Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very Strange Sensations Today..


Lisa

Recommended Posts

Lisa Mentor

Ok.....

This will be brief because how I feel

1. Feel drunk

2. headache - aleve won't help

3. turn my head or look up and down, swishy dizzy feeling

4. feel like I should not drive

5. feel like I have a fever, buy don't

6. catching myself swaying while sitting or standing, like now

7. very odd, but heard a whispered voice call my name at the grocery store several times, looked around and no one was there. Watching TV, same voice. NEVER had that happen before.

8. Gradually stopped Lexipro over a weeks time. Cut down dosage accordingly. Today is 72 hours

without. (gosh, I am sooo dizzy)

Is this detox from the lexipro or is my brain going to explode tonight and the angles are calling me. :unsure::unsure:

Really feeling VERY strange tonight and all day.

Lisa, in la-la land


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 50
  • Created
  • Last Reply
jerseyangel Proficient

Lisa, I don't know anything about Lexipro, so I don't know if that's what is causing this. I am worried about you--are you home alone? Is your husband there? I would call my doctor and see wht he/she says. I know it's Sunday, but I think you should get a professional opinion.

Hopefully someone familiar with the drug and it's side effects when weaning off will see this.

If not, please call the doctor :)

wolfie Enthusiast

I google "going off Lexapro" and this is what I got:

Open Original Shared Link

It talks about several of the things you mentioned.

Hope this helps!

StrongerToday Enthusiast

Lisa, I think this does sound like Lexapro withdrawal. Did you talk w/ your dr. about how you should wean yourself off?

Lisa Mentor

Have to be at someones house for dinner, but I bet it will be short one for me. Be back soon. Yeah, worried about me too.

Lisa

ravenwoodglass Mentor
Have to be at someones house for dinner, but I bet it will be short one for me. Be back soon. Yeah, worried about me too.

Lisa

Lisa I agree you may want to call your doctor. Is there any chance in addition to the drug stoppage that you might have been glutened as well?

tarnalberry Community Regular

while some of those things happen to me when I get a migraine, I'd think the lexapro withdrawl is far likelier. isn't a week pretty fast to come off that med? most of the meds I've titraed on that were meds you had to be careful of titrating, it was done over the course of a month or so.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
while some of those things happen to me when I get a migraine, I'd think the lexapro withdrawl is far likelier. isn't a week pretty fast to come off that med? most of the meds I've titraed on that were meds you had to be careful of titrating, it was done over the course of a month or so.

Good catch on that, I missed the week. That is much to short of a time to wean off a drug. I weaned off all meds under a doctors reluctant supervision before I did the elimination diet and we took a full month to do it. Not a pleasant time either, I made bi weekly trips to my acupuncturist which helped with the pain of the celiac and the withdrawl symptoms.

key Contributor

Lisa,

It sounds like Lexapro withdrawal from what I have read. How are you weaning yourself. What was the dose and how quick are you weaning yourself? Sounds like you are miserable. How long were you on Lexapro? Would love to know, because I am weaning myself, but from everything I have read, it can be tough, so I am going to do it slowly. I was on it for two months now and thought it had helped me alot for symptoms I was having that were like IBS still. I think though it was from being gluttened in small amounts before, so I want to go off and see. I really didn't have any major side effects I thought, until I realized I was tired alot more lately and woke in the morning still tired. Also, now that I have been feeling great, I would like to get pregnant. This is why I am being so nosey!

HOpe you feel better. I would take a very small dose to make your symptoms a bit better.

Monica

Lisa Mentor
I google "going off Lexapro" and this is what I got:

Open Original Shared Link

It talks about several of the things you mentioned.

Hope this helps!

Holy Cow, after reading your site you posted, I know where I am. Thank goodness tomorrow is Monday, and I can call my doctor. It is so strange that parts of my body are :jumping" It's something that I can't explain.

I think that a Tylenol PM might help. Who knows, I have never been here before.

thanks for your research, I own you one.

Lisa, I don't know anything about Lexipro, so I don't know if that's what is causing this. I am worried about you--are you home alone? Is your husband there? I would call my doctor and see wht he/she says. I know it's Sunday, but I think you should get a professional opinion.

Hopefully someone familiar with the drug and it's side effects when weaning off will see this.

If not, please call the doctor :)

I'm ok. I had to go to dinner around the corner, short but sweet. I will explain to them later, or tomorrow.

I tried to step down from the Lexipro from 10 mg to 5 for a week and then one 5mg every other day........well that didn't seem to work.

I truely can't imagine going off drugs like coke, or crack..........

Would a Tylnenal PM help me tonight to sleep.

jerseyangel Proficient

Good to know that you're home safe, Lisa. Scary stuff. Try to get a good night's sleep--definately get in touch with your doctor tomorrow to find out the best way to go about this. :)

Canadian Karen Community Regular

Hi Lisa!

Just wanted to chime in to say that I think you are on the right track and it is Lexapro withdrawal....

