Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those Who Are Soy Free


MyMississippi

Recommended Posts

MyMississippi Enthusiast

I have decided to go soy free in an attempt to resolve my neuro symptoms.( I know in 1995 I had a class 2 positive blood test (Ige) to soy---)

However, the allergist did not think I needed to avoid the class 2's.

Anyway, I want to know how many of you got rid of your neuro symptoms going soy free---

ANd soy lecithen (sp?) is in all the chewing gum, and chocolates--- which gum do you chew? What chocolate can you eat??

Thanks for your help----


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rmmadden Contributor

I don't really suffer from neuro symptoms but, I did eliminate soy from my diet as I tested-out severly sensitive to soy. I don't eat chocolate but I do chew wrigley's spearmint and/or peppermint gum when I'm not feeling the greatest and It ususally helps me. In general I try to avoid all soy but I have been known to eat things that have soy lecthin in it. I feel as if I can eliminate soy for the most part and limit the soy emulsifier items to few and far between then I generally (knock-on-wood) feel okay. I certainly feel a lot better than before I cut soy out of my diet that's for sure!

Best of Luck,

Cleveland Bob B)

jnclelland Contributor

Chocolate is very tricky, but I know I've seen a few (VERY few) brands that use some other kind of lecithin (sunflower maybe?) as an emulsifier. There's also Enjoy Life chocolate chips, which are quite good and don't contain any lecithin at all. Since I have problems with sugar, I tend to get my chocolate fix from chocolate-raspberry Clif nectar bars; they're not exactly the same as a chocolate bar, but they're yummy!

Jeanne

AndrewNYC Explorer

There are very very few chocolate soy free items around. If you live near a major city go to a health food store there and you might find something that works. Otherwise look on the web. Just forget about gum. It has so many strange additives you should not be chomping on it anyways if you have neuro trouble.

I have decided to go soy free in an attempt to resolve my neuro symptoms.( I know in 1995 I had a class 2 positive blood test (Ige) to soy---)

However, the allergist did not think I needed to avoid the class 2's.

Anyway, I want to know how many of you got rid of your neuro symptoms going soy free---

ANd soy lecithen (sp?) is in all the chewing gum, and chocolates--- which gum do you chew? What chocolate can you eat??

Thanks for your help----

  • 1 month later...
fierce-mink-2000 Newbie

Hi! I'm new here. My son is the one who is gluten free. He's also soy-free. I'm wondering what neuro-symptoms are. Is it the kind of thing you can tell is going on in someone else? He's 4.5 and taking him off of soy and milk recently seems to have improved his behavior (as well as his more obvious symptoms, like eczema). He was quite the difficult child before, and while we've had ups and downs, I'm pretty sure we've never had an up this good since he was born. Could this be like what you're talking about?

I just recently discovered Bazooka gum is soy free. It's not sugar-free, though, which is annoying, but it's the only one I've found.

ravenwoodglass Mentor
Hi! I'm new here. My son is the one who is gluten free. He's also soy-free. I'm wondering what neuro-symptoms are. Is it the kind of thing you can tell is going on in someone else? He's 4.5 and taking him off of soy and milk recently seems to have improved his behavior (as well as his more obvious symptoms, like eczema). He was quite the difficult child before, and while we've had ups and downs, I'm pretty sure we've never had an up this good since he was born. Could this be like what you're talking about?

I just recently discovered Bazooka gum is soy free. It's not sugar-free, though, which is annoying, but it's the only one I've found.

Yes the improvements you are seeing would be included with neurological symptoms. Some of us will have issues with mood such as temper, anxiety depression, some with learning (we call it brain fog :) ) some will have issues with balance, ataxia, some can have paraesthesias develop which is tingling and pain in the extremities, loss of reflexes. Any of these and more could be considered neuro effects.

hawaiimama Apprentice

I don't eat soy, and haven't for ages but I don't avoid lecithin. I seem to be able to deal with it in small doses.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



powerbraid Rookie

Alter Eco brand chocolate is THE BEST EVER! It also has no soy lecithin in it and says gluten-free right on the package!!!! :)

glutenfreewithease Rookie
I have decided to go soy free in an attempt to resolve my neuro symptoms.( I know in 1995 I had a class 2 positive blood test (Ige) to soy---)

However, the allergist did not think I needed to avoid the class 2's.

Anyway, I want to know how many of you got rid of your neuro symptoms going soy free---

ANd soy lecithen (sp?) is in all the chewing gum, and chocolates--- which gum do you chew? What chocolate can you eat??

Thanks for your help----

I am soy free and I have neuro symptoms. I went soy and gluten free at the same time in '06 and my health improved dramatically. I still have misc symptoms like muscle movement and spasms in the face, tingling in the hands, feet and legs and vision problems. However, the improvement is so much better than where I was at. These symptoms are minor now - of course it is all relative as we all know.

