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You're Know You're A Celiac If...


chgomom

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chgomom Enthusiast

ha...I do read the labels on plain green tea!

:blink:


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  • Replies 112
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GFBetsy Rookie
You know you're a celiac if...

...your bread looks like a moon rock and tastes like dried out Play

Doh.

. . . Hey! What are you eating Play Doh for? Didn't you know it was full of gluten!!!???

:lol::lol::lol:

chgomom Enthusiast

Well....what I did'nt know, up until I got tested is why....depsite having eaten plain vegetables...and fruit...did I get soooo sick after doing a play dough masterpiece with my son.

I swaer...my hands would turn red....and I would be sick with in an hour....

whew....

you know you're a Celiac, when your child starts to correct you in the store.

My son....MOM *shaking his finger when I pick up pita bread longingly* Do you REALLY want the poops???

*lol*

GFBetsy Rookie
...... you buy cookies at a water store

Cody -

Glad you found the store!

suzannabanana Newbie

When travelling, you volunteer to make the coffee/breakfast run every morning because the hotel bathroom has one hell of an echo. :blink: My boyfriend just thought I was being a sweetie.

suzannabanana Newbie

a couple more...

you have photos of the inside of your digestinal tract in your scrapbook.

you knew exactly when Post added barley flavoring back to the Fruity Pebbles and you're ticked.

you pay relatives back east exorbitant shipping rates to send you a $12 six pack of Gluten-free beer.

emcmaster Collaborator

- you cried when you saw your usually careful husband brushing the crumbs off his hands (from making a gluten-containing sandwich) RIGHT OVER the open utensil drawer

- there is a separate cabinet in your kitchen dedicated solely to all your supplements (vitamins, BCQ, digestive enzymes, etc.)

- you hear of a new health food store opening in a city close by and get ridiculously excited only to drive there, spend 2 hours walking around the place, reading labels, only to leave empty handed

- you talk about your disease (not the unpleasant parts) so much to your friends and acquaintances that your husband tells you you need to get another hobby


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Queen Serenity Newbie

These are very funny! I have one to add:

-you celebrate your birthday, without that delicious cake, covered in that sweet, sweet frosting.

Vicki :)

TriticusToxicum Explorer

...you can celebrate poop.

kbtoyssni Contributor

...you take a list of safe drinks to the bar with you. And actually consult it before you order a drink. (In my defense, I was pretty new to celiac at the time).

Kody Rookie
Cody -

Glad you found the store!

The cookies were yummy. :D Thanks for the info.

suzannabanana Newbie

I need that safe drinks list in a bad way.

VydorScope Proficient
Post added barley flavoring back to the Fruity Pebbles and you're ticked.

Not to get off topic, but WHEN did they do that? I have not bought a box in several months... but last I looked it was gluten-free.

Drama-Queen Rookie

And getting back on topic now.....

....Riding the bus home is torture because you have to stand up the whole way, and no one offers you a seat.

My problem here is that I am 20 and don't look like I am in searing pain. Some days I feel like a very stiff old woman who is 185 years old. Mind you I am not that old, nor am I commenting on anyone who has arthritis....my grandma has arthritis and osteoperosis, and I know how unpleasant it is. Getting onto the bus or going up any steps for that matter is a pain (literally). The people on the bus see that I am in pain and look at me with compassion but yet do not give up their seat. Even those who I know aren't in pain because I see them everyday. So I just glare and try to hold back my tears because the pain is so bad. I also try to hide my tendency to wince.

Ho hum....so is the human race <_<

Guest nini
Not to get off topic, but WHEN did they do that? I have not bought a box in several months... but last I looked it was gluten-free.

um yeah, I was wondering about that one too... yikes.

happygirl Collaborator

banana-

https://www.celiac.com/st_prod.html?p_prodi...-44106251741.5d

hope that helps.

You know you are a celiac when you know where every bathroom is in every restaurant in a 25 mile radius. of your house. of your parents house. of your in-laws house. (etc)

lonewolf Collaborator

...You see someone buying rice flour in the bulk section and you just have to ask them if they are gluten intolerant too!

Kassiane Newbie

-You've ever sweettalked exhibitors with safe food at conferences into giving you their leftovers (and ended up leaving with donuts and wannabe Oreos and animal crackers and cereal...)

-You've ever dumped someone's food in the trash since they destroyed YOUR dinner with cross contamination.

