Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Funny Pages - Tickle Me Elbow - The Original


TriticusToxicum

Recommended Posts

elye Community Regular

Oh, Amanda...wow, I did not know that John had cancer. Such an ordeal to go through, but at least you had each other!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 51k
  • Created
  • Last Reply
blueeyedmanda Community Regular

Actually, I didn't meet John until about a year and a few months after he got better. We met at the hospital where we both work. He took a job in the lab where I worked. He was on 3rd shift for a long time and eventually went to 2nd shift. That was the shift I worked.

We got to know each other and he asked me out on a date. We went to a bar and then went back to my house and just sat and talked and he told me that night he was going to marry me. I at the time thought nothing of it. All my friends have told me, they knew he was the one.

blueeyedmanda Community Regular
Amanda - this is disconcerting - he has been sick so much! Um....I'm not sure - is HE gluten-free? Is he Celiac? Before I removed gluten, I was constantly sick, terrible sore throats about every two months that turned into bronchitis or something awful. Two Christmases ago, I was in the emergency room - TWICE - with a severe kidney infection - thought I was DYING. I'm so happy to say that was the LAST time I was sick! :)

Just wondering about John - it does seem like he has a compromised immune system.... :unsure:

At one point before I got diagnosed I was in the ER with what they said was severe gastrtitis....Man was I in pain, I was hunched over....I thought I was going to die too. It was very scary.

nikki-uk Enthusiast

Yes, Tom! Open Original Shared Link tastes alot better than it looks :D

John is such a clean person (he loves to clean, when he gets better I will volunteer him to come to your house and clean)

Does he do trans-atlantic volunteering???? ;)

blueeyedmanda Community Regular

Nikki- he has always wanted to travel across the pond...I will ask :)

nikki-uk Enthusiast
Nikki- he has always wanted to travel across the pond...I will ask :)

Yes, please do Amanda....but I do need him to be in full good health as *cough* ...he's got his work cut out here matey !!! :lol:

DingoGirl Enthusiast
We went to a bar and then went back to my house and just sat and talked and he told me that night he was going to marry me. I at the time thought nothing of it. All my friends have told me, they knew he was the one.

:o oh good Lord! That would totally freak me out.......in fact if they say that instantly - I just get rid of them!!!!!!!!!!!!!!!!!!!!!!

Perhaps will re-think that theory :huh:

AManda - I also didn't know John had had cancer! good gawd, do you mind telling us what kind?

My own Stinker, as most of you know, is a lymphoma survivor and went through chemo. :blink: (I am barking mad) And, she actually has never been the same....goes through periods of what seems like total sickness and exhaustion, each time I think I'll lose her, each time she makes it through (hence the name, Dog Who Will Not Die). Her bowels actually have never quite been the same since her chemo......and she pants, constantly pants, even when it's 45 degrees outside....always hot since then.........

Do you have John on immune-boosting vitamins? When I was teaching and ALWAYS sick, I started a regimen that really helped......lots of C, zinc, and pure garlic capsules, and an anti-oxidant. really helped......

Does he do trans-atlantic volunteering???? ;)

NOOOOOOOOT so fast, you saucy minx.........only AFTER he's finished with MY squalid house! ;)

all right.....now I"M heading out to shop.........zoigs!!!! :huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

John had a germ cell tumor which is a form of testicular cancer but his tumor never made it down to that region. instead he had a grapefruit sized tumor around his lungs and heart. He did 6-months of high dose chemo and then had surgery to remove the tumor. They wanted to kill the tumor and then remove it so there would not be the chance the cancer cells would spread.

He still has a few issues regarding the chemo, he has very bad neuropathy especially in his feet, the nerves are growing back but very slowing so he is taking pain meds (narcotics) for that. He was told they may never grow back fully and he may always have the pain. His dr and he have both said things have gotten better. His fingertips will always be numb. His liver is in ok shape, chemo especially high dose can ruin a liver. He has to be careful with alcohol, and if he was to drink everyday in 10 yrs he would need a liver transplant...scary! John rarely drinks.