I don't chew gum or eat chocalate. :( I do know and have not tried the Enjoy Life Foods chocolate pieces are okay. My two girls have just been diagnosed and are going gluten free so I am finding foods that I didn't use before!

I wish you the best and hope your neuro symptoms improve. What are your neuro symptoms?

AndrewNYC Explorer

Enjoy Life Boom Choco Boom chocolate bars. I have not seen much else in the way of soy free chocolate, other than a brand of organic hot cocoa, and I have been searching for years.

RiceGuy Collaborator

Many who can't eat whole soy have found soy lecithin to be well tolerated. It is generally fairly pure, but obviously you'll need to determine how you do with it for yourself.

A number of nutrient deficiencies have been linked to neurological problems, so you many want to try some of the more likely ones. For instance, a methylcobalamin (vitamin B12) supplement, along with magnesium can be incredibly helpful, so I always recommend those. Zinc can also help quite a lot.

Here's just one of a myriad links I got from a Google search: Open Original Shared Link

sickchick Community Regular

I don't chew gum. I am totally soy-free even soy lecithin I have a couple bags of Enjoy Life Choco Chips in freezer in case of chocolate emergency :):lol:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,795
    • Most Online (within 30 mins)
      7,748

    MaryLandry
    Newest Member
    MaryLandry
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Waterdance
      Thank you for saying that. That doctor diagnosed me with IBS with no follow-up so the relationship is already concluded. If I pursue diagnosis further I'll request someone else. 
    • Rejoicephd
      Hey everyone. Thanks again for your suggestions. I wanted to give an update and ask for some follow-up suggestions from you all.  So I did go through all of my food items and stopped eating things that were “gluten free” and switched over to the “certified gluten free” ones (the ones with the g symbol). I also stayed away from restaurants except once and there I ordered something raw vegan and gluten free hoping for the best. I also stayed away from oats and soy and dairy. I've also been increasing my vitamin B complex. I've been doing this for about 12 days and while I know that's not that long, I'm still getting sick. Sometimes having diarrhea. Sometimes getting headaches and having necklaces. Sometimes waking up feeling horrible brain fog. I did go to my GI doc and they did a blood test and found my TtG-IgA was in the negative range (and a lower number than I'd had before). I also had normal levels of CRP. My stool showed no elevation of calprotectin and no pathogens. My GI doc said the symptoms could be related to a gluten exposure or to IBS. I'm keeping a food diary to see if I can narrow down whats going on. I know I have good days and bad days and Im trying to isolate what makes a good day versus a bad day. Generally so far it looks like if it eat something super cautious like raw vegetables that I chopped myself into a salad and almonds, im fine but if I eat something more complex including, say, chicken and rice (even if packaged and certified gluten free or made by me with gluten free ingredients), it may not go so well. I may end up with either a headache, neck tension, brain fog, and/or diarrhea that day or the morning after. Any other thoughts or suggestions? I am planning to start tracking my foods again but I wanted to do it in more detail this time (maybe down to the ingredient level) so are there any common ingredients that celiacs have issues with that you all know of that I should track? I've got dairy, oats, soy, eggs, corn, peas, lentils on my “watch list”. Other things I should add? I'm hoping if I track for another two weeks I can maybe pin down some sensitivities. Appreciate the help and tips. Thank you so much!!
    • trents
      "My GI doctor ruled out gluten celiac entirely because I didn't have skin rash." Are you serious? The overwhelming majority of people with confirmed celiac disease do not have the rash. It's called dermatitis herpetiformis. It is found in only about 10-15% of those with celiac disease: https://www.celiac.ca/gluten-related-disorders/dermatitis-herpetiformis/ If your GI doc is operating on that piece of misinformation, I would start looking for a new GI doc because I wouldn't trust him/her in general. 
    • Waterdance
      Thank you so much for your informative reply. My GI doctor ruled out gluten celiac entirely because I didn't have skin rash. I had a histamine response to wheat and milk by scratch test by an allergist. I'm not always symptomatic but the older I get the worse it gets. I've found through trial and error that I can react to all grains. Buckwheat and corn included. I tolerate some rice but I wouldn't want to eat it every day. Potato is pretty good for me but I can't eat it every day either. I compromise with squash. I tolerate it well. The Best I feel is while fasting. When I'm in pain and discomfort it's easy to fast even long term, it helps. The problem I'm having is I'm great with my diet for 3-6 months then I start to cheat again. When I don't get immediate symptoms I get this foolish false security. I react then go back to my diet. Rinse and repeat. I suppose discipline is my real issue. I'm very tired of perusing a diagnosis. The constant gaslighting and dismissal is exhausting. Thanks for your suggestion of the autoimmune protocol. I will give it a try. Perhaps the guidelines will help me to navigate better.   Thanks again.
    • Scott Adams
      This isn't the first potential celiac disease treatment in the pipeline that failed. There have been others...
×
×
  • Create New...