Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Length Of Post Glutening Suffering...one Week Or More

melie

By melie
in Coping with Celiac Disease

Recommended Posts

melie Apprentice
melie
Posted

Just wondering if anyone can reassure me this can be normal for a single exposure to gluten. It's like my innards are going haywire trying to cope with it and it sets off some kind of inflamed response and my body can't return to its normal state. I never used to have D pre diagnosis, and in fact this never happened until 1 year after being gluten-free that I started getting these week long bouts of D in response to a glutening. It seems that I am hyper sensitive now. Will it get better, or will I now always react like this...does anyone have similar experiences. I'm pretty freaked out by it all. And I now sympathize with all the people who have suffered for years with D without a proper diagnosis, it is truly a nightmare! At least I do know what's causing mine.

Thanks for any help, I'm feeling sad and drained at this point. The diet is hard enough but then when you suffer for over a week from a tiny amount of unintended gluten, it sucks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Hi melie,

All of us are going to experience reactions differently. I find that as time goes by, and I'm not glutened very often anymore, my reaction is different than it used to be.

For example, 12 days ago I ate something I thought was made in a gluten-free facility (it wasn't), and I had a reaction. I had body aches, nausea and D for 2-3 days, then terrible brain fog for the rest of the week. I was ok for a couple of days, but my stomach remained touchy and I had D once yesterday after dinner. I'm also still a bit anxious. :unsure:

It's not unusual for a gluten reaction to last for a week or more, and some can take up to a month to completely get over it.

Even in the absence of symptoms, I believe the reaction takes that long to end--that's why ingesting gluten even once a month is like not being on the diet at all--the intestine never gets a chance to heal completely.

rh4 Newbie
rh4
Posted

In my opinion there is no "norm" for celiac disease, but in my experience your body's response is not unusual. My reaction to gluten is similiar and became much more severe after going gluten-free, also developed several other food allergies. Depression is also one of the reactions I experience during/after a gluten poisoning. I've got about a two week recovery period and have found that lots of sleep assists me in recovery after an accidental poisoning - it might help you too. Hang in there.

little d Enthusiast
little d
Posted

Melie,

Yes everybodies reactions are different, mine not that extreme as others. I know I get gluten when as I am eating I get the stomach burn when the food goes down, then I feel the gas build up and eventually pass loud gas, with the stomach making loud popping gassy noises that sometime hurt as well, sometimes I immiedately feel very lathargic and want to go to sleep. Then the next day my husband has to force me out of bed and I just might have a headach that is bad enough to take Tylenol, if it is one of my trigger foods the D all day at least 5 times and If I go anywhere I will go to where i know where the bathrooms are. And I am still tired like I worked a 3 night shift with 3hours of sleep inbetween work nights. After that first day of D I may have another D or two followed by C almost to the point where nothing will pass but for a few little pepples, for the rest of the week along with heartburn and occational stomach burn sometimes I wish I would just vomit to get it over with but that never happens. And I will contiune to have headachs off and on for that week. Week two is better especially if I am eating gluten-free.

Donna

2ofus2kids2dogs Apprentice
2ofus2kids2dogs
Posted

Hey Donna -

I know we all react differently - but that was a very good description of what happens to me when I get glutened now! Very, very similar. :blink:

To the original poster - sorry you're having problems. A week is about normal for me. I've been gluten free for 9 months - and its happens very infrequently now. However, I did eat something last week and am just getting over it. I think it was the movie popcorn.

Melissa

Mtndog Collaborator
Mtndog
Posted

Melie- I have long reactions too- I go the other way (constipation, nausea, night sweats and all sorts of fun stuff!).

Hope you feel better soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,381
    • Most Online (within 30 mins)
      7,748
    AHD
    Newest Member
    AHD
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • lauramac
      COVID19 and getting glutened

      By lauramac · Posted

      I was diagnosed with Celiac Disease abput 10 years ago. When I was initially diagnosed my only "symptom" was persistently low iron (that occasionally dipped into anemia). After diagnosis,  over time, I started to develop symptoms when exposed to gluten--they have been overall relatively minor, but have increased over time (and yes, I realize my guts are likely being wrecked regardless of the symptoms) on the rare occasions I've been exposed to gluten. I had COVID19 last week (now testing negative) and was glutened last night (never trust anything labeled gluten-free in a mixed environment). I had my traditional symptoms (sharp gas pains, burping, nausea, stomach ache) but they were accompanied by new, more intense symptoms (muscle cramps all over my body--feet, calves, biceps, neck, shoulders, jaw, abdomen, I'm still sore today and cold sweats). I spent about 6 hours writhing before I felt well enough to get up.  I have been told by my allergist that COVID19 can cause your immune system to hyper react. I'm wondering if that's what happened here.   Has anyone else had experience getting glutened post COVID19? Relatively shortly after recovering from COVID19? Was it a more extreme reaction or same? I can't seem to find any articles on this, so I thought I'd ask the community.  Thank you!
    • Rogol72
      Draft gluten-free ciders… can they be trusted ?

      By Rogol72 · Posted

      A friend of mine is in the bar trade most of his life and has never heard of lines being mixed for different type of beers and ciders. Better to stick with cans.
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      Thanks very much for confirming my suspicion @Scott Adams! That helps a lot because I'm really trying to track down and get rid of these sources of cross-contact and so I'm going to just rule out the draft ciders and hope that helps. Also @Rogol72 its nice to hear you haven't had a problem on that side of the pond - draft cider lines being used for cider only certainly sounds like the right way to do it, but I think that must not always be practiced over here! 
    • Zuma888
      Gluten challenge and Hashimoto's Thyroiditis

      By Zuma888 · Posted

      I didn't ask a doctor about this actually. I did ask several doctors a long time ago and they told me gluten has nothing to do with hashimoto's. One of them told me to do a gluten challenge to test for celiac, but at the time I was in graduate school so couldn't afford to be even more ill than I was. If you have the symptoms, I really don't advise you to do a gluten challenge. It messed me up mentally and physically for months. At the same time, I benefitted from doing the challenge in the sense that it convinced me that all my symptoms were truly from gluten - even stuff like insomnia! So now I am terrified to eat gluten, whereas before I would have a little once in a while and not notice anything dramatic. 
    • Winnie-Ther-Pooh
      Gluten challenge and Hashimoto's Thyroiditis

      By Winnie-Ther-Pooh · Posted

      I am in a similar situation where I can't feasibly do a gluten challenge but have all the symptoms and I have 2 celiac genes. I'm curious if your doctor advised you to eat as if you had a diagnosis or if they were more dismissive about it. 
×
×
  • Create New...