Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Who Is On Your Not-my-friend List?

penguin

Recommended Posts

penguin Community Regular
penguin
Posted

On the verge of going back to being gluten-free, I'm remembering all the companies that are on my "not-my-friend" list, in that they said their products were gluten-free and they weren't. Here's what I got:

Amy's

(everything but rice mac & cheese)

Bob's Red Mill

(all-purpose gluten-free flour mix)

Pamela's

(baking mix)

Kellogg's

(on principle)

Who's on your list? :huh:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 51
  • Created
  • Last Reply
bklynceliac Apprentice
bklynceliac
Posted

Mi-del. I've had problems with their cookies several times.

jerseyangel Proficient
jerseyangel
Posted

Some Whole Foods 365 Brand products.

I've gotten reactions from their Almond Butter, Digestive Enzymes and a couple other things.

When this happened with the almond butter, I called and inquired (complained). They sent me packaging and postage and asked me to send it to a lab at the U of Nebraska. I heard back from them that there was no gluten detected in the product, but that they only check to 200 ppm. <_<

Nantzie Collaborator
Nantzie
Posted

Amy's - I'm hoping that they fix their problems, but I got SO sick. The worst glutening I've gotten so far. I don't know if I'd have the guts (HA!) try them again.

VydorScope Proficient
VydorScope
Posted

Danon, Qaucker, Purity.

CarlaB Enthusiast
CarlaB
Posted

Oral B and Ritter's Frozen Custard ... it irritates me when companies won't tell you what's in their product so that you can be the one to decide if you want to take the risk or not! There is a risk in almost everything we eat, and these two companies just say, "We can't help you." If everyone did that, we would starve and have dirty teeth!!

I won't eat Lay's Stax because I've heard the risk of cc for casein is high.

tarnalberry Community Regular
tarnalberry
Posted

Quaker, Blue Diamond (about the onlly thing that I've reacted to that most people haven't - usually, it's the other way 'round)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


key Contributor
key
Posted

WE eat Pamela's pancakes everyday for 15 months now. At least 5 days a week. I have never had a problem with them having gluten. I haven't contacted them though. IS there some risk of gluten? Where are they processed?

Amy's, possibly.

Lay's regular chips, something with them doesn't agree with me. I can eat UTZ's though.

Monica

angel-jd1 Community Regular
angel-jd1
Posted

Quaker

Arby's

Steak N Shake (conflicting info on their website I've never actually eaten there)

-Jessica :rolleyes:

Kaycee Collaborator
Kaycee
Posted

I don't trust any company who will not reply to my emails.

Most companies are good and wonderful with their replies, even if they state their food has gluten in it, I appreciate them giving me the advice. But there have been a couple of companies who have not even replied. They are small companies, but that is no excuse. So I treat their products as having gluten in them, even if I do not get a response from them. They are not user friendly!

Cathy

DingoGirl Enthusiast
DingoGirl
Posted

Wait a minute... :o are you saying that the Amy's cheese enchiladas in my freezer are going to give me problems? have not had them yet.....and what about the Shepherd's pie? both say GLUTEN-FREE on front.....

For me, definitely Blue Diamond Nut Thins. Extremely sick from those. And that's kind of evil, as they have their "proud sponsor of Celiac foundation" or someting like that right on the box.... :angry:

Heshey's Nuggetts.... :( Okay well I can eat a FEW, like 5 or 6 and no problems, but....half a bag.... :ph34r::lol: ...that's definitely not good.....

And DO NOT buy the choc. covered raisins from Trader Joe's. Woke up and felt kicked in the gut from those. <_<

jesscarmel Enthusiast
jesscarmel
Posted
Wait a minute... :o are you saying that the Amy's cheese enchiladas in my freezer are going to give me problems? have not had them yet.....and what about the Shepherd's pie? both say GLUTEN-FREE on front.....

For me, definitely Blue Diamond Nut Thins. Extremely sick from those. And that's kind of evil, as they have their "proud sponsor of Celiac foundation" or someting like that right on the box.... :angry:

Heshey's Nuggetts.... :( Okay well I can eat a FEW, like 5 or 6 and no problems, but....half a bag.... :ph34r::lol: ...that's definitely not good.....

And DO NOT buy the choc. covered raisins from Trader Joe's. Woke up and felt kicked in the gut from those. <_<

I ate the cheese enchilladas a few weeks ago and was okay and the pizza and was fine so i geuss everyone is different or maybe some are contaminated and some are not.......

elonwy Enthusiast
elonwy
Posted

Amy's has been having issues. The pizza is made in a dedicated facility but the rest is not. I was fine, then this weekend was made really sick by the cheese enchiladas, now I'm going to wait til they work it out.

I love Blue Diamond nut thins, they've never given me a problem.

I don't trust Hersheys. The only thing that's never made me sick is the plain chocolate bar and the plain kisses. Everything else makes me sick.

