Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scared

Jo.R

Recommended Posts

Jo.R Contributor
Jo.R
Posted

My blood test said I have celiac. I'm waiting for an endoscopy. The more I read the more worried I get. My symptoms seem mild compared to what I've read. I had thought that I would just have to watch how much gluten I took in. After reading several posts, I am beging to wonder. People are worried about cross contamination, and getting cancer from the cross contamination. Is it really that serious for all people who have celiac?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Welcome to the board.

Don't be scared. Celiac is serious, but it's not life-threatening if you are on a gluten-free diet. It can cause lots of health problems if untreated.

It is important to know how all your food is prepared to avoid contamination as even a crumb is too much.

In the beginning, do not look at what you can't have and do not try to find substitutes for everything you eat now. Rethink the way you eat ... it's much less frustrating! Start out with meat, chicken, fish, eggs, nuts, fruit, veggies, potatoes, rice ... it's all naturally gluten-free and you will most likely heal faster and feel better more quickly eating healthy, whole foods for a while.

Then figure out if processed foods you currently use are already gluten-free. You can ask here. For example, Lays Stax are made on dedicated lines and are gluten-free. Kraft products are clearly labeled.

To that add gluten-free substitutes of food you like. I use a lot of Tinkyada Pasta and Kinnikinnick bread, donuts, and pizza crusts.

DO NOT go gluten-free until after your biopsy. Don't even cut back a little. You have to be consuming gluten for it to be accurate.

Guhlia Rising Star
Guhlia
Posted

I don't have much to add. I just wanted to say welcome to the forum!

oceangirl Collaborator
oceangirl
Posted
I don't have much to add. I just wanted to say welcome to the forum!

Welcome and fear not! Wishing you well.

lisa

Jo.R Contributor
Jo.R
Posted
  • Author

Thank-you!

KaitiUSA Enthusiast
KaitiUSA
Posted

If you follow the diet diligently you will be fine.

Annie/NM Apprentice
Annie/NM
Posted

I have really mild symptoms too but my bloodwork came back positive and my 3 year old son was diagnosed in June. He has had amazing changes since the diet so we will see what my biopsy says (it is tomorrow at 4:00 pm). With me, because I have such mild symptoms, I needed to do the biopsy to prove it to myself. I don't love a lot of the food my son likes that is gluten free so I think I was in denial. So we shall see. Good luck to you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishKelly Contributor
IrishKelly
Posted
My blood test said I have celiac. I'm waiting for an endoscopy. The more I read the more worried I get. My symptoms seem mild compared to what I've read. I had thought that I would just have to watch how much gluten I took in. After reading several posts, I am beging to wonder. People are worried about cross contamination, and getting cancer from the cross contamination. Is it really that serious for all people who have celiac?

OH, you poor thing, don't be scared...it's just a food allergy! If you follow the diet you will be fine. If you do extevsive research, you will see that it's older people who don't stick to the diet that end up with those horrible problems...so relax and enjoy your new healthy diet ;)

Lisa Mentor
Lisa
Posted
OH, you poor thing, don't be scared...it's just a food allergy! If you follow the diet you will be fine. If you do extevsive research, you will see that it's older people who don't stick to the diet that end up with those horrible problems...so relax and enjoy your new healthy diet ;)

First of all, who do you think is older :rolleyes: Me, oh surely not!!!!! <_<

Celiac Disease in not an ALLERGY, and let's not make any bones about it. Celiac is an INTOLLERENCE with the proteins in the glutens in wheat, barley, rye, malt and some oats, that cause and autoimmune reaction in our body (the small intestines).

The dx can be one of concern in the beginning, but the best part of it is that it can be healed by strict diet control........and the best part of it is, no more medical bills. We have all taken one step at a time and with wonderful support here.......lots of us have made it over the mountian. You will as well. :)

Welcome here. We have good people and great anwsers and a whole lot of experience. You can find a home here.

I am sure that you have many questions and the slightest is always welcome. We have all been where you are now.........so there is an understanding.

Hugs to you.

Lisa

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,781
    • Most Online (within 30 mins)
      7,748
    BH1951
    Newest Member
    BH1951
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • nanny marley
      Manitol and mri

      By nanny marley · Posted

      Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little,  I get a weird throat and ears and I've read it is a similar substance , not sure if anyone has had one of these scans or could give me some advise on the drink prep thanks in advance 😄
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Ok thank you.  Me either 
    • Colleen H
      Celiac attack confusion and anxiety

      By Colleen H · Posted

      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      Gluten free stuff

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.