Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Miss?

Guest ~jules~

By Guest ~jules~
in Coping with Celiac Disease

Recommended Posts

CarlaB Enthusiast
CarlaB
Posted
I haven't tried ghee, but I'd like to. Do you make your own, or is there a good brand I should look for?

I can't, unfortunately, use coconut oil because I'm intolerant to coconut. :angry:

I thought the brand was Ghee :lol: I just buy it in a glass jar at the Wild Oats. I am afraid to make my own since it's mechanically separated, I figure that the machines are more more accurate than I would be. I don't use it often, usually just for popcorn.

In the same way that Ghee doesn't have casein, I have read that coconut oil does not have the protein in coconut so it usually doesn't bother those allergic to coconut. I thought of you when I read that. Don't go on my word ... it was just something I read the other day ... but it might be worth researching.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 92
  • Created
  • Last Reply
jerseyangel Proficient
jerseyangel
Posted

:lol: Ghee!

Interesting about the coconut oils. I'm not allergic (that I know of), just intolerant. I know that there is coconut in most natural soaps and shampoos, and those don't cause me any obvious problems.

I am also soy intolerant, and soy oil bothers me, but a small amount of soy lecithin does not :blink:

CarlaB Enthusiast
CarlaB
Posted

The article may have said intolerant, I can't remember. I guess it's up to you if you'd want to risk discomfort to see if the oil bothers you or not. Some things are worth the risk ... others are not!

Rusla Enthusiast
Rusla
Posted
I miss being able to go to any restaurant and eat with everyone else. I always try and recreate the foods I miss myself in a gluten-free and casein free way.

Excuse me for being off topic,but Carrie, your wedding gown is so gorgeous. You look positively enchanting in it, I didn't realize the big day had already gone by. Congratulations.

ianm Apprentice
ianm
Posted

New Castle Brown Ale, Guiness Stout and Two Hearted Ale. New Grist is good but it is not the same. I miss all of the other gluten foods like a big giant hole in the head.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Sorry if this has already been suggested, but there are some unbelievable good recipes in Annalise Roberts' GLuten-Free Baking Classics. There is somethign she calls Submarine Sandwich Bread which tastes to ME like the artisanal bakery breads, and the sandwich bread leaves Kinnikinnick's in the dust! The Sub bread is made in a French bread pan (with little holes like a pizza pan), and the crust is crispy and the bread is chewy and it kept for over a week in my fridge (wrappeed tightly in plastic wrap and then foil) and it reheated beautifully in the toaster oven....the sandwich bread is good enough for a PBJ sandwich.

Her cakes and cookies are amazing, too--I thought the chocolate chip cookies tasted almost exactly like Tollhouse cookies, and the coconut cake was better than any gluten cake I'd ever made before, scratch or mix! (And I love to bake!)

The nicest part is, the good taste totally satisfies the cravings--but the fact that they don't contain gluten means that these recipes don't bring back the cravings after you've eaten the bread (or cakes or cookies), so you don't get trapped in that wanting more andmore andmore cycle.

  • 2 weeks later...
CMarente Newbie
CMarente
Posted

Dear All,

On the pizza genre, if you live in Colorado, Beau Jo's pizza now has a gluten free menu, and their gluten-free prairie pies (pizzas) have a crust that tastes just like Pizza Hut's!

On another note, a lot of the recipes I've seen suggest using Xantham gum to keep gluten free flours together and also to keep them from getting crumbly. It suggests putting the Xantham gum in before butter. Hope this helps someone!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mango04 Enthusiast
Mango04
Posted

Does anyone have the Smart Squeeze Ingredients?

Adelle Enthusiast
Adelle
Posted

OREOS!!! I miss oreos like crazy!!! I'm still looking for a decent replacement. Going crazy for it. Oreo's were my favorite junk food!! Didn't get them very often, but I miss them terribly!!

Canadian Karen Community Regular
Canadian Karen
Posted

Oh, this is so easy......

The thing I miss the most is my chinese food feasts..... Nothing beat a night of ordering chinese food from our favourite Szchewan restaurant. Szchewan beef, Szchewan shrimp with peanuts, curry vegetables, beef fried rice smothered in soy sauce, spring rolls, sweet and sour chicken balls.......

Wow! If I could only have that one more time....... :(

Karen

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Same thing, always. Krispy Kreme doughnuts. When the "Hot Doughnuts" light is on, and you can get them boxed right off the conveyor belt. If I bought them now, I would probably eat the WHOLE dozen while they were hot. Mmmmmm........

