Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg! What Could It Be?!

Bravie

By Bravie
in Coping with Celiac Disease

Recommended Posts

Bravie Apprentice
Bravie
Posted

I've cut out dairy, soy, gluten, everything processed, I have my own pots, pans, knives, cooking utensiles, cutting board, sponges, rags, dish soap, can opener, I changed shampoos, I have my own storage area for dried foods, pots and pans, And I have my own little compartment in the fridge. I still feel bad! I eat nothing but meat and veggies, and I still get gas and a slight rash on my back. It isn't quite as bad as it used to be but...WHY AM I STILL HAVING SYMPTOMS AFTER ALL OF THIS HARD WORK?!

It's like i'm still being glutened by something...What is it? Water?! Could I be getting glutened by the family brita water filter? Gah! Idk...Maybe i'm going crazy... <_<

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


YoloGx Rookie
YoloGx
Posted
I've cut out dairy, soy, gluten, everything processed, I have my own pots, pans, knives, cooking utensiles, cutting board, sponges, rags, dish soap, can opener, I changed shampoos, I have my own storage area for dried foods, pots and pans, And I have my own little compartment in the fridge. I still feel bad! I eat nothing but meat and veggies, and I still get gas and a slight rash on my back. It isn't quite as bad as it used to be but...WHY AM I STILL HAVING SYMPTOMS AFTER ALL OF THIS HARD WORK?!

It's like i'm still being glutened by something...What is it? Water?! Could I be getting glutened by the family brita water filter? Gah! Idk...Maybe i'm going crazy... <_<

It really could be you are allergic/sensitive to something(s) else. I had to go on a elimination diet and discovered I had quite a few things I shouldn't eat or shouldn't eat that frequently. For instance I am allergic/sensitive to all nuts plus sesame seeds, alcohol, carrots, tuna, lamb, carob plus probably a few extra things I can't think of right now. Sometimes the reason for this is leaky gut and sometimes its just pure allergies. Look to your family and/or ancestors, is that likely or what?

Another thing it could be is mercury poisoning or some other environmentally toxic exposure. But mostly you should try to pinpoint what it is or isn't.

Other than that maybe it is just taking its bloody time working out of your system. Again taking detox herbs could really help like dandelion or milk thistle etc. etc. plus saunas etc.

Do you get enough exercise, by the way? It too might help...

Bravie Apprentice
Bravie
Posted
  • Author

I take a 2 mile walk every couple of days. I have to, since I don't have a car atm. I'm gonna go to the doctors at the beginning of april to see what else is up. I know that too much salt can screw up my skin, so i eat little to none. I'm really skinny, always have been, but i've gained weight in the past couple of months, like 5 lbs or so.

My boyfriend thinks it's cuz i'm living in this house xD hehehehe That could be part of the problem :P

ravenwoodglass Mentor
ravenwoodglass
Posted

What detergent and fabric softener do you use? The rash may be linked to that. I have problems with rashes on my head and body when I use a lot of different products. I have learned the hard way to stick with Arm and Hammer dye free scent free detergent and fabric softner. Don't know if this is for sure the issue with you but thought it was worth mentioning.

YoloGx Rookie
YoloGx
Posted

What detergent and fabric softener do you use? The rash may be linked to that. I have problems with rashes on my head and body when I use a lot of different products. I have learned the hard way to stick with Arm and Hammer dye free scent free detergent and fabric softner. Don't know if this is for sure the issue with you but thought it was worth mentioning.

[/quote

That's a good tack. I too have problems with most detergents and even die in some clothing. Kind of forgot about it however. One has one's habits and after a while you don't even think about it. I use alternative less toxic scent free detergent from Trader Joe's in the green and white box... Several people in my family myself included can get rashes from strong detergents or soaps.

