Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Old? Celiac For How Long?


swittenauer

How old are you?  

63 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

swittenauer Enthusiast

I was just curious as to how old everyone is in here? I didn't really know if there was more of a certain age bracket that visited this site or not.

I am 34 but my husband is 40. He was diagnosed just over a year ago so we are still newbies at this whole Celiac thing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Age 25 and tomorrow is my 2 year gluten free anniversary!

swittenauer Enthusiast
Age 25 and tomorrow is my 2 year gluten free anniversary!

Well, congratulations! I hope all has been going well with you being gluten free.

AndreaB Contributor

Susan,

I don't have an official diagnosis. Got tested by enterolab and got the results this past June....been totally gluten free since. Was gluten light for 2 months prior to that due to allergy test results.

Ursa Major Collaborator

I'm 53, and self-diagnosed myself ten months ago, still struggling but much better. But I've had celiac disease symptoms all my life, at least from the age of three. Too bad doctors are so clueless.

CarlaB Enthusiast

Symptoms my whole life.

First emergency room visit for it at 20, college roommate took me there because I only got out of bed for classes. Many throughout the past 23 years always relating to celiac symptoms, usually dehydration.

Diagnosed by Enterolab, doc accepts dietary response.

43 years old.

jerseyangel Proficient

I was diagnosed last year on June 2nd at the age of 49.

This was after over 20 years of illness and misdiagnoses.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2Boys4Me Enthusiast

I voted for Ty. He's 6 (& 3/4). He was 5 3/4 at diagnosis. His gluten-free anniversary was Aug. 18th.

He was diagnosed because we were trying to find out why he was so tired all the time and was such a lightweight. I think he was about 25th percentile for height and below zero for weight if you agree that everyone should fit somewhere on a chart. He had crazy low iron levels. 3 when he should have been in a range of 10 - 110.

I put one to two years gluten-free, but really barely over a year. Ty's on the left in the photo.

morganb Newbie

I have not been diagnosed, but I've been gluten free since May and I'm planning on doing a gluten challenge :blink:

I'm 18. I was going to do the poll, but there is no slot for 18 year olds....should I say I'm under 18 or that I'm 19? :huh:

Guest ~jules~

I'm 30, was diganosed last week :(

jkmunchkin Rising Star

I'm 28 and was diagnosed just over a year ago, but was sick for about 10 years.

swittenauer Enthusiast
I have not been diagnosed, but I've been gluten free since May and I'm planning on doing a gluten challenge :blink:

I'm 18. I was going to do the poll, but there is no slot for 18 year olds....should I say I'm under 18 or that I'm 19? :huh:

Oops! I meant to say 18 & under.

morganb Newbie
Oops! I meant to say 18 & under.

It's alright....I should have figured that....I'll take half the blame :) 18 & under is what would make sense.

Guest Viola

Age 60, gluten free 17 years

flagbabyds Collaborator

age 16

14 years gluten-free (15 in feb.)

mouse Enthusiast

Age 64. Gluten free since Feb. 3rd, 2004.

natalunia Rookie

Age 29, diagnosed 3 months ago, been gluten free for 4 months.

KaitiUSA Enthusiast

Age 19. Diagnosed in Jan of 2004

IrishKelly Contributor

Age 28, diagnosed 2 months ago, gluten free for almost the past 2 months.

Carriefaith Enthusiast

I am now 25 and I was diagnosed in March 2004 (2.5 years).

LKelly8 Rookie

I'm 37 and I was diagnosed June of '05 by biopsy after five years of mis(sed)diagnosis and negative celiac blood panels.

My mother's 69 and was diagnosed in 1938.

  • 4 months later...
swittenauer Enthusiast

Wow, 1938. Some doctor had his stuff together.

darlindeb25 Collaborator

I am 51 and am self diagnosed--gluten-free for over 5 yrs now. Have a sister diagnosed 4 months before me and our dad has been gluten-free for a little over 2 yrs now. We all had been sick for years and years!

Katie618 Apprentice

i'm 21 and was diagnosed in may 06, been gluten free for 6 months -- never really felt sick before that, was diagnosed becasue my iron levels were really low (they've been low since high school) but in retrospect, definately displayed symptoms

plantime Contributor

age 42, officially diagnosed Sept. 15, 2004, glutenfree since February 14, 2004.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.