I can remember one time years ago when I stopped taking Rivotril, holy crap, I thought I was going to die! It literally felt like someone had a tie around my neck, and wrists, and it was getting tighter and tighter by the minute! I literally thought I was going to die, even to the point of the sensation of my eyes bulging out.... It was a horrid experience! Just wanted to share to set your mind at ease that it indeed is probably the drug withdrawal, as it sure can feel sometimes like we are walking in hell coming off some drugs.....

This too shall pass....... ;)

I highly recommend calling your doctor first thing and fill him in though - maybe you are coming off it too fast.....

In the meantime, sending you lots of hugs and hope the Tylenol PM helps you....

Hugs.

Karen

Judyin Philly Enthusiast

Gosh Lisa I was praying you'd post after you got back. I was so worried about you too.

I read the site too and found this and am going to see what i can find on the SSRI Withdrawal Syndrome.

The jolts of electricity alot of people mentioned, thought you did too but just ck'd and guess you didn't but feverish alot of people said they had. It sure sounds like this is what you are going through. We u on it long? Sounds like a week is a short time based on what the people said.

I hope your not home alone.

It sounds so scarey..if you get worse and are alone..please post and we'll try to talk you through it.

bless your heart...these drugs are so scarey to me..

hugs and prayers coming your way.

PLEASE CALL THE DR IN THE AM.

JUDY

did a cut and paste of this from the thread wolfie posted.--The last sentence is scarey and i know you don't need scarey right now but it's better to be prepared if you need help tonight..ok. We love ya girlfriend

Shocker, the symptoms you are experiencing are not the dizziness, they are separate symptoms that make you feel like you are recieving a jolt of electricity, going from your head to your extremities. These are rare side effects of SSRI withdrawal, but they are symptoms. Be careful of tapering too quickly, you could plunge yourself into SSRI Withdrawal Syndrome, which consists of flu-like symptoms that can leave you bed-ridden for weeks.

Lisa Mentor

Good to know all my girls are here, as well as a good lawyer. (just in case)

Feel better now that I am home. I told every one that I had a a very bad head cold, and as much as i enjoyed it, I should go home. bla bla bla

The sensation is soooo weird. I feel that there are little jolts all over my body from time to time. I wonder if I could lite a litebulb :huh:

Everyone has been so helpful, as I was a little, well alot freekin out about what was happening.

Last night I had the most vivid dreams that I could not even dream about relaying...but so very much disturbing. It still creaps me out in the day time. Terrible things about family and stuff. oooh.

If this is what controlled drugs do............adious for me jack.

Patti. Jim is here and I made him read some postes. He fusses, but, first to be there when I am in need. Don't worry about that.

(This is so weird, my body feels like there are little firecrackers, without the heat, just the pop, in mu muscles)

My better thought is that I will reget this post when I wake up in the morning.

I apparently made a mistake on going off Lexipro too fast. Maybe my unfortunate experience will help some one else. It was wonderful when on it.........apparently, hard to get off.

As I usually sign off, and going to bed: to Patti, Karen and Bronko and the rest of the world, thanks

and everyone else........

......when I come off Lexipro, can I come and visit Rachelville.? :huh:

Good Night, Love you guys. Talk to you in the am.

Lisa

Canadian Karen Community Regular

What are you talking about, can you come visit? YOU'RE THE MAYOR!!!!!

Just curious, do you have the sensation of what feels like a bug crawling on you, but there is nothing there? I had that all over my body also when I was going off Rivotril...... obviously coming off some drugs makes the nerve endings go haywire, I guess.....

Hugs.

Karen

Judyin Philly Enthusiast

Lisa-

Glad you are going to bed.

It looks like i posted while you were writing so glad you didn't see what i wrote about the 'syndrome'

the 'little shockings' seem to be what the others were trying to describe...

hope you have a great nites sleep...

I can't relate to this except for the 'reactions' i get when on predizone..so i sure feel for you.

hugs

Judy

Lisa Mentor

THE MAYOR: Well, Karen, that is an elective post. Consult your constiuents. But remember,I am a bossy Biach. B)

No, the sensation is with a lack of terms "a little electrical small zapp" , not hot, just a buzz feeling.

A small electrical tickle

Rikki Tikki Explorer

Lisa:

If it helps a few years ago I had been taking klonopin for restless legs and decided I should stop taking it, so I stopped just like that. I thought I was going to die, my heart was going crazy, it was just awful. I didn't talk to my doctor about tapering off it, just stopped, and didn't make the connection for several months.

Anyway, I have been to Rachelville and the streets are all rolled up, lights are out, dustbowls everywhere, :lol: save your gas for another day

Lisa Mentor

Love all your post, all my best budds.

Zipp out tonigh. Check in the am.

MAYOR, howly cow, I have enough issues here. Maybe Rachelville, won't have any issues.

Sweet dreams all. See you in the am.

Lisa.xxoo

plantime Contributor

Lisa, just curious: Why are you quitting the Lexapro? I am on 5 mg a day, and have no intention of quitting at this point in my life!

Judyin Philly Enthusiast

lisa

did a cut and past from the sorce listed on the thread..

