Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

2 Year Old With Cd


JacobsMom

Recommended Posts

JacobsMom Contributor

Hi everyone...My name is Brandi and we just found out today that our 2 year old has Celiac. I was glad to finally know what was causing all of the problems...Then I start reading about it and I think I have a bigger problem b/c at this age his food groups are NOT great....I will call on Monday and get in with a dietician b/c I am so confused on what too look for...

Any thing you think will be helpfull please let me know....I have read some of the other post and have gotten some great ideas for snacks and stuff but I am so confused on what ingredients too look for and which are bad.

Anything will be helpful...

Thanks again and have a good weekend.

Brandi


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

https://www.celiac.com/st_main.html?p_catid=12

This will help you with what ingredients to look for. It has safe and forbidden lists for us. It is a good guideline when you are first starting out and don't really know what to look for.

There are some companies like Kraft who will not hide gluten under anything. On their labels they will put wheat,rye,barley,or oats or they are safe.

It's a good thing they caught this young. Since your son has been diagnosed I would recommend the rest of the family get tested because it runs in families.

Have a great weekend and let me know if I can help anymore :D

mommida Enthusiast

My daughter was diagnosed at 17 months, last July.

Let me suggest the book Kids with Celiac by Danna Korn. The part about always having a gluten free treat substitution is priceless. It's written in simple terms and deals with a lot of the things that happen the first year of diagnoses.

Laura

Deby Apprentice

The healthfood stores should have gluten-free cookies and crackers that can make snacks easier. Also, there are lots of recipes in the cooking and baking tips section that you could try. Finally, be glad, your daughter is young and will not know life any different. I have twins. one was diagnosed at 3 and he never cheats, mostly because he doesn't remember what wheat foods taste like. The other twin was diagnosed at 6. He cheats all of the time and complains that he just misses those foods. This from a child who has access to fresh baked goodies fairly often, pizza at least once a week, cinnamon rolls, etc... I just can't win with this kid. lol...

Boojca Apprentice

I second the suggestion to get Danna Korn's book. It is AMAZING. I have a copy, both grandmothers have a copy, and I gave a copy to my daycare provider.

I know this seems very overwhelming, but it will soon become second nature. You WILL mess up, I promise you, but just remember one "goof" does not undo any progress you have made. So just shrug it off and start over again.

My son is 3 and was diagnosed last June at age 2 1/2, so I know where you are coming from. It feels like there is nothing they will ever eat again. Ah, not so! I've found that mostly it is just a matter of using very specific brands of "normal" foods. Breads, pasteries and pasta are the hardest things in this diet. We use Tinkyada pasta, it's amazing. Just be VERY careful when you cook it, gluten-free pasta is very tempermental and if you overcook it yikes!! I tend to cook mine for the minimum amount listed on the package, check a piece then cook a little more as needed and I keep checking it. We use regular jar sauce (we like Prego, but most are gluten-free). Thre is a PHENOMINAL gluten-free list of mainstream foods at www.delphiforums.com in the Celiac Disease Support Group. I belong to that list as well as this one and I cannot tell you how great it is!

One word of advice on the dietician, BE WARNED most do not have great or even good experiences with them. I went to ours (which was recommended by our ped. GI that I cannot say enough good things about) and ended up teaching her a thing or two, AND it wasn't covered by insurance (and we have great insurance coverage) so I had to pay $130 to tell the dietician about gluten-free. Sigh. Lesson learned the hard way.

So, my best advice is to go to the Delphi Forums list, and feel free to email me if you have any questions.

Bridget

Mom to Brennan, age 3, Dx 6/01/04 at 2 1/2 years

Georgia, VT USA

scaredparent Apprentice

We just put my 20 mo old son on a gluten-free diet and for the first week I thought he was going to starve but he didnt. I have a recipie for gramham crackers and he loves them and I also have about 10 different flavors of rice cakes and he loves them. I put peanut butter on them and loves that. I also give him alot of fruit and veggies. There is alot out there just look and always keep your eyes out for good deals. I also give him alot of popcorn. I had a lot of luck by finding a support group in my area and our leader and her husband are both gluten-free and she has made a lot of receipes up. Good Luck and find a good support group to meet with so it doesn't feel so over whelming. It does get better. I know cereal was a major item my son missed but have found three kinds at Walmart that he can have. My son is young and it doesn't bother him that he can't have glutten. I have 5 children and he is the only one that has to be gluten-free and all my other kids have been very supportive of it and makes sure he doesn't get bad food . So hang in there it gets better GOOD LUCK

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...