Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oddest Places That Have Gluten


confused

Recommended Posts

confused Community Regular

Ok lately i have been reading about things that have gluten that i would have never thought of. So I was hoping we could start an list of things that most people do not think about that would have gluten.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 68
  • Created
  • Last Reply
dionnek Enthusiast

All of us know, but newbies might not:

soy sauce

chicken/beef, etc. broth

chowder/soups

some nuts/seeds

spice mixes

rice mixes

Rice Krispies

Kellogs Corn Flakes

imitation crab

luvs2eat Collaborator

Red licorice

Sour cream... not all but some do, I was surprised to find out.

spunky Contributor

Rice Dream milk substitute was a surprise to me!

Fortunately, their frozen vanilla "ice cream" substitute is okay, though.

blueeyedmanda Community Regular

Glue in Stamps and Envelopes

Corn Flakes

Shampoo/Conditioner

Art Supplies (paints, clay, play-dough)

Soups (used as a thickner)

Lotions

jacqui Apprentice
Ok lately i have been reading about things that have gluten that i would have never thought of. So I was hoping we could start an list of things that most people do not think about that would have gluten.

paula

Nivea and Pam (cooking spray) are not very gluten free friendly. I recently called both and they said:

1. Nivea - "we do not require our - oh dang the word is on the tip of my tongue - their suppliers to say where the ingredients come from ie. hydrolyzed protein...only food has to follow a law..." I told them Dove follows the International cosmetic_____ and require their suppliers to say what grain an ingredient is derived from. So I use Dove too.

***Dove sensitive skin has gluten! I sent my husband out hunting for it and after he got home and gave it to me I read the ingredients and it has I believe it is wheat germ in it. I was totally bummed but actually the Pro-Age and the rest are just fine.***

2. Pam - ConAgra foods said "...read the package and we use wheat in a lot of products!..."

Juliebove Rising Star
Rice Dream milk substitute was a surprise to me!

Fortunately, their frozen vanilla "ice cream" substitute is okay, though.

This has always bothered me. How could the frozen stuff NOT have gluten? It would seem they would use the same "milk" and turn it into the frozen stuff. I don't let my daughter have it because I think it is suspect.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Juliebove Rising Star

Mentos

Some sorbets. I can't remember the brand but it contains glucose syrup derived from wheat.

Things at some fast food places such as tortilla strips and chicken breast.

StrongerToday Enthusiast

My (former) foot lotion, hair spray, and shampoo

Nacho cheese doritos (esp. when cool ranch is ok)

Twizzlers

self-tanning lotion

soy sauce!

RiceGuy Collaborator

Glue on cardboard boxes (including cereal and other food boxes)

Glue on cardboard tubes (paper towel and toilet tissue rolls)

Stickers

Tape

Finger paints

Does anyone know about the soap in brillo pads?

JennyC Enthusiast

How about the glue that holds the toilet paper on the roll! :blink:

Well at least we wash our hands after we touch it!

(Chamin' and Cotonelle brands are gluten-free.)

Generic Apprentice

Some lipsticks and cosmetics.

gfgypsyqueen Enthusiast

Bird seed for the outside bird feeder. (So busy looking for nuts that I missed the gluten notice and got SICK!!!)

Dog food and dog bones

Minute Maid, Dole, and Tropicanna juices (Only 100% juice drinks are gluten-free. Pure OJ is fine, but Banana & Pineapple OJ is not gluten-free. Drives me crazy!)

Nantzie Collaborator

Tea. Had to toss a box of lemon tea once. Good thing I looked.

Other people's cosmetics. Men with an unsupportive wife/girlfriend who doesn't check her lipsticks, etc. probably have a lot of problems.

Nancy

Guest lorlyn

Sheetrock mud, some dryer sheets

sugarlust Newbie

hiyas

over here in australia at least, m&ms, mars bars and snickers All contain wheat starch or Wheat Glucose Syrup! i thought i would mention it Becuz i have seen threads where ppl say m&ms and snickers are gluten free. i do realize things are made different in different countrys sometimes!

gluten free since 25th april 2007 (2 days so far ! yay lol)

jacqui Apprentice
All of us know, but newbies might not:

soy sauce

chicken/beef, etc. broth

chowder/soups

some nuts/seeds

spice mixes

rice mixes

Rice Krispies

Kellogs Corn Flakes

imitation crab

CAN WE ALL PUT DOWN THE BRANDS WE ARE TALKING ABOUT? AND IF THERE IS A SAFE BRAND ie. paper towels/toilet paper...

I never thought about stickers or fingerpaints and am now totally stressed out b/c my 6 1/2 y/o has celiac disease and of course she uses all that in school and home. I feel like such an idiot!!! :o

So anyway if we could get a list of our own and share, of things that are foresaken or are safe for us. I have a 10+ page word doc of info that I have shared with new celiacs and have added some of the stuff I read today on this post...BUT not to beat a dead beat but lets so naming brands if that is possible.

