Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Heard Of Internal Bleeding Causing Celiac Onset, Or Vice Versa? (my Lung Just Collapsed!)

Aerin328

Recommended Posts

Aerin328 Apprentice
Aerin328
Posted

Just wanted to ask a quick question and wanted to comment regarding my absence on these forums lately. Three weeks ago my left lung spontaneously collapsed, caused by internal bleeding into the chest cavity. I lost one third of my blood out my chest and had to have a chest tube in for six days. I was in the hospital for eight days and have been in the care of family for the last two weeks. I am recovering!

Just a brief story about being a celiac on the hospital diet: My wonderful celiac partner Angelle (esthesio_vivi) actual brought gluten free noodles to the hospital kitchen for them to prepare for me. They lost the noodles and send up wheat noodles instead. After we calmly complained they sent up their dietician, who recommended a milk-based calorie drink to help keep my weight up- even though my record showed I was casein intolerant. The dietician apparently did not know casein was the protein found in milk!

Also another piece of news, when I emerged from the hospital I managed to stumble down onto one knee and I proposed to Angelle (esthesio_vivi on this forum)! She said yes – and now we are a celiac couple engaged! Crazy stuff over the last few weeks.

Anyway, is anyone familiar with any kind of connection at all between collapsed lung (hemo-pneumothorax) and/or other cause of internal bleeding and the onset of celiac disease? The doctor doesn’t agree, but I am thinking it is possible I may have had the bleeding back in April which may have stressed my body and caused the celiac to finally onset (at age 26). Did anyone else have any similar occurrence or injury that motivated celiac to finally emerge? I just think it’s too strange a coincidence that six months ago I was perfectly healthy but since then I’ve been dealing with crazy celiac’s and now a collapsed lung all in the same half year.

As always, thank you for taking the time to view this post!

Christian

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

I don't know the answer to your question, I just wanted to say CONGRATULATIONS!!!!!!!

I'm also glad you're doing better.

mouse Enthusiast
mouse
Posted

I also don't know the answer, but I to want to say CONGRATULATIONS.

Ursa Major Collaborator
Ursa Major
Posted

Wow, Christian, you've had some terrible, and some great things happen to you this last while!

First of all, Congratulations on your engagement!

How exciting, and you can be gluten-free together! Of course, you must realize that it's very likely that all of your kids will have celiac disease as well, right? How about posting a picture of you and Angelle, either as your avatar, or through a link? I am sure I'm not the only one who wants to see a pic!

I believe it is quite possible that the celiac disease caused the internal bleeding, as it damages your intestines. I guess the damage had to get really bad for you to finally get diagnosed with celiac disease. I am very glad that you're recovering, it sounds like you were in pretty bad shape.

Ugh, isn't it awful how clueless hospital dieticians can be? Of all people, they should understand about ALL special diets. I can't understand why hospitals won't make sure they hire dieticians who won't make patients even sicker. I guess it's all about money. Good dieticians won't work for the probably poor salary hospitals offer.

jerseyangel Proficient
jerseyangel
Posted

I'm sorry to hear about your collapsed lung--not to mention the scary experience of having to eat in the hospital! I wish I knew something about this condition, but I don't.

Anyway, congratulations to both of you--what wonderful news :)

esthesio-vivi Rookie
esthesio-vivi
Posted
How exciting, and you can be gluten-free together! Of course, you must realize that it's very likely that all of your kids will have celiac disease as well, right? How about posting a picture of you and Angelle, either as your avatar, or through a link? I am sure I'm not the only one who wants to see a pic!

Thank you, we're excited! Here's a pic of christian and I :D

Open Original Shared Link

and yes, we're totally aware that if we have kids Celiac disease is almost certain. At least they will be blessed with not having to go through a lifetime of mysterious illness before figuring it out like many Celiacs.

AndreaB Contributor
AndreaB
Posted

Congratulations on your engagement!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

I'm not sure about a celaic connection but I know that is a painful thing to have happen to you. My son-in- law had that happen to him about ten years ago..I never seen him cry until that day..I'm so glad that you are recouping in the loving arms of family.And what a beautiful couple you make.....

Your children will be lucky that they may never have to change from wheat to gluten free. They will just grow up with gluten-free.....

blessings

mamaw

Terch Apprentice
Terch
Posted

I know that Crohns disease can affect the lungs as well as the intestinal tract.

You may want to look into that.

Congratulations!!!!!

penguin Community Regular
penguin
Posted

CONGRATULATIONS!!! Congrats to you both and I hope you have a very speedy recovery!

Guest nini
Guest nini
Posted

I don't know the answer to your question either, but I just wanted to say CONGRATS! on your engagement! What a cute couple you are!

That is so typical of hospital dieticians... sorry about that whole experience, that's just sucky that they lost your great gluten-free noodles that your sweetie brought up to you.

Ursa Major Collaborator
Ursa Major
Posted
Thank you, we're excited! Here's a pic of christian and I :D

Open Original Shared Link

and yes, we're totally aware that if we have kids Celiac disease is almost certain. At least they will be blessed with not having to go through a lifetime of mysterious illness before figuring it out like many Celiacs.

Hi Angelle, I don't remember seeing any of your other posts, its good to see you! Congratulations to you too, and thanks for posting the picture, you look good together!

I'm glad you realize that your kids will likely have celiac disease as well, you might as well just have a gluten-free house, it will make life easier, anyway. And I didn't mean it as a bad thing, because they'll be perfectly healthy without eating gluten. Just wanted to make sure you understand that.

Aerin328 Apprentice
Aerin328
Posted
  • Author

Thank you everyone for the congratulations. We are excited! The past few weeks have been a strange mix of pain and celebration. We're looking forward to putting all this celiac and pneumothorax crazyness behind us and starting a wonderful healthy gluten free life together. :) It's just, again, so strange to me that within the same 6 months I would be both stricken with the wrath of celiac's disease and almost die from a collapsed lung. If anyone else reads this post and knows of any kind of connection, please comment. Thank you!

covsooze Enthusiast
covsooze
Posted

Not sure if this is what you mean but lots of people here have been able to identify a stressful life situation (often health related) as a trigger for the onset of their celiac disease:

Open Original Shared Link

HTH

And CONGRATULATIONS! :D Great to hear about your engagement! Angelle, you look so much like one of my friends, it's uncanny! Lets hear about wedding plans :D

evie Rookie
evie
Posted
Thank you everyone for the congratulations. We are excited! The past few weeks have been a strange mix of pain and celebration. We're looking forward to putting all this celiac and pneumothorax crazyness behind us and starting a wonderful healthy gluten free life together. :) It's just, again, so strange to me that within the same 6 months I would be both stricken with the wrath of celiac's disease and almost die from a collapsed lung. If anyone else reads this post and knows of any kind of connection, please comment. Thank you!

So glad you are better!! A rough time behind you, so time for some better news like engagement, congratulations to the happy couple!! :) evie Good to see you back on the forum and your fiance.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
    2. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines? Did it work ?? Thank you !!
    3. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
    4. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do...
    5. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,877
    • Most Online (within 30 mins)
      7,748
    Christian Konig
    Newest Member
    Christian Konig
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Methylprednisone treatment for inflammation?

      By Colleen H · Posted

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.