Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Supportive People In Your Life


Hummingbird4

Recommended Posts

Hummingbird4 Explorer

I was pleasantly surprised last night at my book club meeting. Whoever is hosting that month usually serves some finger food and a dessert. Last night our meeting was at one of our newer member's home, and I expected that there would probably be nothing for me to eat. I'm OK with that, because I figure it's my job to take care of my own food planning, and I don't want people going out of their way to accommodate me. The hostess last night had quite a spread: cheese fondue with fruit and bread to dip (that's definitely off-limits), fruit platter, vegetable platter, puffy pastries (no...), yummy cheeses and sausage with crackers (nope). I was slicing myself some cheese when she suddenly said to me, "I almost forgot the rice crackers!" She had bought some rice crackers just for me. She tucked them in with the other crackers, but I snagged a few that hadn't touched the gluteny stuff.

Then for dessert, she served homemade brownies and ice cream - and had bought me a flourless chocolate cake (from Trader Joe's)! So I had that with my ice cream. She even sent the rest of it home with me. How nice!

And on this topic, my husband and teenage kids (more my daughter, less so with my son) have been incredibly supportive, and also my parents and sister. My sister tested negative for Celiac but is now gluten-free and dairy free on her own accord, and her symptoms have eased, so she completely gets me. She actually has it worse off than I do, because she has the big D when she eats gluten or dairy. I can have dairy, and I never had the "classic" digestive symptoms from gluten.

Do you have supportive people in your life? Let's hear about them!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



curlyfries Contributor

When we go to friend's or family's, my husband grills the host for me.........."Is that spatula clean?.....Did it touch your chicken before my wife's?"....etc. And at Christmas, my SIL shouted that no one could get there food until Lisa got hers first! :D:wub:

Roda Rising Star

I haven't ventured much out of the house yet, but my husband and two boys (8 and 4) are great. My oldest brags about some of my baked goods to his friends by saying they are gluten free. However sweet this information is, it is greek to his little friends. He is always looking out for me by asking can you eat this mommy or my mommy can't have that she has celiac disease. I ate out at Fatz once and the waiter was really understanding and brought out there menu that lists all the major allergens. With a few tweeks to my order I ate and had a good experience. We are going to our first extended family function this month to my inlaws house since my going gluten free. I am really nervous. My mother in law has asked me what I can have and is trying to be supportive. I worry about cross contamination. I plan on taking a few things of my own and going to the store when we get there. I never had any bad gluten reations that I was aware of except heartburn (even with biopsy showing villi blunting) so I have no idea if I would react or not.

raisin Enthusiast

My family tries to be, but does tend to assume I'm "over-cautious" too often for comfort. They often inadvertently contaminate me.

To my surprise, rather than treating me like a freak, all of my friends are not only accepting, but downright protective! When going new places, they make sure I bring or can get food, and make a point to keep anyone scarfing breads away from me. They even make a point to use my gluten-free soap before touching me or anything of mine.

*lee-lee* Enthusiast

my boyfriends niece is 8 and i explained to her one day that i couldn't eat regular stuff like pizza and cake. she's pretty smart so i explained it was something called gluten. now every single time i see her, she reminds everyone in the room that i can't have gluten! it's adorable and hilarious that she remembered such a strange word and what it means to me!

harp1 Apprentice

My friend Jean when we were at a restaurant insisted the waiter check the label on the vegetable oil used to fry the potatoes. He kept saying "it's vegetable oil" and she kept saying, "Does it have soy oil in it?" He finally said yes. How wonderful to have someone else do the work for me. I watched the others at the table eat the potates. Didn't seem to bother me. (I'm allergic to soy) harp1

lizard00 Enthusiast

My friends and family have all been so great. I've been in restaurants with my mom when I've gone to the bathroom before sitting down, and when I come back there's a gluten-free menu sitting in my chair. My husband has called places before we go to see if they can accomodate us. My son now asks if something will make my tummy sick. :wub:

And my friend had us to dinner and made nothing with gluten in it. She even went to whole foods and got a gluten-free pie crust so that I could eat pie with everyone else. They all have seen what gluten does to me, so they are pretty protective of me. It's really great to have strong support.

