Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did It Take For You To Notice A Difference On The Gluten-free Diet?


star star

How long until your symptoms began to improve?  

15 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

star star Newbie

I don't know if I should give up yet. My celiac panel was normal. My only symptom is chronic fatigue. An ELISA food intolerance IGG test said I was intolerant of wheat and gluten (among many other things). I've been on the gluten-free diet for three weeks (four - but I'm not counting the first week because I made some mistakes). It hasn't made any difference at all, so far. When to give up?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AliB Enthusiast

My Celiac tests were negative too, but I had such a radical improvement in some of my symptoms that being gluten-free spoke for itself.

The problems that resolved first were gut related. Other things are taking longer. I dropped gluten, dairy, most carbs and most sugar.

Whilst I would not consider myself to have Chronic Fatigue, excessive fatigue has certainly been a big factor in most of my adult life - since I was 15. I kind of thought well, if I am going to do this I might as well go the whole hog and do it properly.

I am intolerant of both gluten and dairy, and my body has never been able to process carbs and sugars properly, hence my descent into diabetes 10 years ago and excess weight I have also been carrying around since my first pregnancy 30 years ago.

Over the 4 weeks my body has been undergoing radical changes - my liver and other organs have been detoxifying and off-loading toxins and crud that has been accumulated over the last 50 years. Going through this can often make us feel worse before we start to feel better.

I am finding other things now too that my body is reacting to. It's like it has become extra sensitive and is now saying - no, I don't want this rubbish any more! On top of the gluten and dairy I am intolerant of yeast, baking powder (cream of tartar, I think although the soda leaves a nasty taste in my mouth too!), so that puts the kybosh on a lot of baked goods (which is probably a good thing as I am also fighting to get Candida under control!), soya and a few other things I haven't quite pinned down yet.

I have some friends who are suffering with CF - really quite disabling in some cases and I am really trying to persuade them to at least give it a good go. With something like that I would not expect to really see anything radical but hopefully a gradual improvement. My friend with CF who is bedridden said that the first thing she has noticed is a reduction in the relentless headaches so that is a good thing, but she has only been on it for 2 weeks so it is still early days yet.

Don't assume, just because you are not yet feeling better that it is not the gluten that is the problem. It may be that there are other factors and foods that are restricting the benefit of the gluten-free diet. It could be anything - dairy, corn, soy, diet soda or coke, gluten in make-up - even toothpaste! Sometimes it is easier to do the Elimination Diet for 2 weeks or so just to clear any antagonists out of the system and start with a 'clean slate', introducing other foods gradually one at a time.

I hope you manage to work out what is hindering your recovery and start to get some respite.

ksymonds84 Enthusiast
I don't know if I should give up yet. My celiac panel was normal. My only symptom is chronic fatigue. An ELISA food intolerance IGG test said I was intolerant of wheat and gluten (among many other things). I've been on the gluten-free diet for three weeks (four - but I'm not counting the first week because I made some mistakes). It hasn't made any difference at all, so far. When to give up?

Please don't give up yet. For me it took 6 weeks to really start noticing more energy again. I remember reading somewhere (I read everything I can on Celiac, gluten intolerance etc.) that you should give it a least a 2 month try especially since when your new you make alot of little mistakes (some you may not know about) and that can set you back again. Hang in there!

jannel Newbie

I have been gluten free for 4 weeks and I am looking better, but not always feeling better. The dark cirlces under my eyes are getting better and I have more colour in my skin. I still suffer with bouts of diarhea and stomach cramps. I am very careful with the gluten so I am thinking there has to be something else. Corn perhaps? How long did it take to get the bowls under control. I am getting discouraged.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748

    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.