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First Day gluten-free


artselegance

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artselegance Apprentice

So I glutenized myself into a coma yesterday to make sure when the bloodwork was done this morning there would be no questions.

But I'm in a panic and confused...Do I just start gluten-free or do I go ahead and eliminate dairy also? And eggs? There are no whole food stores in my town, but after a I get a good diagnosis I will drive 45 to the nearest....I'm going to try and just do whole foods for the time being.

What about bacon? I looked at my Wright's bacon package this morning and didn't see anything, but haven't seen alot of discussion about bacon.

I know I have to start slow and won't be perfect, but I certainly want to be on the road to healing....any help/guidance appreciated.


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MyMississippi Enthusiast

I would wait for the lab results---- unless you are SURE you are Celiac. Hopefully, you will have a nutritionist consult if you are Celiac--

I would probably only start off getting rid of gluten when the time comes---

You can always fine tune it (get rid of casien, soy, etc. if you need to ) as you go along.

Gluten free is difficult enough without having to get rid of a bunch of other stuff---- :)

But that's just my opinion---

ShayFL Enthusiast

If you are going for a GOLD STANDARD diagnosis, you need to stay on gluten for now because if your bloodwork comes back POS, they will want to do a biopsy on you.

If you dont care about a Dx....and just want to feel better now....then you can start a gluten-free diet.

Stick with simple foods right now: plain meats, pure spices, eggs, plain veggies, plain fruit, nuts & seeds, plain rice, corn on the cob, potatoes and the like. Dry and most canned beans are o.k., but check the ingredients. Look for: Beans, water and salt.

I would avoid dairy and soy for a few months and then once you feel better reintroduce them.

Best of luck!

And please ask questions here. We are happy to help. :)

artselegance Apprentice

I've already had the biopsy and it is positive. Now, the gastro wanted the bloodwork to confirm.

I'm a real snacker and this is whats bothering me....I do eat fruits and veggies, but my family is also used to eating out alot, which needs to stop anyway for all of us healthwise.

Even avoid cottage cheese? I love my cottage cheese and fruit....

Thanks for the responses......I look forward to healing here!

happygirl Collaborator

Do not go gluten free until testing is completed.

Call and ask your doctor what tests were performed for Celiac. Ask what the next steps are.

If you need to go gluten free, we can help you learn to read labels and find safe foods. However, first you need to deal with the testing and diagnosis phase.

Good luck.

ShayFL Enthusiast

Your biopsy shows you have villi damage. The tips of the villi must heal before you can digest dairy properly. You can try just gluten-free and see if you get better. If you dont, then you can take out the dairy and soy.

Getting well is a personal journey. It works differently for each of us. But we are here to help you along the way.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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