What a great thread!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bigbird16 Apprentice

Great topic!

My supervisor at work has a friend who's celiac, and she makes gluten-free goodies for her sometimes. Supervisor came into my office the other day and handed me an unopened package of Bob's gluten-free all purpose flour, extra from one of her baking adventures. :D

My best friend and her family have been awesome. They didn't even blink when I grilled the waiter about ingredients the first time we all went out to dinner together after my telling them about the new lifestyle. Then on New Year's Day, they had me over for dinner. (I'll admit I was worried about CC, because there are always breadcrumbs everywhere when her parents are there.) I brought millet bread to share, and they loved it. The entire meal, made by her dad, didn't have a speck of gluten. :wub:

Kat

Hummingbird4 Explorer

I remembered another one: at work we sometimes have potlucks. At the last one we had, a co-worker made a gluten-free pasta salad just for me. I was a little nervous about it with cross-contamination issues, but I did have a little bit with no reactions.

celiac-mommy Collaborator

We've been really lucky that everyone in our lives has been really supportive, even though most don't/can't understand. Everyone seems to go out of their way to make sure the kids have something good to eat, and actually plan their menus around them. What tears at my heart the most though, is when my dd's friends (age 7ish) have a birthday party, playdate etc... they always make sure and tell their moms to "call Maddie's mom to make sure we buy the right things for her to eat" They are all such sweet and sensitive little girls!

gfwb Newbie

My family has been great. They're still learning, but they are making an effort.

My husband's family is a different story. Thanksgiving was a disaster. When I arrived at Thanksgiving, the first thing out of MIL's mouth was, "I made dressing, I bet you can't eat that." My husband was horrified. She then preceded to point at everything on the table and ask, "Can you eat that? Can you eat that? Can you eat that?" It was like stump the freak time. She is a rude horrible person that I've managed to tolerate for almost three decades. But after having two close encounters with death in two years (one of which was my celiac diagnosis), I decided that life is too short to waste time dreading family events with her. So, at Christmas, I didn't go to the in-laws event.

Don't know what to expect next year--It is supposed to be our turn to host. I figure it is my husband's problem.

Hummingbird4 Explorer
My family has been great. They're still learning, but they are making an effort.

My husband's family is a different story. Thanksgiving was a disaster. When I arrived at Thanksgiving, the first thing out of MIL's mouth was, "I made dressing, I bet you can't eat that." My husband was horrified. She then preceded to point at everything on the table and ask, "Can you eat that? Can you eat that? Can you eat that?" It was like stump the freak time. She is a rude horrible person that I've managed to tolerate for almost three decades. But after having two close encounters with death in two years (one of which was my celiac diagnosis), I decided that life is too short to waste time dreading family events with her. So, at Christmas, I didn't go to the in-laws event.

Don't know what to expect next year--It is supposed to be our turn to host. I figure it is my husband's problem.

I think if you can afford to, you should provide all of the food (gluten-free, of course), and then you don't have to deal with her asking what you can and can't eat. (If she asks if she can bring something, have your husband tell her "no thanks, we have it under control.")

emcmaster Collaborator

My husband.

He's been behind me 1000% since the beginning.

I have supportive friends and all of my coworkers and employees are supportive as well.

But I have to give the biggest props to my husband, as he goes above and beyond supportive. I'm so lucky to have him. :)

Jestgar Rising Star

My family makes gluten-free food when I go over there, and most of the people at work are very careful to make things I can eat. Yesterday we had a potluck and the woman who brought the cake brought me a bowl of fruit so I'd have something to put my mascarpone espresso topping on. :drool:

mushroom Proficient

One of the members of my afternoon bridge group always puts out a bowl of nuts, preserved ginger, etc., for me when she brings out the gluteny cake for everyone else.

