Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Know How Evie Is?

Judyin Philly

Recommended Posts

Judyin Philly Enthusiast
Judyin Philly
Posted

Hi All

Alot of us knew she had a dr apt on Nov 6th and don't think she's posted since then.

Does anyone know how she is or have contact info on her?

judy in philly

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted

Judy,

Have you heard anything?? There was an Evie "sighting" a short time ago...but no posts. Maybe she is back at home??

AndreaB Contributor
AndreaB
Posted

I hope she's home.

lindalee Enthusiast
lindalee
Posted
I hope she's home.

me to.

Judyin Philly Enthusiast
Judyin Philly
Posted
  • Author

I just heard from Evie's daughter Shirley,

I haven't writen her back yet as wanted to post this ASAP.

I'm hoping she won't mind me posting her email to me.

I'm going to write her and ask her if she has time to print out the messages we write to Evie on this thread and take them to her in the hospital. I think they will cheer her up. Jim did that for me when I want in the hospital and it sure was wonderful.

Here is the email--

Hi-

Evie (My Mom) is in the hospital in Missouri with a serious intestinal infection, C-Difficile and there has been a problem with her kidney (she has only one). The infection has caused problems with the kidney, plus several other areas. She hopes to get to come home by mid week next week. The C-Dif is a very strong and BAD bacteria that takes over when too many antibiotics have been prescribed. She is doing better and the kidney is doing better - just a slow long process. I know she misses her friends on the forum and am sure when she gets home, you will be hearing from her again. I will let her know you are praying for her and thinking of her. Shirley

At least we know that she is in the hospital and her daughter is there.

Judy

Green12 Enthusiast
Green12
Posted
Here is the email--

Hi-

Evie (My Mom) is in the hospital in Missouri with a serious intestinal infection, C-Difficile and there has been a problem with her kidney (she has only one). The infection has caused problems with the kidney, plus several other areas. She hopes to get to come home by mid week next week. The C-Dif is a very strong and BAD bacteria that takes over when too many antibiotics have been prescribed. She is doing better and the kidney is doing better - just a slow long process. I know she misses her friends on the forum and am sure when she gets home, you will be hearing from her again. I will let her know you are praying for her and thinking of her. Shirley

At least we know that she is in the hospital and her daughter is there.

Judy

Judy, thanks so much for sharing this with us. We have all been so worried and concerned about Evie. If you do e-mail her daughter back let her know that her mom is in our thoughts.

AndreaB Contributor
AndreaB
Posted

Thank you so much for the update Judy.

We will continue to keep Evie in our prayers.

Evie we miss you and love you. We'll be here when you get home. :)

:wub::wub::wub:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rinne Apprentice
rinne
Posted

Evie, sending :wub:, with prayers that you will be well soon.

DingoGirl Enthusiast
DingoGirl
Posted

Dearest Evie......prayers for strength to kick that C. Diff in the you-know-what, and prayers for your strengthening and rejuvenation. I had C. diff once......I know how painful it is. We miss you!

God bless - - :)

lindalee Enthusiast
lindalee
Posted

Evie.

So sorry about this happening to you. Prayers that you will get through this soon and be well. :wub:

Judyin Philly Enthusiast
Judyin Philly
Posted
  • Author

Evie

We're so greatful to Shirley for letting us know your in the hospital.

We are all praying for you here.

We miss your smiling 'avatar' at the computer.

I'm glad your daughter can be with you now.

We'll be so looking forward to the time your well and posting with us again soon.

Love Hugs and Prayers coming your way.

judy in philly

Rachel--24 Collaborator
Rachel--24
Posted

Evie,

I'm so glad that your sister has sent an email and that we were able to find out how you're doing. We all miss you and were very worried. Lots of hugs and prayers for you everyday. :wub: I know you are strong and will beat this so you can come home. We cant wait to see you back on the thread....we'll all be here when you get home. Hope those doctors are taking good care of you. :)

((((((hugs))))))))

:wub: -Rachel

jerseyangel Proficient
jerseyangel
Posted

Judy--Thanks for letting us know!

Evie,

Please feel better real soon! We miss you and are thinking about you and praying for a speedy recovery. :)

nikki-uk Enthusiast
nikki-uk
Posted

Evie -Glad Judy tracked you down - I've been thinking of you.

Hope you feel better soon and wishing you a speedy recovery!! :):)

dlp252 Apprentice
dlp252
Posted

We really miss you Evie! I am praying that you get well very soon!

mouse Enthusiast
mouse
Posted

Miss you Evie and am sending get well quick wishes and prayers to you.