Elonwy

jkmunchkin Rising Star
jkmunchkin
Posted

Believe it or not I once got really sick from the Gluten Free Pantry Truffle Brownie mix and although I haven't eaten it again I'm not afraid to try their other products. I'm not sure why or how I reacted to it, but I did. So I just stay away from that product.

I'll occassionally eat the rice cakes, but I'm leery of Quaker.

penguin Community Regular
penguin
Posted
  • Author

Oh, also on my not-my-friend list:

Kettle Chips

Quaker

Arby's

McDonalds

Outback (well, one location, anyway)

The irony is I usually don't react to the mainstream products, it's the ones marked gluten-free that give me trouble :rolleyes:

taz sharratt Enthusiast
taz sharratt
Posted
Oh, also on my not-my-friend list:

Kettle Chips

Quaker

Arby's

McDonalds

Outback (well, one location, anyway)

The irony is I usually don't react to the mainstream products, it's the ones marked gluten-free that give me trouble :rolleyes:

is kettle chips ok or not :unsure: i have them a lot but am wondering if they may be causeing trouble :blink:

LKelly8 Rookie
LKelly8
Posted

(I don't think the Kettle brand chips are gluten-free :( .)

Amy is not my friend. I don't like her brother Van or their dad, General Mills.

Unexpected, possible cc: Hershey's Dark, Lays Staxx, various rice crackers.

floridanative Community Regular
floridanative
Posted

Quaker because after eating their quick grits twice and getting bloated both times, I finally called them even though clearly their label indicated no possible gluten. This was before I knew about cc at factories. So their response was to almost yell at me saying if I have Celiac I can NOT eat any of their products. With that kind of attitude I said no problem and hung up. I now eat Arrowhead Mill grits but noticed that Jim Dandy grits started marking their labels - may contain wheat and milk. Thank you!

Katja Rookie
Katja
Posted
(I don't think the Kettle brand chips are gluten-free :( .)

Amy is not my friend. I don't like her brother Van or their dad, General Mills.

Unexpected, possible cc: Hershey's Dark, Lays Staxx, various rice crackers.

I checked on Kettle's Website since I am huge fan of their new "bakes" chips and have been eating them quite a bit with (I think!?!) no problems.

Are your products gluten free?

Our products are processed on equipment shared with ingredients that contain very small amounts of wheat. We thoroughly clean our lines after each flavor run, but there is a slight potential of cross contamination. For your convenience we do list all ingredients on the packaging.

Open Original Shared Link

flagbabyds Collaborator
flagbabyds
Posted

halls! for sure made me soooooooooooosoooooooooooooooooooooo sick one time

PF changs, sent me into anaphalytic shock from the leftovers that they used the same spoons on everyone's ALWAYS make your own leftovers at YOUR table

amy's for sure

i can think of more later.

Katja Rookie
Katja
Posted
And DO NOT buy the choc. covered raisins from Trader Joe's. Woke up and felt kicked in the gut from those. <_<

uh oh!!! REALLY? I have been wrecking my brain as to why I am so tired and exhausted? Did you have the dark chocolate ones? (can't do dairy, so I stay away from any milk chocolate!)

lindalee Enthusiast
lindalee
Posted
Danon, Qaucker, Purity.

Tell me its not Danon yogurt please. I want to make my own but haven't figured it out with my maker yet.

lindalee Enthusiast
lindalee
Posted
Oh, also on my not-my-friend list:

Kettle Chips

Quaker

Arby's

McDonalds

Outback (well, one location, anyway)

The irony is I usually don't react to the mainstream products, it's the ones marked gluten-free that give me trouble :rolleyes:

Haven't done any of those since gluten-free except Outback at Nags Head - ordered off the gluten-free menu and the grilled lobster tail made me sick after one bite and the salad had croutons.

Sarah8793 Enthusiast
Sarah8793
Posted

Lara Bars,

Some Lay's potato chips

And, I too seem to react to many products that are labeled Gluten-Free. I am getting to the point where I am suspicious of any processed food. And I'm afraid to eat out anywhere.

elonwy Enthusiast
elonwy
Posted

The only Dannon that is ok is the plain one. From Dannon:

Gluten: This protein is found in wheat, oats, rye and barley. DANNON yogurt products are not formulated to contain gluten, but they can't be considered gluten free. The natural system for stabilizing flavor might contain ingredients derived from gluten sources. Since there is a current lack of consensus on individual sensitivity levels to gluten, and there are no accurate tests to detect the presence and amount of gluten, DANNON yogurt cannot be classified as "gluten free"

Yoplait is ok, just read the ingredients. The only ones that I've found with gluten are the ones with cookies and granola.

Elonwy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      When Gluten-Free Food Is Unavailable: A Child's Struggle Highlights the Hidden Risks for People with Celiac Disease

    2. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    4. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    5. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,349
    • Most Online (within 30 mins)
      7,748
    Sarah S
    Newest Member
    Sarah S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.