Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Megan's Gagging Isn't Any Better

TCA

Recommended Posts

KayJay Enthusiast
KayJay
Posted

What great news! That is amazing I thought they said she would have to stay 6 weeks! Just amazing!!!

My dh ask about her all the time too :D We are just one big family in this small world :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 882
  • Created
  • Last Reply
Luvs to Scrap Apprentice
Luvs to Scrap
Posted

So glad you are home! Will continue to pray for smooth and quick recovery. :) Kendra

TCA Contributor
TCA
Posted
  • Author

Thanks everyone for the welcome home!!!! Meg is doing well, just fussy. Her incision site is itching and she's trying to scratch it. Just called the surgeon and he said benedryl cream would be ok to try and that seems to be helping. Things are busy around here, but I hope I can start joining in around here more now.

Each of you have been such a blessing over the past few months. I never imagined when I started this thread looking for answers what it would turn into. Thanks seems such a meager way to express my gratitude for each prayer and encouraging word. Just know that even if you are my "virtual friends", as my husband jokes, you are some of the best friends a person could ever have. May God bless each of you as he has our family.

Love,

Tanya

Nic Collaborator
Nic
Posted

Tanya,

I am glad everything went so well. I know I seem stuck on this but how is the gagging? If she is still doing it, it must be hard on her with here incision.

Nicole

Lisa Mentor
Lisa
Posted

Much love to you and your family.

Lisa

VydorScope Proficient
VydorScope
Posted

YAY!!!!!!!!!! :D:D:D:D:D:D

This calls for a new smilie likethis one!

Click here to see it!

EDIT: Fixed link :)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I couldn't access the smilie :( It said, "FORBIDDEN."

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Judyin Philly Enthusiast
Judyin Philly
Posted

:( I couldn't access the smile either but Vincent you 'ROCK'

THAT SMILE SAYS IT ALL.... :lol:

WELCOME BACK LISA.

THANKS FOR KEEPING US ALL INFORMED.

WE LOVE YOU ALL AND ESP OUR 'LITTLE MEGAN'

JUDY IN PHILLY

VydorScope Proficient
VydorScope
Posted

Sorry try this link instead..

CLICK ME!

MEGAN UPDATE

WEDNESDAY, AUGUST 02, 2006 01:18 PM, CDT

Sorry I haven't updated earlier, but it's been a whirlwind! We got home safely last night. Megan's been really fussy from being sore, but is doing great. I gave her a warm bath this morning that seemed to relax her, being careful of her incision, of course. She is doing so good, though. We are truly blessed beyond measure. She is gaining weight so rapidly now. She's well over 18 lbs. now! She's outgrown her clothes since being admitted to the hospital, but she still has plenty that she hadn't been able to wear yet! She's so pink.

Her gagging is back with a vengence. I spoke with her GI before leaving the hospital yesterday and he thinks it's just from recovering from surgery. He wants to try her on formula alone, so we're slowly transitioning her to that to see if that will help. After a week, she should be on straight formula, then we can start trying to feed by mouth again, but only 1 new food every 7 days since she has shown so many intolerances. According to how feeding goes, we can start backing off the feeding tube. Please pray for the GI issues to resolve as she heals. This is the next major hurtle she has to face.

Thank you so much for carrying us through this time with your prayers and constant support. It is amazing how many friends and dear family members we realize we have now. So many of you have written in the guestbook, sent e-mails, packages, cards, and gifts. It's the love behind each of those things that we treasure. Know that each of you have a special place in our hearts.

Love to all - Jarod, Tanya, Cole, and Megan Hope

DingoGirl Enthusiast
DingoGirl
Posted

Very good update - except for the gagging part. Oh I do pray this resolves itself soon....but good to be home, isn't it?