Mtndog Collaborator
Mtndog
Posted

Praying for your speedy recovery and health. i had C diff this summer anad it was horrid. Sorry you're dealing with this and I hope they are taking very good care of you. Hugs, Beverly

Judyin Philly Enthusiast
Judyin Philly
Posted
  • Author

Hi Friends.

This is the correspondence that Shirely and I had tonight.

I'm going to send the 'print topic' in a email for her to take to her mom as it wasn't on the main view topics tonight..

I'll try to keep an eye on it tomorrow and try to 'bump' it up for people to see who may not have been on line over the weekend.

love judy

**********************

Dear Shirley,

Thank you so very very much for posting when I know your so tired.

It means alot to all of us who care so much about your Mom.

She is a very strong lady but this is alot to try and fight off. I pray she can get home on Tuesday. She'll heal faster there and of course eat safely there. It's such a shame that the hospitals just don't 'get it' in helping hospitalized patients eat gluten-free food with no cross contamination. Have you been taking some food to her?

I just wish we knew this earlier, we could have sent some 'gluten-free' care baskets to her.

Home made soup from your Mom's freezer (if she has some made up) in a thermos would be good and mabe some hard boiled eggs. Shoot, just wish we closer to help you out. Well, Let's pray that she'll be out on Tuesday so she can eat safely.

Maybe others will have some ideas.

Tell you what, I'll do a post of the thread and send it in a email on the forum so it will be easy for you to just print and take to her. This way it will be so easy for you.

I'll go and post this now as there have been alot of well wishes posted.

Will you be staying on when your Mom gets out of the hospital?

Not sure where you live.

Take care and thanks for the post.

prayers coming for you and Evie.

judy

****************************8

Hi Judy-

This is Shirley-Visited Mom today and she has elevated blood pressure and is taking another Rx for that. She is swimming in pills! She appreciated your inquiry and is anxious to get home, maybe by Tuesday we hope. She is still very weak and not getting much she can eat at the hospital. Her cold seemed better and she is on oxygen but don't know if she will have that at home or not. Since her breathing is labored, maybe she will. Doc says she will be wearing the catheter home-Joy! Got to beat this bladder infection plus the nasty C-diff. Doc mentioned a pacemaker, but if the new heart Rx works, no pacemaker. Lots of health issues for her, but she is trying to be strong. Your thoughts and prayers help her and I will tell her you sent another reply. Go ahead and post and let others know how she is doing. She appreciates this forum a lot.

Judyin Philly Enthusiast
Judyin Philly
Posted
  • Author

bump- :)

AndreaB Contributor
AndreaB
Posted

Thanks so much for another update Judy and Shirley.

Evie,

We love you and look forward to you coming home. Our prayers and thoughts are with you. :wub:

Judyin Philly Enthusiast
Judyin Philly
Posted
  • Author
bump- :)

BUMP :rolleyes:

nikki-uk Enthusiast
nikki-uk
Posted

Evie, still thinking of you and rooting for you to get better ASAP!! :)

Hope you get to come home soon!! :):):)

lindalee Enthusiast
lindalee
Posted

Evie - you're in my thoughts and prayers. :wub:

dlp252 Apprentice
dlp252
Posted

Thanks for the update Judy!!! Still praying for her!

jerseyangel Proficient
jerseyangel
Posted

Thanks so much for this Judy :)

Evie--We're all here thinking about you and sending positive get-well energy :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy. Benfotiamine and other forms of Thiamine do not bother me at all. There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes. The sulfur in thiamine is in a ring which does not trigger sulfa allergy...
    2. Wheatwacked
      - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped. It sounds more like you are suffering from malnutrition. Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here. Malnutrition...
    3. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well. I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given...
    4. Wheatwacked
      - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

      Hello @Scatterbrain, Are you getting enough vitamins and minerals. Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D. By the way you should get your mom checked for celiac disease. You got it from your mom or dad. Some studies show that following a gluten-free diet can stabilize or improve symptoms...
    5. Scott Adams
      - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge

      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,290
    • Most Online (within 30 mins)
      7,748
    Joycemarie
    Newest Member
    Joycemarie
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
      Related issues

      By Wheatwacked · Posted

      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      My only proof

      By NanceK · Posted

      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Feel like I’m starting over

      By Wheatwacked · Posted

      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Recovery from gluten challenge

      By Scott Adams · Posted

      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.