Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ucsd Celiac Center Video On Youtube


GFinDC

Recommended Posts

GFinDC Veteran

Hi all,

I am new to the forum as of today. I just found and watched this video from UCSD WM K Warren Medical Research Center for celiac Disease on yoututbe. It is long, 86 minutes. There are 3 doctors presenting information about celiac disease, nutrition, and testing./ detection for it.

Youtube video link:

Open Original Shared Link

Wm K Warren Center link:

Open Original Shared Link

They discuss a new law about labeling that is coming in play in 2008 kind of near the end. Anyway, I hope this doesn't violate any rules on the forum.

Paul


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JennyC Enthusiast

Thanks. Maybe many of us should email these links to family & friends! ;)

blueeyedmanda Community Regular

Thank You for Sharing. :)

GFinDC Veteran

Hi Jenny and Amanda,

Sure thing, sharing is not so bad. I didn't know if there was already a listing of such links on the forum.

Here is another one to the University of Maryland celiac center.

Open Original Shared Link

This link below is to the same site but links to their page with video discussions of celiac disease.

Open Original Shared Link

So much easier to watch a video than read all that stuff...

I am glad I found this forum, seems like a good group of people here!

Mango04 Enthusiast

My dad caught the UCSD program on TV, and it somehow convinced him that cc is real :huh: . So, it must be good! Send it to all your friends and relatives! :lol:

UR Groovy Explorer
...

I just found and watched this video from UCSD WM K Warren Medical Research Center for celiac Disease on yoututbe. It is long, 86 minutes.

...

Paul

Thank You (& welcome to the forum). I've watched about 15 minutes so far. I'm so glad I saw this.

k

cmom Contributor

I watched the entire presentation and found two things interesting:

1. The only blood test they recommended or felt necessary was the ttg

2. When they answered an audience member's question regarding lactose intolerance, there was no mention made of the fact that the damaged tips of the villi are what digest the lactose. They just kind of left it up in the air as to why this was true, IMHO.

Anyone else notice this? :huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CMCM Rising Star

I watched the whole thing....it was good, and would be very interesting for someone who is new to this and who hasn't done a lot of reading yet.

For myself, having done a ton of reading the last 2 years, I didn't hear anything new in it. Just the basic info for the uninitiated. There were a lot of spots where more elaboration was needed. I have lots of unanswered questions that NEVER get brought up anywhere.

By the way,I went to their website (USSD) and noticed their comment saying they don't feel the stool testing (i.e. like Enterolab does) has any validity in testing as it is still unproved. I don't find that an enlightened comment, because there are numerous other specialists and centers in this country who have an interest in the stool testing. There are several books that are very positive about its possibilities.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,243
    • Most Online (within 30 mins)
      7,748

    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.