Bravie Apprentice
Bravie
Posted
  • Author

Yea, I think this rash has something to do with the detergent. The family uses ALL brand...My mom refuses to change it...So i'm gonna have to wait till I get out of here in less than 2 months. My boyfriend is extremely familiar and even follows a gluten/casein/soy free diet, just to maintain his diabetes and general health. I told him about the soap, detergent etc. I just can't wait to get out. I'm sick and tired of hearing my mom tell me that Celiac disease is some kind of curse when in reality it actually isn't hehe :rolleyes:

(My mom is an extreme religious fanatic who thinks that I was cursed by the devil with Celiac disease and that its my fault! hahahaha :lol: )

ravenwoodglass Mentor
ravenwoodglass
Posted
Yea, I think this rash has something to do with the detergent. The family uses ALL brand...My mom refuses to change it...So i'm gonna have to wait till I get out of here in less than 2 months. My boyfriend is extremely familiar and even follows a gluten/casein/soy free diet, just to maintain his diabetes and general health. I told him about the soap, detergent etc. I just can't wait to get out. I'm sick and tired of hearing my mom tell me that Celiac disease is some kind of curse when in reality it actually isn't hehe :rolleyes:

(My mom is an extreme religious fanatic who thinks that I was cursed by the devil with Celiac disease and that its my fault! hahahaha :lol: )

Just do your laundry yourself with your own detergent till you get your own place. Mom will be glad to have one less chore to do. You may soon be hearing from her how at least one good thing came out of it, you learned to do laundry. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


oceangirl Collaborator
oceangirl
Posted

Bravie,

Keep a food log- it could help you pinpoint other problems. It seems like a big pain in the u-know-what but it's really second nature once you get used to it and it can really help figure things out. I've kept one for going on three years now and it has been indispensible.

I hope you feel better very soon! You will.

lisa

melmak5 Contributor
melmak5
Posted

I second the food log.

Its how I found out I couldn't tolerate any grains or raw fruits.

(I have been lucky and have been able to add some of them back in smaller quantities.)

mommida Enthusiast
mommida
Posted

Checking the laundry soap is a good line of thinking.

Check the fabric labels too!

I happen to be allergic to alpaca. Anything that had been washed with it was causing a reaction. (sneezing, watery eyes, itching, etc.) I even had a reaction to an alpaca sweater that had just been shipped to my house, still double wrapped in sealed plastic bags.

Keeping a food journal will help find other sensitivities.

I don't know how long you've been gluten free, but your gut needs to heal.

dksart Apprentice
dksart
Posted

After reading your other post, do you think your mom could be sabotaging you? She seems quite mentally unstable and maybe she's testing you (for whatever reason, maybe god told her to)by contaminating your food. I hate to say it, but she seems pretty loony.

susieg-1 Apprentice
susieg-1
Posted

i also have problems with DH rash. remember that stamps and envelope glue are no nos. I also have new dishwasher safe potholders if yours are cloth from your pre-celiac era they could be the culprit. I also have a gluten eating family and disinfect remote controls and telephone handsets regularly. the rash if it is DH could take 6 mos to a yr to dissapear it gets better so hang in there

ravenwoodglass Mentor
ravenwoodglass
Posted
After reading your other post, do you think your mom could be sabotaging you? She seems quite mentally unstable and maybe she's testing you (for whatever reason, maybe god told her to)by contaminating your food. I hate to say it, but she seems pretty loony.

I also agree that this is a strong possibility. Hopefully the time left in the situation will be brief.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,225
    • Most Online (within 30 mins)
      7,748
    Paulyw
    Newest Member
    Paulyw
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      Healthy Gluten Free Foods low sugar that you found?

      By xxnonamexx · Posted

      I noticed eating gluten-free or CGF foods have higher sugar and sodium some. No added sugar protein bars I found better with plant fiber. I wanted to know what are you go to besides whole fruits/veggies that you find are healthy for you where you can feel eating normal without hurting yourself or health. I was looking into subscription based like Thrift to see if there is something that is healthier CGF that can make me feel normal. Thanks
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Watch this space!  😊
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.