Vincent - excellent smiley :)

TCA Contributor
TCA
Posted
  • Author

Vincent - LOVE the smiley. I think it's actually a picture of me as we left the hospital yesterday!!!! ;)

As you read, the gagging is still bad. I still have hopes it will improve. Made a followup with the GI today for 8/23. I'm going to think positive and say that by then the gagging will be gone and we won't have to worry about it! I'm so excited to be able to try to start foods with her next week. She's starting to act like she wants to eat, so I'm very hopeful. If the gagging stops on Neocate alone, then that will indicate there is a food issue, even though the scope was negative. If it continues, I will do the sulfite free thing and put her on breast milk alone for a while. Tried to at the hospital, but it was hopeless in that environment. I was just glad to be able to stay gluten, egg, and milk free.

Canadian Karen Community Regular
Canadian Karen
Posted
My husband asks everday ''How's baby Megan today!''

:)

Mine too! :lol:

Karen

Cheri A Contributor
Cheri A
Posted

Continuing to pray for Megan's healing and the gagging issue.

VydorScope Proficient
VydorScope
Posted

UPDATE!

THURSDAY, AUGUST 03, 2006 07:09 PM, CDT

Just wanted to let you all know that Megan had another great day. She's only needed pain medication once today. Her gagging has been a little better too. She has had a lot of problem with bile building up in her stomach and that seems a lot better today. Hopefully the gagging being worse was just a side effect of surgery causing digestion to slow. I see slight improvement and am overjoyed at that! I'm sure she will continue to improve.

mouse Enthusiast
mouse
Posted

Thanks Tanya for the great update. Still praying for the continued improvement.

jerseyangel Proficient
jerseyangel
Posted

I think about Megan every day--so happy to see that she's continuing to improve! :) Tanya, thanks for continuing to keep us updated--I know you're busy ;)

schuyler Apprentice
schuyler
Posted

Glad Meg's doing better! I hope her gagging improves soon.

key Contributor
key
Posted

So glad you are home again! Praying Megan's gagging continues to get better. Hope you are getting some rest.

Monica

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Just checking in on you, and adding my thoughts and prayers to everyone else's...

Judyin Philly Enthusiast
Judyin Philly
Posted

I'm just ck'n in too to see if any news on Megan.

HOpe all is progressing well esp with the gagging..

love

judy

Canadian Karen Community Regular
Canadian Karen
Posted

Also just checking in on "Our Little Meg"........ The updates sound wonderful!

Hugs.

Karen

Guest Robbin
Guest Robbin
Posted
:) Great news! So glad you are home and I hope you are able to rest, Tanya. How is little Cole now that sister is home? He sure is a little trouper too. Megan is always in my prayers, as all of you are. Thank you for the updates.
VydorScope Proficient
VydorScope
Posted

MEGAN UPDATE

FRIDAY, AUGUST 04, 2006 09:16 PM, CDT

Megan in improving each day. Her gagging seems to be getting back to normal. Not that that's great, but at least it's improving!!! It cooled off a little here today and we got her outside some this afternoon, which she loved. Jarod had his chainsaw out cutting some trees and she happily watched Daddy labor away. From a distance, of course. She only took a 5 min. nap all day long. She's just so afraid she will miss something. She was out by 7 pm. That's a big change from sleeping 6-8 hrs. during the day before surgery. She pulled the steristrips off her chest tube scars today, so hopefully they've healed enough for that! Her chest scar is so clean. It healed even better this time than last time. An unexpected improvement is that her eczema is better with the improved blood flow. Who'd thought that would make a difference? I'm still praying hard that her GI issues will resolve on their own. We'd appreciate your prayers for the same thing! We know you people get results! ; )

Hope you all have a great weekend!

Judyin Philly Enthusiast
Judyin Philly
Posted
MEGAN UPDATE

Thanks Vincent-so happy Tanya

This was the sweetest and most encouraging post so far...

Prayers will continue for you all

love and hugs

judy

mouse Enthusiast
mouse
Posted

The news from you Tanya, is getting better everyday. Of course we will all continue to pray. Can't desert our little Megan. Prayers and many Hugs for continued good news.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,610
    • Most Online (within 30 mins)
      7,748
    wonderproductions
    Newest Member
    wonderproductions
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat  poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again.  Why ingest poison for a month to have some doctor say Hey, All you Have To Do Is Never Eat poison Again.. 
    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu
    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y
    • Scott Adams
      Potential celiac need advice

      By Scott Adams · Posted

      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.