-You know how to explain cross contamination to children

-Pizza commercials make you drooooooooool

-You've taken a stool sample, unrequested and unannounced, to a doctor and said "I TOLD you so!"

-You volunteer to write labels for every (homemade) item in a cakewalk, so other people will know if its worth the dollar to go for it.

-You've nearly broken a tooth on your oh so delicious cinnamon rock, er, toast...

Ursa Major Collaborator

..........your favourite grocery store is determined by having a public bathroom. And you hope nobody knows it was you who made it smell so bad. :blink:

.........you risk being caught speeding, because you have to get home to go to the bathroom in time.

........you educate your doctor and nutritionist, instead of them educating you.

.........you have explained to your sister-in-law in detail about making gluten-free gravy at Christmas (who insisted that you could safely eat her cooking, because she understood), and holding back your sobs and smiling instead, telling her it was no problem, when she forgot and thickened it with wheat flour.

blueeyedmanda Community Regular

You get excited when you find a cookie or cake or anything that tastes almost as good as wheat infested food.

Seems like a dream but that was how I felt the first time I had some butterfly cookies by The Grainless Baker

CarlaB Enthusiast

If you're on your way to the grocery and forgot your reading glasses, you turn back and go get them.

It drives you crazy when someone says they completely understand your diet, they did Atkins.

You wipe out the ceramic coffee cup at Panera Bread to be sure there's no flour on it.

You ask the person at Starbucks for a new lid because they just touched yours after touching a danish, nevermind they touched filthy money, it's not germs that worry you.

Your kids ask you if something they ate was gluten free before they give you a kiss.

Your kids think pizza is a good weather food because you'll only order it for them if they can eat it outside.

Your kids know more about the celiac diet than your doctor.

prinsessa Contributor

....people roll their eyes at you when you say "no thank you" to someone's gluten filled desert (trust me....if I could eat carrot cake I would :rolleyes: ...do I really have to explain gluten intolerance to everyone)

.....you go to eat dinner at someone's house and all you eat is plain salad and corn on the cobb

.....your DD asks you if you are sure you can drink a bottle of water since it might have wheat in it (I guess she is used to me checking every label)

Montana Julie Newbie

These are so awesome! I shared them with my friends and family... they're learning! I especially liked the "ramming the cart into the shredded wheat display" one. I've often thought of sabotage in various bakeries... :P

Good to see the humorous side of things. I've finally gotten so adjusted to things now, life is so much better! So for the newly-diagnosed Cody: hang in there!!! It really wasn't as bad as I thought it would be. I feel so good now, that I hardly care about what to eat. Besides, I still get steak (carefully marinated) chocolate, potatoes and (most) ice creams (fortunately, no dairy/lactose problems) - my favorite foods!!

4.5 months since diagnosis, only 1 accidental glutening. So far, so good!

Thanks for the posts!

MT Julie

Kody Rookie
These are so awesome! I shared them with my friends and family... they're learning! I especially liked the "ramming the cart into the shredded wheat display" one. I've often thought of sabotage in various bakeries... :P

Good to see the humorous side of things. I've finally gotten so adjusted to things now, life is so much better! So for the newly-diagnosed Cody: hang in there!!! It really wasn't as bad as I thought it would be. I feel so good now, that I hardly care about what to eat. Besides, I still get steak (carefully marinated) chocolate, potatoes and (most) ice creams (fortunately, no dairy/lactose problems) - my favorite foods!!

4.5 months since diagnosis, only 1 accidental glutening. So far, so good!

Thanks for the posts!

MT Julie

Hey now! Why do you feel so good and not me?! ARG!! <_<

jk, I feel a lot better now... but it's only been three days (I'd like to say fifth, but I recently found out that I got glutened on my second day ;;)

So like, is your mind clear, are you energetic as heck and all the good stuff? :P

jkmunchkin Rising Star

ROFLMAO!!!

.... You get on line at the sandwich station at work and inform the guy behind the counter, "don't worry we're gonna work through this together." as he looks amazingly puzzled as you instruct him step by step (from putting down a paper and changing gloves) how to make a lettuce wrap.

..... Your friend invites you over for your birthday and want to make you a gluten free birthday cake but you plead with them not to, because although you're trying to seem like you don't want to put them through the hassle, you're secretly terrified there will be cross contamination.

..... You talk about endoscopy's and colonoscopy's like these are normal everyday occurences that everyone gets nearly every year. (I had a few before finally getting diagnosed).

..... You've refused things as "simple" as gum or sucking candies because you don't know if they're safe.

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    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
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