Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Irrational Anxiety Issues


Jamesheff

Recommended Posts

Jamesheff Newbie

hi guys.

can any one relate. i am 6 months on gluten-free diet and i seem to have major irrational anxiety issues all day every day ..its gotten really bad the last two months..i seem to be "on edge" all the time.. i lose my train of thought and often cant concentrate on any thing for more than a few moments before i feel "edgy" again..

any ideas??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ENF Enthusiast

You may benefit from supplements, such as B vitamins, fish or fish oil, magnesium, etc. I took anti-anxiety meds and anti-depressants, before and after diagnosis, but have stopped them and recently started St. John's Wort, which is for mild depression and anxiety. The SJW hasn't started working yet, but I'm hoping that it helps. Good luck, whatever you decide.

Jamesheff Newbie
You may benefit from supplements, such as B vitamins, fish or fish oil, magnesium, etc. I took anti-anxiety meds and anti-depressants, before and after diagnosis, but have stopped them and recently started St. John's Wort, which is for mild depression and anxiety. The SJW hasn't started working yet, but I'm hoping that it helps. Good luck, whatever you decide.

hey ENF..

Thanks for the reply. do u think ur anxiety is celiac related? could it be that the symptom has to get worse before it gets better? i will look into the St Johns Wort..

Brooklyn528 Apprentice
hey ENF..

Thanks for the reply. do u think ur anxiety is celiac related? could it be that the symptom has to get worse before it gets better? i will look into the St Johns Wort..

I was diagnosed with major generalized anxiety in high school. Probably 2001. I have been gluten free around the same time, and my anxiety has not improved yet. I'm taking Zoloft for it starting today. I know that this helped my anxiety in high school. Maybe it would help to discuss it with your PCP or GI.

momxyz Contributor

if you research you will find that gluten intolerance and celiacs has a definite association with depression. The root cause is malabsorption of B vitamins and tryptophane, both of which are involved in how the body manufactures serotonin. Decreased serotonin levels lead to depression. The action of Zoloft is to decrease serotonin uptake, thereby making more serotonin functionally available.

In what I have read the association/ causal relationship between celiacs or GI is less clear. I did find one pediatric journal article that demonstrated that children with functional bowel disorders were more likely to have anxiety. What they did not know is which was the chicken and which was the egg. IE, were the kids anxious because of their gastrointestinal issues, or , were the gastrointestinal symptoms a psychosomatic presentation of their anxiety.

My daughter was diagnosed with depression and anxiety this past July. She has been gluten free since then, and I encouraged use of a good multivitamin along with ingestion of more protein (tryptophane) Her experience was that her depression improved noticebly on the diet; her anxiety less so. She has just been started on a very low dose of Zoloft for this issue. Her psychiatrist has a very hopeful outlook that she is not going to be on this forever, since the depression had improved without the drug, and she may not have to use a very high dose.

There is one thing that we did not try, that I had discussed with a celiac friend of mine, and that is tyrosine. Tyrosine is a precursor to tryptophan. This seem to help her daughter when she takes a mental downturn...

ravenwoodglass Mentor

You have gotten some good advice and I hope you now know you are not alone in this issue. I have severe anxiety issues due to PTSD that got worse once I went gluten free. Before i was diagnosed and now only when glutened I had issues more with depression than anxiety as far as being related to celiac goes. That started long before any of the GI symptoms started, and I am talking almost 30 years and about the same time I developed ataxia. For some of us gluten can be a neurotoxin and that can make mental disorders more likely to develop, everything from depression to anxiety to even more serious disorders. You can find quite a bit of research on this if you put 'celiac and neurological' into a search engine although much of it is quite technical.

Anxiety has a way of 'snowballing' I agree with the others that you should give some supplements a try, sublingual B12, magnesium, calcium and D3 should be a part of your routine, all gluten free of course. You may also want to consider seeing a counselor and if needed don't be afraid to try meds if the anxiety is severe enough to effect your daily living. Different folks are helped by different types of meds so if the first thing they prescribe doesn't work for you try something else. A combo antidepressant and antianxiety made me a total zombie but a plain antianxiety med has done wonders.

ENF Enthusiast
hey ENF..

Thanks for the reply. do u think ur anxiety is celiac related? could it be that the symptom has to get worse before it gets better? i will look into the St Johns Wort..

