Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Cheat?


kschauer

Recommended Posts

kschauer Rookie

Since my diagnosis I have not knowingly eaten anything containing gluten.

Lately I have been dreaming about pizza and donuts and pasta and bread and I'm going out of my mind. My mouth literally waters when I think about a bite of pizza.

My husband said to me yesterday, if I were you, I'd probably cheat all the time. I wonder if people do. <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 51
  • Created
  • Last Reply
ravenwoodglass Mentor

NEVER I get sick enough from just a microgram of CC and my gluten challenge that my GI ordered almost killed me. No way, no how, not for all the money in the world. :)

Ursa Major Collaborator

You know, there is gluten-free pizza, donuts and pasta that are really good. It is harder to find good bread, but the selection gets better all the time.

You can buy frozen gluten-free pizza crust, or make your own. Kinnikinnik makes very nice donuts, and rice pasta is just as good as regular pasta. There are many brands, and you have to try them to know which one you prefer.

So, no need to go nuts thinking about those things, go ahead and indulge! Just make sure it is gluten-free, it won't pay to cheat.

sickchick Community Regular

TWO words for ya Sweetheart...

HELL NO :lol:

YoloGx Rookie
Since my diagnosis I have not knowingly eaten anything containing gluten.

Lately I have been dreaming about pizza and donuts and pasta and bread and I'm going out of my mind. My mouth literally waters when I think about a bite of pizza.

My husband said to me yesterday, if I were you, I'd probably cheat all the time. I wonder if people do. <_<

Some people do cheat. However most suffer as a result. For me certainly its not worth the ill health that inevitably ensues not to mention D, achey eyes, migraines, body aches, depression, mental confusion etc. For others they get a skin condition like my mother (DH). If you cheat a lot (whether you react in an obvious way or not) it sets you up for getting a variety of degenerative diseases like glaucoma, cancer or heart or kidney disease or some other auto immune disease like RA or lupus etc.

There are by the way gluten free alternatives. If you can eat cheese, make your own pizza. Plenty of recipes on line. Or get prepackaged mix for the dough. Ditto with cookies, cakes and breads. One alters one's tastebuds and comes up with new things to enjoy. For myself I avoid sugar as well as gluten due to candida overgrowth, but find baking "sweets" using stevia and a little applesauce or crushed banana is a great alternative.

MELINE Enthusiast

Never

ShayFL Enthusiast

I honestly dont miss all of that stuff. I am lucky.

I dont cheat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Katsby Apprentice

I miss it, but I don't cheat. Mainly because I don't want to deal with the physical ramifications of eating (like getting sick to my stomach). That's totally not worth it lol. I am sure it would be more tempting for someone with gluten intolerance who doesn't show any outward symptoms really. I do think about gluten foods sometimes, though. I don't think I can go within 50 feet of Panera Bread anymore. Though I wouldn't cheat, I would feel depressed.

Jestgar Rising Star

Never. Not worth it.

psawyer Proficient
Never. Not worth it.

What she said!

Gluten-Free Guy Newbie

The worst thing you can do is cheat and occasionally ingest gluten, even a trace. I don't remember where I found this paragraph, but it clearly explains why you should never, never, never cheat: "The gluten-free diet must be carefully and continuously followed. When untreated, the disease can cause life-threatening complications. A delayed diagnosis or non-compliance with the diet places the patient at risk for developing associated conditions such as infertility, miscarriage, osteoporosis, fractures, certain types of intestinal cancer, lymphoma, or other autoimmune disorders. Continued consumption of gluten increases the chance of gastrointestinal cancer by a factor or 40 to 100 times that of the normal population." You must get on a 100% gluten-free diet and remain on it for the rest of your life.

Eating out is probably the riskiest thing a celiac can do. Restaurants, delis at food markets, homes of family and friends, school cafeterias, snack days at work, etc., are all good sources of gluten. You have to ask a lot of questions and even try to read product labels, if they're available. There's a joke that illustrates the point: At a dinner party, do you know how to tell who the celiac is? It's the person in the kitchen digging through the trash to read labels.

