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What To Do If You Can't Cook


ranger

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ranger Enthusiast

It occurred to me replying to someone, that if I were to become incapacitated or land in the hospital that I would either starve to death or be glutinized frequently. My DH does not cook, and everything my daghters have made for me (gluten free) I've gotten cc'd. I keep a couple of meals in the freezer for emergencies, but they wouldn't last long. Anyone have a contingency plan in case of this type of incident?

ps Our local hospital is gluten contaminated. I couldn't even eat a plain bowl of lettuce there.


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Roda Rising Star
It occurred to me replying to someone, that if I were to become incapacitated or land in the hospital that I would either starve to death or be glutinized frequently. My DH does not cook, and everything my daghters have made for me (gluten free) I've gotten cc'd. I keep a couple of meals in the freezer for emergencies, but they wouldn't last long. Anyone have a contingency plan in case of this type of incident?

ps Our local hospital is gluten contaminated. I couldn't even eat a plain bowl of lettuce there.

I feel pretty fortunate that my husband can get around in the kitchen. He is so much more versed than when we got married. He has even had me dinner ready before. We eat all our evening meals together gluten free (with the exception of pasta) and he is pretty aware of the cc possibility. I have not got cc yet by him. I do have to remind him to clean up his part of the counter from the toaster, but at least it is on the other side of the kitchen away from our shared area. The local hospital that I work for said at one point they could accomidate gluten free, but things can change. I would not eat off the lunch line or salad bar for the visitors or staff anymore. I would have to ask for something made separate. Luckily I work nights and everything is closed so I take my own food anyway. If I was a patient I would have to really ask alot of questions or have hubby bring me food. This has sparked an intrest for me to check on our brands of barium for x-rays and ct to find out the gluten status.

mamaw Community Regular

Most hospitals are not gluten-free friendly...... at home I suggest an emergency food storage plan. Their are many canned soups from Progresso that are gluten-free. If you need the list let me know. Plus there are several frozen entrees that are gluten-free.

I would also keep gluten-free crackers, canned meats ,veggies & canned fruits around. We have a whole closet filled for emergencies.

I was in our local hospital for ten days ICU, no gluten-free food except fake eggs, grilled chicken, salad or a hamburger patty. Pretty sick huh! My husband brought me gluten-free food from home every day even water!

Pretzels Tortilla chips , popcorn are good things also to keep on hand.

I have to run for now but if you need any other suggestions let me know & I will post them later this week.

blessiings

mamaw

ranger Enthusiast

Good ideas. I don't eat much canned food, but am going to stock on some, just in case. Better canned than none! Thanks

YoloGx Rookie

On that line, I suggest making extra and generally freezing food at home just in case. You could also train your husband more if that is possible. You could also get a little mini refrigerator and hot plate for your room. Though really this situation with the hospitals has got to change. Kaiser for instance is better than the were but not at all perfect--better for someone who hasn't gone off all trace gluten. Maybe celiac support groups should help each other in case someone is in the hospital? I may try to suggest something like that around here.

ranger Enthusiast
On that line, I suggest making extra and generally freezing food at home just in case. You could also train your husband more if that is possible. You could also get a little mini refrigerator and hot plate for your room. Though really this situation with the hospitals has got to change. Kaiser for instance is better than the were but not at all perfect--better for someone who hasn't gone off all trace gluten. Maybe celiac support groups should help each other in case someone is in the hospital? I may try to suggest something like that around here.

zolo

Thats is an excellent idea. Next time I get to our local meeting, I'm going to bring it up. We have several good cooks and I, for one, would be glad to cook for someone in the hospital. My Dh is a lost cause. In the kitchen, that is! I do keep some emergency meals in my freezer along with several kinds of breads, but it would not be practical to keep enough for any length of stay. Thanks so much.

mushroom Proficient

Our hospital in Reno (Renown) assures me they have a full gluten-free menu :) :) And dh is well-trained in the kitchen; in fact over the last year when my back has been bad he has handled the bulk of the cooking. Fortunately he is gluten free too, although has no concerns about soy and corn, so I have to check what he buys :unsure: Guess I'm pretty lucky!!


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YoloGx Rookie
Our hospital in Reno (Renown) assures me they have a full gluten-free menu :) :) And dh is well-trained in the kitchen; in fact over the last year when my back has been bad he has handled the bulk of the cooking. Fortunately he is gluten free too, although has no concerns about soy and corn, so I have to check what he buys :unsure: Guess I'm pretty lucky!!

Yeah, you are very lucky--esp. with that man! Though with the hospital I wouldn't completely trust the gluten free menu. There is gluten-free and gluten-free! if you know what I mean...Best to check it out. Many people really don't get the whole problem with CC or little things like natural flavors, and additives and fillers if they aren't obvious.

NicoleAJ Enthusiast

When I was in the hospital for 8 days, I was assured that I would have gluten free foods. I even talked to the nutritionist on staff about it, but as she said, her orders do not always go through, particularly when it comes to issues of cross contamination. They kept sending me pasta, bread, rubbery-looking salisbury steak. Of course I was also on a liquid only diet while I was there, and so the food selection was particularly inappropriate for my needs. My husband brought me gluten free broth, gluten-free popsicles, and ensure, which the nurses kept in their fridge in the nurses' station and heated up for me at meal time. I worked out find since I couldn't eat solids anyway, but I realized just how vulnerable I would be without my husband there to bring the food in for me.

Nancym Enthusiast

I'd probably see about getting a personal chef familiar with gluten free cooking. Not sure how much that would cost though. Another thought is finding a restaurant you trust and having their meals delivered. Another thing that might help would be to just eat once a day. Then at least you don't have to worry 3x a day! Or perhaps I'd try to live on protein shakes for my stay.

If you knew ahead of time you could prepare frozen meals in advance and possibly get the hospital to microwave them for you.

On the other hand, your odds of landing in the hospital without advance knowledge are probably pretty small if you're not already dealing with serious health issues.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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