He does take vitamins. He usually is pretty well, it just seems since the pneumonia he cannot get back to a good spot. It does seem like there are a lot of people I know sick like him, so he is probably picking up common colds...He works in a hospital and he delivers packages to the floors and offices here, so he comes in contact with more sick people than I do...

jerseyangel Proficient

Wow Amanda, John's really been through a lot. I will remember him in my prayers that he continue to do well (and stop catching these pesky viruses!) :)

blueeyedmanda Community Regular

Here's another tidbit of info, John recently quit smoking (cold turkey) yes the boy was dumb and did start smoking after cancer...I always yelled about that but...the girl next to me also quit smoking in the spring and she says since then she catches all the little colds and things she never usually had.

DingoGirl Enthusiast
Here's another tidbit of info, John recently quit smoking (cold turkey) yes the boy was dumb and did start smoking after cancer...I always yelled about that but...the girl next to me also quit smoking in the spring and she says since then she catches all the little colds and things she never usually had.

:o Well THIS may be the answer! I have read from several people on here that smoking is an immunosuppresant.....so now that he's quit, he'll catch everything! I think Patti may know something about this...........

Wow, he HAS been through a lot! Good Lord! Praying he gets better and better all the time. At least now he has a really good wife. :)

I am back!!!!!!!!!!! not too bad today. The girls went with me.....they were bored and wanted an outing. So......it really wasn't too exciting for them, they sat in the car for one solid hour while mommy made two stops. *yawn* they really thought it would be more exciting than that. :lol:

OMG - Nicola - have you seen the Irish film called Once? Two people have just told me it's about their favorite movie ever - watchign it tomorrow night (wacky Gail is coming over)

must walk the girls!

nikki-uk Enthusiast
NOOOOOOOOT so fast, you saucy minx.........only AFTER he's finished with MY squalid house! ;)

But Susie...John wants to come - he's never been to England (not that he'd see much of it as by the time he got the house into shape he'd have to go home :lol: )....and dear god...I NEEEEeeeed some help cleaning!!! :ph34r::unsure::lol:

Here's another tidbit of info, John recently quit smoking (cold turkey) yes the boy was dumb and did start smoking after cancer...I always yelled about that but...the girl next to me also quit smoking in the spring and she says since then she catches all the little colds and things she never usually had.

Alot of people do seem to catch quite a few colds/coughs and the like after giving up - I didn't but I know of people who did - weird eh? :blink:

nikki-uk Enthusiast
OMG - Nicola - have you seen the Irish film called Once? Two people have just told me it's about their favorite movie ever - watchign it tomorrow night (wacky Gail is coming over)

WARNING!!! iT'S A MUSICAL!!!! (but have not seen it)

blueeyedmanda Community Regular

Thanks for the info guys, sometimes when he gets sick we wonder....I guess you always do after being that sick.

DingoGirl Enthusiast
WARNING!!! iT'S A MUSICAL!!!! (but have not seen it)

:lol: Well........it's not a REAL musical, is it? :blink: You know, that wretched and quite popular format where SINGING is hideously interjected in the middle of perfectly normal speech patterns

:angry::lol:

My friend Lauren actually saw the two perform in southern California, she was so taken with it.

OMG - here are Slate's unanswered questions of 2007 :wacko:

Open Original Shared Link

and OMG!!!!!!!!!!! :o I am surprisingly upset and saddened at the assassination of Benazir Bhutto!!!!!!!!! they are blaming Al Quaida........now tell me WHY we haven't gone after Bin Laden???????????? :angry: :angry: :angry:

Oooooooops.....I don't think we're supposed to talk about stuff like that here.......

:ph34r:

blueeyedmanda Community Regular

It's ok Susie, what you said wasn't that bad...we aren't judgemental in Sillyville!

CarlaB Enthusiast
..now tell me WHY we haven't gone after Bin Laden???????????? :angry: :angry: :angry:

Oooooooops.....I don't think we're supposed to talk about stuff like that here.......

:ph34r:

Aren't they saying we can't find him? <_<

jerseyangel Proficient
I am surprisingly upset and saddened at the assassination of Benazir Bhutto!!!!!!!!!