Cross contamination is also a concern. Utensils, pots and pans, cooking surfaces, etc., may harbor crumbs or other traces of gluten. For example, you need a separate toaster that is dedicated only to gluten-free. If you dip a knife into peanut butter or jelly and spread it on bread, the knife is contaminated and must not be placed back into the jar. A fork used to stir wheat-based spaghetti must not be placed in a pot containing gluten-free spaghetti (by the way, Tinkyada brand rice pastas are the closest in flavor and texture to wheat-based pastas).

Glutino brand frozen pizzas are very good, esp if you add your own toppings. I don't know where you live, but in the Kansas City area, there are at least three restaurants that make gluten-free pizza. Kinnikinnick makes the best bread, bagels, English muffins, hamburger and hotdog buns (all in the freezer section). They are enhanced if you toast them before adding toppings or meat. After you have cooked meat in a skillet, toast the bread or bun in the skillet--it soaks up the grease flavoring. Kinnikinnick Bread and Bun mix makes very good dinner rolls, etc.

On Amazon, you can order "Gluten-Free Baking Classics" by Annalise Roberts--she has the best recipes I've found for pizza dough, cakes, etc. Her lemon cake is so good my non-celiac granddaughter requests it for her birthday. If you don't tell, no one will know it's gluten-free.

SacGFGirl Explorer
Since my diagnosis I have not knowingly eaten anything containing gluten.

Lately I have been dreaming about pizza and donuts and pasta and bread and I'm going out of my mind. My mouth literally waters when I think about a bite of pizza.

My husband said to me yesterday, if I were you, I'd probably cheat all the time. I wonder if people do. <_<

I would never cheat on purpose. Why cause yourself pain? If you're still having that craving about gluten free pizza I've got the recipe for you! Have you heard of Tom Sawyer's Flour....it's amazing and they have a gluten-free pizza crust recipe on their website. It completely satisfied my craving and I fooled my non gluten-free friends! The thing I always crave is cheese its, and I've tried making a gluten-free version but it's just not the same.

pele Rookie

Heck, no. I am so happy to be gluten-free. If I am accidentally glutened, even a trace, I experience insomnia. The prospect of losing half a night's sleep is plenty of incentive to be very, very careful.

GlutenGalAZ Enthusiast

I cheated in the beginning. I had a hard time giving up gluten. I had stomach issues all my life as a child, teen and adult. I had no idea what was causing it. The dr's would tell me things to try/avoid but nothing helped. Since childhood I would eat stuff not understanding why I felt sick afterwards and would be curled up in bed pretty much crying from the pain and having to run to the bathroom.

When I went on the gluten free diet it was during my works busy season and I had a hard time figuring foods out and dealing with it and I was working from 8am to anywhere from 6pm-10pm (in-laws business)....I tried to stay away from gluten but when you have no time to cook ahead, that day or figure out what you can eat it was hard. I would eat gluten one day and not for a couple of days (would eat salads, safe things).

What made matters worse was one of the gluten free books I have mentioned you can treat yourself once in a while so I would be gluten free all week or two weeks then on Friday I would get pizza and "treat" myself ha big mistake there.

One day though it hit me that I had to stop doing what I was doing and now that I knew what the problem was after all the years of feeling like crap, I had to change. I have been completely gluten free for 5 months. I have NOT cheated in 5 months and do not plan on cheating ever again. I feel so much better. I know what I was doing was wrong and terrible for myself.

My question to everyone is -- Not counting "now" do you cheat.. BUT thinking back to the beginning did you cheat?

I can say "no I do not cheat now" but if you were to ask me did I cheat in the beginning I would say "yes".

Did you cheat in the beginning while you were trying to be gluten free and learning about it etc (I am not meaning by accident but on purpose)??

YoloGx Rookie

[quote name='GlutenGalAZ' date='Jul 7 2008, cheat?

I can say "no I do not cheat now" but if you were to ask me did I cheat in the beginning I would say "yes".

Did you cheat in the beginning while you were trying to be gluten free and learning about it etc (I am not meaning by accident but on purpose)??

samantha79 Newbie

There is no amount of money that could make me want to cheat and consume gluten.. I have had 2 accidental cross contaminations ( thanks to family members) that were absolutely horrible <_<. So if that is the reaction i get from a bread crumb in a spread, there is no way i would deliberately eat gluten.....