Thank you and take care,

Jacqui and family

annie76 Apprentice

Well, thanks for all the reminders of how rediculously unessesary gluten can be! I don't get why malt has to be used in EVERY CEREAL! <_< And many, many other things, sheetrock mud, jeez I never heard that one :lol:

MySuicidalTurtle Enthusiast

Candy corn.

eveelady Newbie
over here in australia at least, m&ms, mars bars and snickers All contain wheat starch or Wheat Glucose Syrup
!

as far as i know, there is no gluten in glucose syrup from wheat - have read this on numerous "safe foods" sites from coeliac assns around the world.

Nantzie Collaborator

Kissing. If your wife/husband/significant other eats gluten, they can gluten you.

Fake nails. I got a reaction from getting "pink and whites" (french style fake nails). Never did figure out if it was the acrylic powder or the nail polish that was causing the reaction because of the language barrier.

:(

Nancy

Julie-uk-nz Apprentice

Hi, I noticed you said nuts and seeds, i've never heard this before, how come it has gluten? Thanks

debmidge Rising Star

some nuts/seeds are "dusted" with wheat flour or barley flour (like sunflower seeds) - I think the purpose is to keep them dry and from sticking together.

Grill charcoal with gluten surprised me (would that be Kingsford brand?).

Hot dogs (unsure of brands as we don't eat them anyway)

tomato and spaghetti sauces (my Italian grandmother never used thickener of any sort in her home-made sauce)

Ed-G Newbie
Hot dogs (unsure of brands as we don't eat them anyway)

Wouldn't the all meat hot dogs be ok?

Ed

Lisa Mentor
CAN WE ALL PUT DOWN THE BRANDS WE ARE TALKING ABOUT? AND IF THERE IS A SAFE BRAND ie. paper towels/toilet paper...

I never thought about stickers or fingerpaints and am now totally stressed out b/c my 6 1/2 y/o has celiac disease and of course she uses all that in school and home. I feel like such an idiot!!! :o

So anyway if we could get a list of our own and share, of things that are foresaken or are safe for us. I have a 10+ page word doc of info that I have shared with new celiacs and have added some of the stuff I read today on this post...BUT not to beat a dead beat but lets so naming brands if that is possible.

Thank you and take care,

Jacqui and family

TOILET PAPER AND PAPER TOWELS ARE OF NO GLUTEN CONCERN. This has been discussed at great length in the past.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,625
    • Most Online (within 30 mins)
      7,748

    Barb2
    Newest Member
    Barb2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Inkie
      I  notice a reaction to tea bags, possibly due to gluten or other substances. Is this recognizable?
    • trents
      The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the blood draw. That should give you some perspective.
    • Xravith
      Thank you, really.  I took a test for DGP-IgA and DGP-IgG. Effectively, it is not enough to discard Celiac Disease. I was consuming gluten until then, I only started gluten-free some days ago, when the symptoms became horrible and now I feel considerably better, which is a second confirmation that gluten is the main problem. It's been more than 4 years I have the same suspect, when I first thought gluten was causing me problems, I made a gluten-free diet for a year, I felt really good as never before. However, neither I or my parents were well informed about Celiac disease, so none of us tried to make further exams. My father suffer digestive problems and other members of my family as well. Unfortunately, no one have ever been tested for Celiac disease. I'll have to restart eating gluten in the next weeks, so I can make a serious blood test in laboratory, hopefully between two or three months.
    • trents
      As Scott said, in order for celiac disease testing to be valid, you need to be eating generous amounts of gluten on a regular basis for weeks or months before the blood draw. The blood tests are designed to detect antibodies that the immune system produces in response to the ingestion of gluten. It takes time for them to build up in the blood to detectable levels.
    • Scott Adams
      Based on what you've described, it is absolutely crucial that you pursue further medical exams for Celiac Disease and related conditions with a gastroenterologist. Your symptoms—especially the worsening fatigue, loss of muscle mass, neurological symptoms like migraines, and palpitations, coupled with being underweight—are significant red flags that extend beyond typical IBS. The negative home test is not reliable, particularly given your concern about sample contamination and the fact that you were likely not consuming sufficient gluten at the time for the test to be accurate, which is a common issue. While probiotics like Bifidobacterium Infantis can support gut health, they cannot resolve an autoimmune response to gluten or heal intestinal damage caused by Celiac Disease. Your declining blood test results, even if still "in range," further indicate a trend that needs a doctor's investigation. Please do not hesitate to seek a specialist; a formal diagnosis is the first step toward getting the correct treatment, allowing your body to heal, and finally addressing your weight and overall health concerns. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.