Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What We're Up Against...


CMCM

Recommended Posts

CMCM Rising Star

So I went to a restaurant tonight...I asked the server to check with the cook about whether or not the veal piccata contained a wheat ingredient....she came back and happily told me that NO, there's no wheat on the chicken, only a bit of white flour dusted on the veal before cooking. Sigh...I had to tell her that the white flour is made from wheat!!! This came from the cook, but the server was also equally clueless!! My conclusion: Restaurants are often a real crap shoot!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Generic Apprentice

my favorite is when they ask what kind of bread would you like. I say no thanks, I can't have wheat. The response is usually oh, well how about white bread then. What do they think it is made out of -marshmallow fluff? Ignorance is bliss.

-Laurie

Nantzie Collaborator

I was at the drugstore the other day. One of the things I bought was Easy Cheese, most of which is gluten-free. The checker there is an older woman; a sweet lady who is probably in her mid 70's. She noticed that I was buying Easy Cheese and told me that it was one of her favorites too. She said that she put it on Wheat Thins.

I mentioned (because that's what I do now...) that my kids and I can't eat wheat, but we get special crackers and eat it on those.

She said, Oh yea I've had it on plain crackers too. It's really good isn't it?

I just smiled and nodded.

Now, it doesn't really surprise me anymore when someone my age (36) or younger doesn't know where their food comes from. But when a much older person has no clue what food is made from, it really surprises me. :rolleyes:

Nancy

Nancym Enthusiast

Yeah, I was in a fast food restaurant once trying to explain to people who barely speak english that I couldn't eat wheat, they didn't know what wheat was, so another worker interpreted and they STILL didn't know what wheat was. *sigh* And they let people who don't even know what food is made out of vote and operate heavy machinery? :P

Electra Enthusiast
my favorite is when they ask what kind of bread would you like. I say no thanks, I can't have wheat. The response is usually oh, well how about white bread then. What do they think it is made out of -marshmallow fluff? Ignorance is bliss.

-Laurie

LOL Laurie, before I found out about Celiac I would have done the same thing. I am 34, but could never stand wheat bread, and I had no clue that white bread or my crackers were made out of wheat (I did know that wheat thins were made of wheat though lol). I just never looked at the lables for that. I've read a lot of lables in my time too but I always looked for fat and protein and things like that, but then after I found Celiac I realized that my flour had always said bleached flour so it all made sence after that. I am a very educated women too, but my interest was not in what my Ritz Crackers were made out of LOL. All I cared about was that they taste good hehe!!

Granny Garbonzo Apprentice

You wouldn't believe how many times I've said "I can't eat wheat" and the waiter/waitress says "Oh that's ok, we don't have wheat bread, we have white bread."

Even what is obvious to most of us has sometimes never occurred to others.

Granny Garbonzo Apprentice
Yeah, I was in a fast food restaurant once trying to explain to people who barely speak english that I couldn't eat wheat, they didn't know what wheat was, so another worker interpreted and they STILL didn't know what wheat was. *sigh* And they let people who don't even know what food is made out of vote and operate heavy machinery? :P

When the language barrier is there, I've started going inside and asking other customers if they can interpret for me. It works much of the time. And I've found that many of the people waiting on you speak better english than I do, but it is convenient to act as theough they are not able to understand. And some just like to play with us who are not multi-lingual. I know, I was married to a multi-lingual for many years.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zansu Rookie
When the language barrier is there, I've started going inside and asking other customers if they can interpret for me. It works much of the time. And I've found that many of the people waiting on you speak better english than I do, but it is convenient to act as theough they are not able to understand. And some just like to play with us who are not multi-lingual. I know, I was married to a multi-lingual for many years.

that's why I didn't eat in the fast food restaurants AT ALL when I lived in the DC area.

trigo y pan son muy mal por me. solamente carne, por favor.

but it still couldn't guarantee they got it (and I didn't!) :lol:

Generic Apprentice
LOL Laurie, before I found out about Celiac I would have done the same thing. I am 34, but could never stand wheat bread, and I had no clue that white bread or my crackers were made out of wheat (I did know that wheat thins were made of wheat though lol). I just never looked at the lables for that. I've read a lot of lables in my time too but I always looked for fat and protein and things like that, but then after I found Celiac I realized that my flour had always said bleached flour so it all made sence after that. I am a very educated women too, but my interest was not in what my Ritz Crackers were made out of LOL. All I cared about was that they taste good hehe!!

I suppose if you don't have to worry about it, then it wouldn't cross most people's minds. Good point, I never thought about it that way. :ph34r:

I thought it was common knowledge. My mom taught me all about balanced meals and what everything was made out of by the time I was 4 years old. We had cards to help me learn the food groups and everything. I guess I had a overly health conscience mom? LOL

-Laurie

Sillyyakdidi Apprentice
my favorite is when they ask what kind of bread would you like. I say no thanks, I can't have wheat. The response is usually oh, well how about white bread then. What do they think it is made out of -marshmallow fluff? Ignorance is bliss.

