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Scared

Jo.R

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Jo.R Contributor
Jo.R
Posted

My blood test said I have celiac. I'm waiting for an endoscopy. The more I read the more worried I get. My symptoms seem mild compared to what I've read. I had thought that I would just have to watch how much gluten I took in. After reading several posts, I am beging to wonder. People are worried about cross contamination, and getting cancer from the cross contamination. Is it really that serious for all people who have celiac?

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CarlaB Enthusiast
CarlaB
Posted

Welcome to the board.

Don't be scared. Celiac is serious, but it's not life-threatening if you are on a gluten-free diet. It can cause lots of health problems if untreated.

It is important to know how all your food is prepared to avoid contamination as even a crumb is too much.

In the beginning, do not look at what you can't have and do not try to find substitutes for everything you eat now. Rethink the way you eat ... it's much less frustrating! Start out with meat, chicken, fish, eggs, nuts, fruit, veggies, potatoes, rice ... it's all naturally gluten-free and you will most likely heal faster and feel better more quickly eating healthy, whole foods for a while.

Then figure out if processed foods you currently use are already gluten-free. You can ask here. For example, Lays Stax are made on dedicated lines and are gluten-free. Kraft products are clearly labeled.

To that add gluten-free substitutes of food you like. I use a lot of Tinkyada Pasta and Kinnikinnick bread, donuts, and pizza crusts.

DO NOT go gluten-free until after your biopsy. Don't even cut back a little. You have to be consuming gluten for it to be accurate.

Guhlia Rising Star
Guhlia
Posted

I don't have much to add. I just wanted to say welcome to the forum!

oceangirl Collaborator
oceangirl
Posted
I don't have much to add. I just wanted to say welcome to the forum!

Welcome and fear not! Wishing you well.

lisa

Jo.R Contributor
Jo.R
Posted
  • Author

Thank-you!

KaitiUSA Enthusiast
KaitiUSA
Posted

If you follow the diet diligently you will be fine.

Annie/NM Apprentice
Annie/NM
Posted

I have really mild symptoms too but my bloodwork came back positive and my 3 year old son was diagnosed in June. He has had amazing changes since the diet so we will see what my biopsy says (it is tomorrow at 4:00 pm). With me, because I have such mild symptoms, I needed to do the biopsy to prove it to myself. I don't love a lot of the food my son likes that is gluten free so I think I was in denial. So we shall see. Good luck to you!

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IrishKelly Contributor
IrishKelly
Posted
My blood test said I have celiac. I'm waiting for an endoscopy. The more I read the more worried I get. My symptoms seem mild compared to what I've read. I had thought that I would just have to watch how much gluten I took in. After reading several posts, I am beging to wonder. People are worried about cross contamination, and getting cancer from the cross contamination. Is it really that serious for all people who have celiac?

OH, you poor thing, don't be scared...it's just a food allergy! If you follow the diet you will be fine. If you do extevsive research, you will see that it's older people who don't stick to the diet that end up with those horrible problems...so relax and enjoy your new healthy diet ;)

Lisa Mentor
Lisa
Posted
OH, you poor thing, don't be scared...it's just a food allergy! If you follow the diet you will be fine. If you do extevsive research, you will see that it's older people who don't stick to the diet that end up with those horrible problems...so relax and enjoy your new healthy diet ;)

First of all, who do you think is older :rolleyes: Me, oh surely not!!!!! <_<

Celiac Disease in not an ALLERGY, and let's not make any bones about it. Celiac is an INTOLLERENCE with the proteins in the glutens in wheat, barley, rye, malt and some oats, that cause and autoimmune reaction in our body (the small intestines).

The dx can be one of concern in the beginning, but the best part of it is that it can be healed by strict diet control........and the best part of it is, no more medical bills. We have all taken one step at a time and with wonderful support here.......lots of us have made it over the mountian. You will as well. :)

Welcome here. We have good people and great anwsers and a whole lot of experience. You can find a home here.

I am sure that you have many questions and the slightest is always welcome. We have all been where you are now.........so there is an understanding.

Hugs to you.

Lisa

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    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By HAUS · Posted

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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