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Recent Activity
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- dsfraley replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3
9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?
Thank you for these thoughts, Knitty. Trents: Yes. I would say we are taking it relatively light on his belly because it's been upset, so no heavy/excessive dairy, but he has had some cheese here and there. Not high quantities, however, and tests were negative for lactose intolerance. -
- trents replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3
9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?
Is your son still consuming dairy? -
- knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff14
Diagnosed Marsh stage 3C in January 2026
Being low in Thiamine B1 can cause fingers and toes to be cold all the time. Thiamine deficiency affects body temperature regulation and sleep/wake cycles. Thiamine deficiency-induced disruptions in the diurnal rhythm and regulation of body temperature in the rat https://pubmed.ncbi.nlm.nih.gov/9804367/ -
- knitty kitty replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
Nateral remedies
I found some information that may be helpful to you. https://www.nccih.nih.gov/health/echinacea#:~:text=However%2C some people have allergic,for short periods of time. And... Role of Echinacea in the management and prevention of acute respiratory tract infections in children: A systematic review of the evidence https://pubmed.ncbi.nlm... -
- knitty kitty replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3
9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?
Welcome to the forum, @dsfraley, I recognize those symptoms as being related to Thiamine B1 deficiency, Gastrointestinal Beriberi. I've had Gastrointestinal Beriberi and my doctors sent me to a psychiatrist. It's not in ones head. Thiamine deficiency covers all the symptoms you've mentioned. With such a high Marsh score, correction of nutritional...
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