Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need Prayers


ptkds

Recommended Posts

ptkds Community Regular

Hey everyone,

My eyes started getting blurry this morning off to one side, so I called my dr's office since it wasn't the first time. They told me to get my eyes checked out first at the eye dr's. So I did. The eye dr dialated my eyes, and discoverd that the blood vessels in the back of my right eye are very tiny. My eyes were just dialated last year and they were fine. She said it is something systemic and I need to see my PCP. I have a call in to them and am waiting to see when I can go in. I have also been having lots of headaches. So, I am started to get really scared.

Please pray that they will quickly find out what is going on and that I will be fine. My kids need me, and I am scared.

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Oh sweety, I will say a prayer right now that you find out quickly what the problem is and that is easily treated. :)

Try not to panic, and let us know how you do.

cruelshoes Enthusiast

You got it. I hope they find a quick and easy resolution. It is scary to think of something going wrong with ones eyes.

blueeyedmanda Community Regular

You are in my thoughts. Keep us posted!

Joni63 Collaborator

I will certainly say a prayer for you. Try not to worry and just take one day at a time.

Cheri A Contributor

((hugs)) and prayers of comfort, peace, and healing.

Guhlia Rising Star

You and your family will be in our nightly prayers. Please keep us up to date with what's going on.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I hope they figure it out soon, you are in my prayers and please let us know how you are doing.

(((((((((((((HUGS))))))))))))

Krista

elye Community Regular

....Been thinking about you all day.... :):)

Any news?

ptkds Community Regular

I am going in on Friday morning. They are completely booked until then. I will push him to do a CT scan or MRI to check everything out. I will update you all when I know something.

Thanks for all the support!

Green12 Enthusiast

I'll keep you in my thoughts, hope all goes well with your appt on Friday :)

ravenwoodglass Mentor
I am going in on Friday morning. They are completely booked until then. I will push him to do a CT scan or MRI to check everything out. I will update you all when I know something.

Thanks for all the support!

Will be thinking of you, hope all goes well.

confused Community Regular

Will keep you in my thoughts and prayers. Please update us tommorow.

paula

jerseyangel Proficient

Good luck tomorrow--we're all behind you! :D

ptkds Community Regular

Thanks for all the support guys! That really helps me feel better.

I went to the dr yesterday. He wanted me to go to another eye dr that works at my insurance companies clinic and have them dialate my eyes and check them. I told him that I didnt want to and that I trust the dr I went to see. She did a very thorough exam, and I wanted an MRI or CT scan. He finally agreed to order an MRI. I will have it done next week sometime. He seemed convinced it was something wrong with my eye, when the eye dr said it wasn't my eye. I think he was just trying to do what the insurance company would want him to do. They don't like paying for MRI's without a really good reason :angry: . So I guess the possibility of an aneurysm or brain tumor isn't a good enough reason for them!

I hate HMO's.

I will update when I find out the results of the MRI.

Thanks!

mommida Enthusiast

My thoughts and prayers are with you.

(((HUGS)))

Lisa Mentor

Thinking of you and many well wishes coming your way.

  • 2 weeks later...
ptkds Community Regular

I just wanted to update you guys.

The MRI came back negative. My dr suggested that maybe I was anemic and I needed to take a multi-vitamin.

Needless to say, I am switching dr.s I have an appointment with an Osteopath/Family Practictioner on the 18th. Hopefully, I will get some answers. I am going to write up a list of ALL my symptoms to take to him so I won't forget anything.

Thanks for all the support! You guys are great!

mommida Enthusiast

This may be off the wall, but have you been tested for pernicous anemia?

gfcookie Newbie
Hey everyone,

My eyes started getting blurry this morning off to one side, so I called my dr's office since it wasn't the first time. They told me to get my eyes checked out first at the eye dr's. So I did. The eye dr dialated my eyes, and discoverd that the blood vessels in the back of my right eye are very tiny. My eyes were just dialated last year and they were fine. She said it is something systemic and I need to see my PCP. I have a call in to them and am waiting to see when I can go in. I have also been having lots of headaches. So, I am started to get really scared.

Please pray that they will quickly find out what is going on and that I will be fine. My kids need me, and I am scared.

Thanks

do you take any daily meds like steroids? I'm on steroids, and since i've started them, my eyes went completely wacky and i need glasses. Good luck and try not to stress too much!

ptkds Community Regular

No, I haven't been tested for Pernicious Anemia. What kind of testing do they have to do for that?

mommida Enthusiast

The start of testing should be a Complete Blood Count.

Other blood tests would be done looking for...

intrinsic factor and parietal cell antibodies

bilirubin, potassium or cholesterol levels in the blood

serum iron and iron binding capacity.

There is a strong link to Celiac or any type of intestinal lack of absorbing B12.

If there were any test results that made this present doctor suggest you "maybe have anemia" may be used to order the need for further testing.

Laura

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,263
    • Most Online (within 30 mins)
      7,748

    LiaTom
    Newest Member
    LiaTom
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Dana0207
      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right.
×
×
  • Create New...