WhimsiKay Apprentice

I have enough problems with the accidental glutenings that there is nothing that makes me want to cheat. Seriously. I feel bad enough to want to take a handful of Vicodin and call it a day. I can't imagine willingly putting myself through it for a few minutes' pleasure.

munkee41182 Explorer

I was gluten-free for 2 years, then I slowly started to cheat, didn't feel anything. No pains...no D...nada. But after 2-3 years of being off of the gluten-free diet, I noticed even though I was working out a lot and losing weight but I looked pregnant. I was also having the "gluten brain farts" and studdered so much, more often than not. I've been gluten-free for about 2 weeks and my pregnant belly is going away and my "brain farts" and studdering are less apparent. If I had a cross contamination, I probably wouldn't feel anything...but I can't go down the street to the pizza place and have a slice of pizza anymore. Definately not worth it anymore now that I'm feeling and looking better (well except for this stupid sumburn - but i digress).

cruelshoes Enthusiast

I gave up gluten the day of my diagnosis and have never looked back (3 years next month). I never want to return to feeling like that again. No gluten cookie or slice of pizza is worth it, especially since I can make something as good or better myself. I don't really miss the food all that much, but occasionally get bummed out that I have to do so much planning now about what and where to eat.

WhimsiKay Apprentice
I gave up gluten the day of my diagnosis and have never looked back (3 years next month). I never want to return to feeling like that again. No gluten cookie or slice of pizza is worth it, especially since I can make something as good or better myself. I don't really miss the food all that much, but occasionally get bummed out that I have to do so much planning now about what and where to eat.

That's what gets me -- the planning. I have to continually reassure my friends that it's okay they don't have anything gluten-free for me, and that I can bring my own, but it definitely gets hard to work around. It just gets easier to stay at home, which is bonkers on my social life. ^^;

kbtoyssni Contributor

Umm, no. I do not cheat. I like my current life of being able to get out of bed and do whatever I want. No amount of gluten could possibly taste good enough for me to give that up.

torontosue Rookie

Nope, only been gluten-free for 2 months, but oh what a change in those 2 months. I didnt realize how bad I really felt til I started to feel good, if that makes any sense.

I didn't realize I had the brain fog and the exhaustion. I just thought I was tired from work and looking after 2 teenage boys! The D was bad and I sure do NOT miss that. But nope, while I do miss some foods on occassion, there is nothing worth going back to the way I was before.

blueeyedmanda Community Regular

Nope, even thought it is tempting.....even after a few years I still have the temptations, heck I am human. I do have lots of good gluten free alternatives which I enjoy.

Besides overall, I would not want to deal with the whole GI symptoms that come with cheating, those are never fun and it would render me to staying home and spending my day near the bathroom.

kschauer Rookie

I am currently living in Chile, so the good subsitutes are a little harder to come by. I do buy flours and things online and have my mother ship them down here. I just get so frustrated at the change in everyday life. So much planning ahead, so much preparation for everything I can eat, never being able to pick up a pizza or eat anything a party. I do want to cheat, but the thought of increasing my risk of cancer is too much for me.

And although I know I feel so much better than I did, I still don't feel great. I still cannot concentrate to save my life. I recently had my bloodwork done and everything is in the normal ranges, including iron, and no accidental glutening showed up. But I'm falling asleep at my desk, I feel anxious and I have no energy. I don't want to do anything. If I'm going to feel like crap anyway, I'd love to eat BREAD!!

I'm not going to, but some days I would love to.

msmini14 Enthusiast

I cheated once when I first went gluten-free because my stomach was alreay messed up from antibiotics. So anyway, I will not EVER cheat again, at least on purpose. Never ever again, it is so not worth it. Now if I crave something I just make it. I went and bought all sorts of flours, everything I need to bake. Freeze stuff so I can have it later etc.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    2. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

    3. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    4. - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

    5. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,289
    • Most Online (within 30 mins)
      7,748

    SarahZ
    Newest Member
    SarahZ
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.