I am too, Susie--and you can talk about aything you want to here :)

jerseyangel Proficient

HI JUDY--I SEE YOU!!!!!!!

:D

DingoGirl Enthusiast
Aren't they saying we can't find him? <_<

Yeah. :angry: that's always been the statement, and they're stickin' to it. <_<

I am too, Susie--and you can talk about aything you want to here :)

THAT"S WHY I LOVE THIS PLACE!!!!!!!!!!!!!!

and my sillies!!!!!!!!!

:wub:

HI JUDY--I SEE YOU!!!!!!!

:D

WHAT?????????????? :o

A JUDY sighting????????? where has she been? very scarce, lately :( I hope that means she's feeling fabulous........I don't hear from her too much any more. I miss her!!!!!!!!!!!

OMG OMG OMG!!!!!!!!!!!!!!!!!!

I just made the TASTIEST meat imaginable!!!!!!!!! Just take a flank steak adn marinate it for several hours in organic soy sauce (oh - - I am so sad - some of you can't eat soy here - - so sorry!!!!!! forgive me for this) and wer-she-ster (written phonetically - can't spell it) and broil............DELICIOUS!!!!!!!!!!!

~alex~ Explorer

I hope everyone had a very happy Christmas! I had a lot of fun. I was undiagnosed last Christmas so this year was about a million times better.

My fiance's sister had a baby boy, Joshua, yesterday. He is beautiful and such a Christmas blessing! Ryan's other nieces and nephew call me Auntie Alex and I can't wait until we're married and I'm officially their aunt.

edit: My post seems a little trivial now that I read the preceding Bhutto conversation

CarlaB Enthusiast

There's a Peter sighting, too! Are things finally slowing down a bit? Did you finally get some rest today?

jerseyangel Proficient
I hope everyone had a very happy Christmas! I had a lot of fun. I was undiagnosed last Christmas so this year was about a million times better.

My fiance's sister had a baby boy, Joshua, yesterday. He is beautiful and such a Christmas blessing! Ryan's other nieces and nephew call me Auntie Alex and I can't wait until we're married and I'm officially their aunt.

Alex--I'm so happy you had such a great Christmas this year! You had a rough time there for a while ;)

Congratulations on the new addition to the family :D

psawyer Proficient
There's a Peter sighting, too! Are things finally slowing down a bit? Did you finally get some rest today?

Yesterday was a total day of rest. The store was closed for Boxing Day. Today we went in together to take down the Christmas merchandise displays and decorations that we have been looking at since Halloween. We made a short day of it, leaving about 1:30. Home by two.

Christmas was good. We had my entire family over for a gluten-free dinner

After we had finished the main course, I said something about the meal being entirely gluten-free. My brothers asked about the stuffing for the turkey, and the garlic toast. They had not noticed anything unusual. I explained how we made gluten-free stuffing and gluten-free garlic toast, and that the shortbread about to be served was also gluten-free. Gluten-free does not mean inedible, and Rob and Alan were the proof. On a subliminal level they knew about my dietary needs, but when they ate "my" food they did not notice that is was different. :rolleyes:

And for those who noticed my gravy question, I showed Jacquie the whole thread. I don't know which bits of advice she took, but the gravy was the best we've had in seven years of gluten-free turkey. Thanks to all who contributed.

CarlaB Enthusiast

Oh, yeah, Boxing Day ... here, the 26th is the biggest shopping day of the year, LOL! My kids went to the Mall .... they were there for HOURS ... that was because they had all these gift cards and cash to spend!!! There was no way I was braving the Mall on the 26th! Besides, it was a nice, quiet day at home with only 2 kids and hubby. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fermented foods, Kefir, Kombucha?

    2. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,877
    • Most Online (within 30 mins)
      7,748

    Ruth Margaret
    Newest Member
    Ruth Margaret
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I have read fermented foods like sauerkraut, pickles, Kefir, Kombucha are great for gut health besides probiotics. However I have searched and read about ones that were tested (Kefir, Kombucha) and there is no clear one that is very helpful. Has anyone take Kefir, Kombucha and noticed a difference in gut health? I read one is lactose free but when tested was high in lactose so I would probably try a non dairy one. Thanks
    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.