SSRI Withdrawal Syndrome

--------------------------------------------------------------------------------

The following criteria define the SSRI (or SNRI) withdrawal syndrome:

Criterion A: A course of treatment in which an SSRI (or vanlafaxine) is stopped or interrupted or the dose is reduced after a period of 4 weeks or more.

Criterion B: Two or more of the following symptoms develop within 1 to 10 days of criterion A (except for fluoxetine in which case the symptoms must develop within 28 days):

(a) dizziness or light headedness

(B) nausea and/or vomiting

© headaches

(d) lethargy

(e) anxiety and/or agitation

(f) tingling (paresthesias), numbness or "electric" shock-like sensations in the head or limbs

(g) tremors

(h) sweating

(i)insomnia

(j) irritability

(k) vertigo (dizziness)

(l) diarrhea

maybe this will help just give some info.

judy

debmidge Rising Star

Lisa

It sounds like withdrawal symptoms. My husband had those symptoms when he started Serzone years ago and within 3 weeks had to abruptly stop because the symptoms just intensified. Anti-anxiety/depressants work wonderfully, but there are a lot of neurological side effects that happen.

Call Dr. as soon as his office is open just to alert him to this situation.

wolfie Enthusiast

Just checking in to see how you are feeling today. I hope that you can get in touch with your Dr and figure out a plan. I take Lexapro too and worry about how I am going to get off of it when I am ready to. Please update us and let us know how you are doing. ((((HUGS))))

Canadian Karen Community Regular

Hey Mayor,

Just checking to see how you are this morning.......

Hugs.

Karen

Rikki Tikki Explorer

Hi Lisa:

How are you feeling this morning? Don't forget to call the doctor

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Guinness, can you drink it?

    2. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      7

      Related issues

    3. - Donna Moxley commented on Scott Adams's article in Latest Research
      2

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - cristiana replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Rectal pain


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,277
    • Most Online (within 30 mins)
      7,748

    Michellesmitty
    Newest Member
    Michellesmitty
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is why Daura Damm can be a sponsor here--at 3ppm or less it is gluten-free, and it's doubtful that anyone with celiac disease would ever have issues with such levels. Some people may be reacting to the yeast in the beer, but I seriously doubt that such beers could trigger elevated antibodies or villi damage--the science says such levels won't trigger celiac disease issues.  
    • Scott Adams
      I have to express some significant skepticism about the drclark cleansing programs you've mentioned. The claim that a specific, three-part parasite and organ cleanse is a universal solution for chronic health issues is a major red flag, as it oversimplifies the immense complexity of the human body and conditions like Celiac disease, which is an autoimmune disorder, not a parasite infection. Regarding your Celiac disease, the reaction you describe, while real to you, does not necessarily confirm a diagnosis; a delayed reaction is common with various digestive issues, and a definitive diagnosis typically requires specific blood tests and an intestinal biopsy, not just a provider's acceptance of symptoms. Furthermore, your mention of approaching mayors seems to misunderstand the role of local government versus federal policy; the deduction for gluten-free food is a federal tax law, and a mayor has no jurisdiction to implement widespread Celiac screening, which is a medical and public health decision far beyond a municipal leader's purview. It sounds like you are navigating a difficult health journey, but I would strongly advise consulting with qualified medical specialists and registered dietitians over relying on unverified online cleansing programs.
    • cristiana
      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this.  I am not a medical person but it seemed like the extra pressure down there perhaps added pressure to already sensitised pelvic and rectal muscles. Coeliacs can suffer from bloating when they are first diagnosed due to the inability to digest food properly.  Lactose for me caused a lot of bloating and when I came off it temporarily after diagnosis it helped reduce bloating.  Iron supplements and the timing of taking them also caused discomfort and I had to experiment a bit with type and timing before my gut felt comfortable.   Maybe something to think about?   Some coeliacs suffer from constipation - again, just a thought, but perhaps if you had issues with that it might be a contributor.
    • Rogol72
      At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
    • Mari
      Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer  support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead are offering supplements for your symptoms. This has helped you but you are not able to work very much.  The Programs I have seen  online usually have 3 parts. The first is a Parasite cleanse. The 2nd is the Kidney cleanse and the  3rd is a Liver cleanse and gallbladder cleanse. You need to doall these cleanses to have your whole body functioning well. I can only reccommend the program I gave you because that is the one I used and still do. (drclark.net)  When I see a newprovider and tell I have Celiacs and they look skeptical I tell them that when I am gluttoned the reaction happens 8 or more hours later with intestinal painful cramping followed by diarrhea. Providers are willing to accept tha I probably have Celiacs and are more likely order tests such as vitamin levels. Is this what happens if you eat only a small amount of Gluten? You mentioned going to Mayors. 20 years ago many Dr.s wanted to include a celiac screening as a standard test so that more people eould diagnosed and not become disabled. It did not happen but the Federal levgislature did pass a law so that Celiacs could claim deductions for the gluten free food they bought. What were you going to ask the Mayors to do?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.