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Celiac Disease And Pneumonia


Mango04

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Mango04 Enthusiast

I could be imagining this but I think I've read that there's some sort of connection between celiac disease and pheumonia? Can anyone tell me more about this...

Thanks!


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georgie Enthusiast

Is there ? I have had pneumonia 3x. First was when I was 11. Always a viral type that wiped me out for weeks.

nikki-uk Enthusiast

The pneumococcal vaccine can be recommended for coeliacs as they may suffer from spleen problems

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hannahsue01 Enthusiast

I am 24 and have had pnemonia 3x. In 5th 8th and 12th grades. I had a shot after my epesode in 8th grade but still got it one more time leaving me gasping for air with a trip to the er and then admission. I donno if there is a link or not. It would be interesting to know though.

trents Grand Master
The pneumococcal vaccine can be recommended for coeliacs as they may suffer from spleen problems

Open Original Shared Link

I wasn't aware that celiac disease can predispose one to spleen problems. Anybody have a link for more info on that issue?

I have had pneumonia twice, once in my early 30's and again just a few weeks ago and I'm now 55. Neither case was particularly intense and I was over them quickly. This last time I wouldn't even have known it except for the pleurisy pain. I didn't even run a fever. Films showed I had a little lower left lobe infiltrate, though.

Steve

tarnalberry Community Regular

I don't think there's a good understanding for the entirety of the mechanism of the relationship, but it's there.

chrissy Collaborator

the incidence of IgA deficiency is higher in celiacs than it is in non-celiacs. maybe this has something to do with it??


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chgomom Enthusiast

Well alot of us...have some degree of aspiration.....with the reflux some of us get in the middle of th enight particularly. which is why you might wake up and cough etc....

I dunno if anyone has that here...but some of my friends do...

theprincess Newbie

I get pnuemonia at LEAST two times a year. I wonder if the antibiotics have gluten in them....hmmm....

2kids4me Contributor

The connection is related to autoimmune disorders in general - because autoimmune disease is not fully understood. 1) Patients have an immune system that can be altered by conditions like a viral or bacterial infection (they can serve as a "trigger" for further immune difficulties 2) a person with an existing disease may get sicker with pneumonia than a person without immune disease.. (a diabetic will have loss of diabetic control because of a bacterial/viral illness, a celiac may get an exacerbation of neurologic or GI symptoms, etc)

Most people with a chronic illness are eligible for pneumoccal pneumonia shots if they choose.

There are over 60 different autoimmune conditions which would qualify as chronic and thus the person would be eligle for the vaccine. That's where celiac fits in.

Hope this helps :)

mouse Enthusiast

Yes Ashley, you have to ask about each med at the pharmacy to make sure there is not gluten in the pills you will be taking. Some pharmacies don't know the answer and you have to call the drug manufacture to find out. There are also some links on this forum to check the gluten safety of drugs. I have a couple of doctors that write two of the meds on the RX, with the first one being the preferred one. That way I can check and make sure that one of them is at least gluten free.

chewymom Rookie
Well alot of us...have some degree of aspiration.....with the reflux some of us get in the middle of th enight particularly. which is why you might wake up and cough etc....

I dunno if anyone has that here...but some of my friends do...

Oh uggh. Don't even tell me this. I have a son who had pneumonia once a month from age 6-14 months, when it was finally discovered that he was aspirating reflux into his lungs. He finally had surgery for reflux at 18 months. Now I'm wondering if he should be tested. I know eventually the whole family should be, but I just don't want to deal with this!!! :(

Guest Kathy Ann

Interesting information. 3 years ago I had a horrendous bout with pneumonia. 105 fever for days. It was the first time for me, but it was bad and came completely out of the blue. Took me a LONG time to get over it too.

Mango04 Enthusiast

.

2kids4me Contributor

So they couldnt even tell if it was viral bacterial etc? Usually clincial history and xrays can at least put it into a general category.

For info on pneumonia:

Open Original Shared Link

Atypical pneumonia due to Mycoplasma and Chlamydophila usually cause milder forms of pneumonia and are characterized by a more drawn out course of symptoms unlike other forms of pneumonia which can come on more quickly with more severe early symptoms. Mycoplasma pneumonia often affects younger people and may be associated with symptoms outside of the lungs (such as anemia and rashes), and neurological syndromes (such as meningitis, myelitis, and encephalitis). Severe forms of Mycoplasma pneumonia have been described in all age groups.

In up to 65% of cases, the organism (such as bacteria or virus) that is causing pneumonia is not identified even with testing.

Pneumonia is more likely to occur in people whose immune system is weakened by an existing illness, such as the flu, cancer, or AIDS, and in people with chronic conditions, such as sickle cell disease, heart disease, diabetes, kidney disease, asthma, chronic bronchitis, chronic obstructive pulmonary disease (COPD), emphysema, or cystic fibrosis.

Since ingesting gluten may have caused physcial stress on the body it is possible that it made you more susceptible to any of the many organisms that can cause pneumonia. Many otherwise healthy people contract pneumonia every year with fall being the the most common time.

  • 4 years later...
GlutenFreeManna Rising Star

This is an old thread, but I wanted to bring this topic up again. Last month I had brochitus that now has turned into walking pneumonia. The same thing happened to me about four years ago. the only difference is four years ago I was not gluten free and I was in the hospital with full out pneumonia. This time I have been gluten free for ten months and the pneumonia is not bad enough to hospitalize me. I wonder if while my immune system is still compromised enough for me to get sick, it is slightly better than it was four years ago due to being gluten free. Has anyone been on the gluten free diet for many years (and used to get pneumonia often prior to going gluten free) noticed a decrease in the severity or number of cases they got the longer they were gluten free?

  • 1 year later...
MAasaMom Newbie

I know this is an old thread...but my brother who has yet to be tested for celiac disease has had a number of bouts with pneumonia - the last of which landed him in the ICU. As a child I had chronic asthmatic bronchitis - and pneumonia a number of times...anemia, weird autoimmune eye problems, I could go on and on. In my 40's my resp. issues (never have been a smoker) started to haunt me...getting the flu vaccine on two separate years with a year in between lead to near pneumonia. Told my brothers to get tested for celiac-hopefully they will listen. We are all in and around the age that health issues start to crop up...I think my diagnoses and gluten-free diet led to my first healthy winter this past year in a long, long time. So yes, the immune system interference with celiac disease and who knows GS-gluten sensitivity as well can lead to a multitude of infection issues.

Bronchial pneumonia is listed on the UChicago list of disorders assoc. with celiac disease: Open Original Shared Link

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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