Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Celebrate Your Celiac Diagnosis Day?

gfgypsyqueen

Recommended Posts

gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

It seems that my past life was the life that I got to eat whatever I want where ever I wanted. Food was just something that tasted great and I craved different things at different times, like chocolate . . . I never read a label, execpt to look at the fat content and probably buy it anyway. Now after years of being sick and never knwoing what the problem was I found out about Celiacs. After the Celiac diagnosis I go through phases of missing the old days - pre-celiacs.

So I was wondering does anyone else celebrate their diagnosis day? Or am I just a tad crazy :rolleyes: I try to remember the day by going out to eat to my favorite gluten-free restaturant (PF Chang's) and really enjoying a good meal out with friends.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

I don't celebrate it, as such, but last year on June 2nd (my first gluten-free anniversary), I did stop and remember how far I'd come and how much things had changed since before I was diagnosed. :)

ravenwoodglass Mentor
ravenwoodglass
Posted

Oh yea, it's my other 'birthday'. Being a twinless twin I don't usually celebrate my real one so my Diagnosis day is a day to feel good and treat myself. It will be 5 years 11/20 :)

angel-jd1 Community Regular
angel-jd1
Posted

Mine is New Years Eve Day.........sooo EVERYBODY celebrates mine :P Didn't you realize that is what the party in New York's Times Square is all about.........my gluten-free anniversary?! ! haha :lol:

-Jessica :rolleyes:

miles2go Contributor
miles2go
Posted

Absolutely! And I got a kind of nebulous dx, so I celebrate that day in September and also the day I went completely gluten-free in January, so I get two days. :) We can eat anything we want, just as long as we know how to substitute.

It is great to feel well!

Partay on!

:D :D :D

celiacgirls Apprentice
celiacgirls
Posted

Mine was yesterday! I thought I would celebrate but I forgot about it. I take that as a positive since being gluten-free is fading into the background now and is just a part of my life.

happygirl Collaborator
happygirl
Posted

We celebrate it at my house! :) Getting the diagnosis gave me my life back....

This summer will be three years for me! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfp Enthusiast
gfp
Posted

??

I don't even celebrate my birthday... if I can get away with it.

Indeed, Im a bit embarassed to say but when I moved I had 5yrs worth of unopened birthday and XMas cards...to throw away.,..

kbtoyssni Contributor
kbtoyssni
Posted
Oh yea, it's my other 'birthday'. Being a twinless twin I don't usually celebrate my real one so my Diagnosis day is a day to feel good and treat myself. It will be 5 years 11/20 :)

I treat mine as a second birthday, too! Why not celebrate the fact that I've got my life back? Last year (my one-year) I had my friends over for a gluten-free dinner.

chocolatelover Contributor
chocolatelover
Posted

I definitely will--it's only been a couple of months, but I really do feel like the day I went off gluten was the day I regained my life. I feel better now than I have for the past 20 years.

I love the idea of celebrating going gluten free!

:P

aikiducky Apprentice
aikiducky
Posted

I don't have a diagnosis, and I don't actually remember when exactly I went gluten free any more. It was somewhere in October or November 2004, but other than that... maybe I should just celebrate for two months straight. :D

Pauliina

mamabear Explorer
mamabear
Posted

Well, considering my biopsy was done on April Fool's Day and the GI didn't tell me he had added a biopsy for celiac disease, so I didn't get the chance to eat one more piece of real birthday cake.... And I thought it was just an extended April Fool's joke....no, I don't celebrate the day. I do however celebrate my heightenned awareness of celiac disease and gluten sensitivity on a daily basis.....personally and professionally.

Generic Apprentice
Generic
Posted

Nope, I have no idea what day I was diagnosed. All I remember was it was 1988, I was at a restaurant with my mom eating a huge stack of pancakes and she dropped the bomb.

Nantzie Collaborator
Nantzie
Posted

I don't, but I think it's a neat idea. Mine was a few days after Christmas '05, not sure exactly when though... Considering my biopsy was in mid-Feb, it's no wonder I had a negative biopsy. :P

By the time Christmas was over I could barely make myself eat any of the "goodies". So I just threw in the towel and went gluten-free because I knew I wasn't eating enough gluten for a positive biopsy as it was. I just couldn't make myself eat it anymore.

Nancy

sugarlust Newbie
sugarlust
Posted

you all have such good storys about going gluten free, it makes me feel very positive about celebrating my 1 year anni of being gluten free on the 25th april 2008! (yes went gluten free 2 days ago!)

doctor did 1 celiac blood test and decided i dont have it, apparently i have IBS and anxiety..... but i know i have a history of feeling 'better' after going gluten free in the past (was very young at the time tho and didnt stick with it for long, even tho it it made me feel Heaps better in only 2 weeks! kids eh ;) )

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748
    dcarter1682
    Newest Member
    dcarter1682
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.