I also miss Black & Tan beer. When we would go to Maryland, we'd have steamed crabs, spend the entire DAY cracking those babies, drinking Black & Tan beer.

I also miss the marshmallow doughnuts from the little corner German bakery there. They're not glazed, like some doughnuts are. They're just . . . great. The marshmallow filling is home-made. And Smircase (sp?) cake from there . . .

And King Fish fried white fish sandwiches . . . I ate a TON of them when I was pregnant with Ashley!

Guest ~jules~
Guest ~jules~
Posted

Okay, Okay I'm getting hungry. We ate out tonight at one of "their places" their meaning the rest of my family, and I was just watching my husband eat this big sloppy taco salad with nacho cheese, Ugh some days are just harder than others. Oh and has anyone had the bread dream? You know your sitting at the table in a restaraunt eating the bread out of the basket, then you realize its bread and panick?

What happened to the normal nightmares I used to have like falling, or running? LOL....Oh well :D

Nooner Newbie
Nooner
Posted

Oh my gosh!!! I have gluten nightmares too!!! Waking up in a cold sweat, thinking you've just eaten bread or pizza or pasta... :o

My husband thinks I'm crazy...okay maybe I am, but not in this case!

~Li

shai76 Explorer
shai76
Posted

I can live without gluten, but I really miss dairy. I want a piece of cheese so bad, and maybe some real ice cream. Creamy mushroom soup, or pumpkin pie. I'd like to be able to eat turkey on thanks giving, but since I'm allergic to turkey I can't. I miss the convienence of dining out.

TriticusToxicum Explorer
TriticusToxicum
Posted
Oh my gosh!!! I have gluten nightmares too!!! Waking up in a cold sweat, thinking you've just eaten bread or pizza or pasta... :o

My husband thinks I'm crazy...okay maybe I am, but not in this case!

~Li

Weird, the same thing happened to me last night! I startled myself awake thinking I had just eaten a bowl of Campbells Chicken Noodle Soup. The only expalnation I have is that my wife has the flu, so I was just being a good husband in my sleep?

taz sharratt Enthusiast
taz sharratt
Posted
I am trying to figure out what food I miss the most. I have never had any problems with eating or food, fortunetly enough. I have always been a very healthy eater, and consider myself fortunate not to have a "picky" problem like my hubby, or an eating disorder of any kind. I've always eaten right, and splurged occasionally....I am having trouble with the freedom I have lost to eat what I want when I want I guess, even though 9 times out of 10 I wouldn't have eaten it anyway! But, I can say I will miss the occasional old fashioned glazed donut, Kentuky Fried Chicken, and anything salty when I felt like splurging before. So what is your most missed? (and how do I make it now?) recipes wanted... :D

i miss pasta a lot.

valerieann Newbie
valerieann
Posted
I am trying to figure out what food I miss the most. I have never had any problems with eating or food, fortunetly enough. I have always been a very healthy eater, and consider myself fortunate not to have a "picky" problem like my hubby, or an eating disorder of any kind. I've always eaten right, and splurged occasionally....I am having trouble with the freedom I have lost to eat what I want when I want I guess, even though 9 times out of 10 I wouldn't have eaten it anyway! But, I can say I will miss the occasional old fashioned glazed donut, Kentuky Fried Chicken, and anything salty when I felt like splurging before. So what is your most missed? (and how do I make it now?) recipes wanted... :D

Pikelets, real sandwiches, ice-cream, cream buns, doughnuts, hot cross buns, fried runny eggs, sausages, POTATOES, milky drinks, fast food, cappochinos, chocolate, and so on and so on.

prinsessa Contributor
prinsessa
Posted
I can live without gluten, but I really miss dairy. I want a piece of cheese so bad, and maybe some real ice cream. Creamy mushroom soup, or pumpkin pie. I'd like to be able to eat turkey on thanks giving, but since I'm allergic to turkey I can't. I miss the convienence of dining out.

I think my MIL makes cream of mushroom soup without using cream. I asked her how she makes it (because it is really good) and she said she just blends the mushrooms in the blender after cooking them. I thought for sure she used cream. I will try to get the recipe from her. She is one of those people that doesn't use recipes though, so I'm not sure if she knows exact ingredients.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,050
    • Most Online (within 30 mins)
      7,748
    Rima
    Newest Member
    Rima
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.