My husband is very good since he needs to be gluten-free too and does a lot of the shopping, but I always have to read his labels because he will bring me things with soy, or caffeine, and doesn't always understand where gluten lurks.

dandelionmom Enthusiast

What a great post! I love hearing about all these supportive people!

My extended family is amazing. Most family holidays and are now completely gluten-free. My parents, sister, and closest friends keep gluten-free foods at their houses for when my daughter and I visit too.

And my husband is amazing. His thoughtfulness constantly amazes me. For Christmas he researched breadmakers and gluten-free recipes and bought me a breadmaker and a box full of ingredients to make gluten-free bread. :)

caek-is-a-lie Explorer

My family is awesome. We did a whole gluten-free Christmas dinner and they made sure they asked about everything to get it just right. My boyfriend is also supportive and has even suggested we put our son on a gluten-free diet just in case. He always thinks about what I can eat when he grocery shops (yes he loves buying the food.) My co-workers are also trying to 'get it' and it's starting to sink in. They just accept it and don't make a big deal about it. Considering it's only been a couple of months, I'm impresed.

We had a belated Christmas party yesterday and I brought my own cookies to eat because I knew there would be no gluten-free food. But they totally understood, and when I got Ghiradelli chocolate squares in the gift exchange (which I read at Clan Thompson is now no longer gluten-free,) someone else took them so I could get a non-food present. (I told her how selfless she was for taking them but she really just wanted the chocolate! haha) I'm hoping they'll even keep picking gluten-free restaurants to eat at for birthday lunches. Fingers crossed! lol At the party one of my co-workers was urging people to go eat the home-made goodies and then she remembered I couldn't eat any and was at a loss thinking I couldn't eat anything. I assured I brought Glutino cookies AND peanut M&M's and wouldn't miss out at all. She felt better after that. I'm glad people at work actually care. It's really touching.

EDIT: oh I almost forgot! My sister also researched and found the local pizza parlor makes gluten-free pizza so she's invited me over for a pizza night. And she cleaned out her microwave so crumbs wouldn't fall in my tea. Really going the extra mile there! :P

Sweetfudge Community Regular
My family has been great. They're still learning, but they are making an effort.

My husband's family is a different story. Thanksgiving was a disaster. When I arrived at Thanksgiving, the first thing out of MIL's mouth was, "I made dressing, I bet you can't eat that." My husband was horrified. She then preceded to point at everything on the table and ask, "Can you eat that? Can you eat that? Can you eat that?" It was like stump the freak time. She is a rude horrible person that I've managed to tolerate for almost three decades. But after having two close encounters with death in two years (one of which was my celiac diagnosis), I decided that life is too short to waste time dreading family events with her. So, at Christmas, I didn't go to the in-laws event.

Don't know what to expect next year--It is supposed to be our turn to host. I figure it is my husband's problem.

I would recommend you bring your own food. My in-laws aren't that bad, but my MIL "forgets" an awful lot (as do her mother and sister whom we frequently eat with). For Thanksgiving and Christmas this year I made my own turkey, sweet potatoes, stuffing, gravy and rolls to bring in a tupperware. I even made a gluten-free/DF lemon cream coffeecake to share (which everyone loved). It's just easier that way, less worries for you, and less hassles for the already-busy hostess.

As far as my support team goes, I've got some great people in my life. My husband is awesome about helping me eat gluten-free when we go out. He knows I don't like confrontation and being bossy about my food, so after I order, he will reiterate to the server that I have severe food allergies and can't have any of the food I asked to leave off be on my plate. He will even avoid some of his favorite foods b/c he knows they used to be my favorite foods (like mozzarella sticks)...most of the time :)

My parents have their hearts in the right place, but since I don't see them much, I can't blame them for not being as familiar w/ my restrictions. My dad and stepmom made this great chinese dinner one night when I was there, and they assured me it was all gluten-free (although I had to skip out on a couple of the dishes b/c the soy sauce wasn't gluten-free...). My mom occasionally makes trips to the health food stores w/ my sister, and when she does, she always sends me a gluten-free care package. Mostly stuff I can get at the HFS's here, but still, it's sweet, and free food is always nice!