-Laurie

lol omg that is my favorite too, when i say,at chipotle, i can't have wheat, they say, no these are flour tortillas, youa re fine.... they say that at chipotle, which is a great place to eat gluten-free, and practice your spanish too, but good luck trying to explain the flour has wheat thing to someone who doesn't speak english. (I'm a spanish major, so now i just go in and nicely explain in spanish and they're always great!) lol yes, too bad white bread isn't made of marshmallow fluff...then we could eat it, right?

gfp Enthusiast
Yeah, I was in a fast food restaurant once trying to explain to people who barely speak english that I couldn't eat wheat, they didn't know what wheat was, so another worker interpreted and they STILL didn't know what wheat was. *sigh* And they let people who don't even know what food is made out of vote and operate heavy machinery? :P

Unfortunately this seems to be the trend, along with the fact that its becoming increasingly "cool" to be ignorant?

Sometimes I wish Newton had not made his "standing on the shoulders of giants" quote (you can just google for the whole thing) ...

but I guess we have to accept that most people have no wish to know how most of the things around them and that they use everyday work or how they are manufactured.

I find it equally mind boggling that people use a car without understanding how an internal combustion engine works or watch TV without understanding how it works...

I guess food should be different, afterall we are putting it into our bodies but some people see provision of food as some-one-elses problem.

zansu Rookie
Unfortunately this seems to be the trend, along with the fact that its becoming increasingly "cool" to be ignorant?

...

I guess food should be different, afterall we are putting it into our bodies but some people see provision of food as some-one-elses problem.

wierd visions of soylent green..... :ph34r:

gfp Enthusiast
wierd visions of soylent green..... :ph34r:

LOL.... I'd so forgotten that film "it's people ... " LOL but its not far off the point...

stef-the-kicking-cuty Enthusiast

Yes, I don't like that restaurant problem either. Some don't even listen, when you explain it to them. We wanted to eat out with our gymnastics group. It was a chinese restaurant. Now all the women in our women's gymnastic group know very well about my problem. So the one woman said 'No problem, I know the people, that own this restaurant. I wil talk to them.' Well, when we got there that day, the woman that owns the restaurant came to me and said real proud 'We are not using MSG in any of our products'. Yeah, right, whatever!

Oh, and another thing, that boggles my mind. I went to WalMart the other day to stock up on our food supply :P . And when I came to the asian section I saw this little baggy with noodles in them. It said 'Real Rice Noodles' on top of the bag. When I turned them around, the first ingredient the noodles had was wheat flour. I was like 'Yeah right, what a scam'. I mean, common, no wonder, people don't know what is what with wrong stuff like that everywhere. I almost bought it. Thanks god, I checked...

Stef

debmidge Rising Star
Yeah, I was in a fast food restaurant once trying to explain to people who barely speak english that I couldn't eat wheat, they didn't know what wheat was, so another worker interpreted and they STILL didn't know what wheat was. *sigh* And they let people who don't even know what food is made out of vote and operate heavy machinery? :P

Also scarey is here in US people who are born and raised here don't know about foods and contents of foods. They've been showing the food pyramid for decades so for US born & bred workers ignorance is no excuse. The food pyramid clearly shows grains in one picture with wheat shaft and corn cob.

jkmunchkin Rising Star
So I went to a restaurant tonight...I asked the server to check with the cook about whether or not the veal piccata contained a wheat ingredient....she came back and happily told me that NO, there's no wheat on the chicken, only a bit of white flour dusted on the veal before cooking. Sigh...I had to tell her that the white flour is made from wheat!!! This came from the cook, but the server was also equally clueless!! My conclusion: Restaurants are often a real crap shoot!

When I was 1st diagnosed I quickly realized how many people don't know that white flour is wheat. Same goes for bread that is not specifically called wheat bread, ect. ect. For that reason when I go to restaurants I ask if anything has wheat, and tell them this includes and flour or breading. I've yet to have someone seem offended that I assume they don't know that.

blueeyedmanda Community Regular

I have only ventured to Outback and Issacs and this cute little cafe in Cape May which serves gluten free pasta. I have heard well its only flour or have white bread too many times....not worth the frustration, once I get worked up it all goes down hill. Thankfully my hubby doesn't like to dine out as much so we usually make dinner and kick up with a movie....real money saver these days.

mcsteffi Rookie
So I went to a restaurant tonight...I asked the server to check with the cook about whether or not the veal piccata contained a wheat ingredient....she came back and happily told me that NO, there's no wheat on the chicken, only a bit of white flour dusted on the veal before cooking. Sigh...I had to tell her that the white flour is made from wheat!!! This came from the cook, but the server was also equally clueless!! My conclusion: Restaurants are often a real crap shoot!

Due to restaurant people... and most people in general... not knowing what is in their food, I usually just say my son is allergic to flour. They understand that much more than the wheat thing. lol. Or try saying I am allergic to wheat that includes anything made with flour.

Learning as I go!

Stef.

ArtGirl Enthusiast

I guess no one reads "The Little Red Hen" anymore. :(

She planted and watered the seeds, they sprouted and grew into the wheat plant, she harvested the wheat, ground the wheat, and baked the bread. (All without help from her friends, I might add - who only wanted to help her eat it!)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

    2. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748

    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.