forgotton how much I'd missed that!

Next step: real cheddar or maybe mozzerella... already drooling!

Felidae Enthusiast
im glad you started this thread, im also lactose inolerant and confused about what i can and cant eat, i thought all dairy was out but now it sounds like i may be able to have hard cheese, i miss strong mature hard cheese, but tell me is casien the same as lactose its unclear from the thread?

Casein is in all dairy. Lactose is very low or absent in hard cheeses. So if you eat hard cheese with no ill effects you may be only lactose intolerant.

It's been one year since I went gluten-free, so it could be that I have simply healed enough to handle cheese again. Time will tell, but so far so good. I'm not ready to try any other brand or type of cheese yet (just in case).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,915
    • Most Online (within 30 mins)
      7,748

    DRIZZE
    Newest Member
    DRIZZE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.