My coworkers are really great too. I think it's probably b/c I bring them so many gluten-free goodies! My boss will ask me where we are going when we have an office luncheon. The girls are so funny, they will bring me things like canned fruit or something else obviously gluten-free, because it's gluten-free :)

I worked at a place when I was first dealing w/ my diagnosis, where no one cared or remembered, and people would even flaunt food in my face (oooh, don't you wish you could eat this donut?). It sucked. I'm so happy with the people I have in my life, b/c they all care about me so much, and want me to be happy and healthy.

CeliacMom2008 Enthusiast

My son is the Celiac. He's very paranoid about eating anything that isn't prepared by myself, my husband, or my mom. The two times (outside of Disney) that he's eaten at a restaurant there have been issues. So he is just overly cautious. Over Christmas we had two great experiences with the gluten thing.

First, our neighbor had a Christmas party and she bought a HUGE tray of gluten free cookies and cupcakes for him (literally, there were 18 gluten-free cookies and 12 cupcakes for one little boy!). They were from an excellent bakery near us and were wonderful. She sent the left over 16 cookies and 11 cupcakes home with us. My son was thrilled to get them - and she even kept them in her office (away from the other food) so that he would be completely comfortable!

Second, my aunt wanted to have us over for Christmas dinner. She wanted to know what she could make. My mom knew my son wouldn't eat at her house, so she explained we'd come but not to worry about the gluten-free that I'd bring something for him. My aunt didn't like that idea. Instead she asked if she could come over to my mom's house and make dinner (with gluten-free food and my mom's gluten-free pans and utensils). So Mom and I got the break from continuous cooking, our whole family got some variety, I learned that a crockpot is a GREAT way to make a turkey breast, and we had a wonderful time!

I guess there were 3 great experiences, we also had a friend who invited our family over. She's a close friend and knows my son won't eat elsewhere, so she let me bring a lasagna for everyone and then she made fresh veggies and fruit and veggies cooked in a glass pan in the oven (which my son approved as an OK way to cook). It was a nice way for him to ease into letting others cook for him.

We have had so many people be so willing to accomodate not only his diet but his nervousness right now. It's wonderful!

JNBunnie1 Community Regular

My best friend's family 'adopted' me long ago, and for Christmas I'll either bring dinner or they'll make something safe. I've gotten so very sensitive that I don't really feel comfortable eating at other people's homes, and they're ok with that. But for christmas dinner, my surrogate dad hauled me into the kitchen, gave me everything he was going to use to make the PRIME RIB ROAST, told me to clean it good enough for me, and made me pick out spices that would be safe, and then watch him do everything. It was so sweet.....

And my best friend, brought me to PF Chang's for the first time, and by the time I got to the table from parking (I was driving) he already had a gluten-free menu for me. He inspected the plates and everything.

But my boyfriend is the absolute best. He never allows anything remotely suspicious in the house, and he is my CHAMPION wherever we go. We invited his grandmother for dinner, and he told her to bring a bag of salad, the kind with no croutons. She really doesn't get it, so she also brought a bag of croutons and he made her put it in the car. He won't buy anything I haven't already bought at the store. He even makes people wash their hands before they wander around in the house. Sigh........

ryebaby0 Enthusiast

What a nice thread! This fall, friends of ours invited us a small dinner party, and she had obviously "read up" on x-contam. issues and gluten-free food. But still, you don't hope for much. When we got there, ALL the food was "whole food" -- nothing at all he couldn't have, all served in glass, a separate grill covered with foil with a serving of the three protein choices for the night (seafood, steak, chicken) so he could choose whatever (he ate all three, actually). No bread or crackers in the place. Someone commented how lovely the food was and she just smiled and said "yes, fresh and unspoiled is so nice, isn't it?"

My son's friends in marching band always buy munchies at Wegman's for him. Teenagers, in my experience, are much more sensitive and thoughtful than adults!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748

    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.