My anxiety is definitely celiac related, and I probably had neurological damage that can't be measured. It got much better after my GI symptoms improved from going gluten free, but not 100%. Five years ago, I went to a neurologist, after many other doctors had not found my problem, and she Rx'd Zoloft and Xanax. Some types of these drugs contain gluten, but I was not diagnosed w/celiac or gluten free yet anyway so it didn't matter.

The type of St. John's Wort that I am using is called Kira, is standardized and very high quality, and this brand is imported from Germany where it is only available by prescription - and over there it's considered by health professionals to be better than prozac, and other antidepressants, because there are few, if any, side effects. SJW is for mild depression and anxiety symptoms, which is what most people who use it have.

Xanax kills anxiety dead in it's tracks, at least it does for me, but it's very habit forming. I never developed a physical dependence, or addiction, but rather a psychological need and it was very hard to go without it for more than two or three days. I've been off it for about 7 1/2 months, except for one time when I had a high pulse rate a few days before having (non-celiac related) surgery and I took some to see if it would bring it down, and it did.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
Xanax kills anxiety dead in it's tracks, at least it does for me, but it's very habit forming. I never developed a physical dependence, or addiction, but rather a psychological need and it was very hard to go without it for more than two or three days. I've been off it for about 7 1/2 months, except for one time when I had a high pulse rate a few days before having (non-celiac related) surgery and I took some to see if it would bring it down, and it did.

There are many people who have a hard time getting of Xanax, it does work wonders though if it is needed. I try not to take it every day and most days when I do take it I take only half a dose. I was really scared to take it because of the addiction risk but my RN daughter pointed out that I was unknowingly given Valium for a couple of years in Librax and weaned myself off it with no issues when I started the elimination diet. I had no issues with that weaning so I am not so fearful about taking in now. It is always best to try nondrug remedies first if you can. Acupuncture was very helpful to me for a long time prediagnosis. That might be another thing to try.

ang1e0251 Contributor

I saw on TV once that Vtiamin C can help with person's that suffer from depression. My DS has bouts with depression so I bought some for him. I don't know if he kept up with it but I don't believe he has had an episode since. That was 2 years ago.

I looked it up and this link was interesting. It talks about other deficiencies too and what symptoms can result from them. It's includes our friend, magnesium and others. I hope it's helpful to you.

Open Original Shared Link

jkr Apprentice

I totally agree with all of the responses. I have had anxiety all of my life and I do take Xanax like Ravenwoodglass does; only if I need it and I have no problem with dependency. It really does take the edge off, so to speak.

Sublingual vitamin B-12 has helped also.

MDRB Explorer

Has anyone else found that anxiety has actually gotten worse since going gluten-free?

I have always had a mild anxiety problem, perhaps the stress of going being diagnosed and the difficulties in going gluten-free have made me stresses, paranoid about food and exacerbated the anxiety?

FYI re St Johns Wart - it reacts to a lot of different medications, so anybody considering it should really check with a Dr first.

ENF Enthusiast
FYI re St Johns Wart - it reacts to a lot of different medications, so anybody considering it should really check with a Dr first.

If you don't take other medications, you probably don't need to check with a doctor about St. John's Wort. I already looked up the drugs it interacts with, and the one Rx drug that I take, Quinapril (for BP), was not on the lists. Most doctors, at least in the U.S., probably don't even know anything about SJW, anyway. They almost never do, regarding herbs. I'm going to a new GP next week, and will mention that I've been taking SJW - but I'm not holding my breath waiting for a response.

K-Dawg Explorer

This discussion is interesting to me. I first noticed that I had a very rapid heart rate when I was about 15 years old. A few years after that I was diagnosed with graves disease and the fast heart rate was supposedly explained by that diagnosis (but it reamined fast even when I was in remission and now that I'm in my 30's the dr's are more concerned about how fast it sometimes beats).

Okay..so here's the thing. I have noticed that my heart rate beats rapidly MORE OFTEN now that I am gluten-free. I now feel anxious in situations where, when I was eating gluten, I felt no anxiety. I have noticed I am having these stress responses...sometimes for no good reason.

I have started to exercise more often and was considering taking some meditation classes or something. Jeesh. Maybe I will just take some Vit B.

RiceGuy Collaborator

I agree completely with the recommendations of B vitamins, magnesium, vitamin D3, etc. Vitamin B12 is involved in the production of serotonin and melatonin, as are numerous other nutrients. Taking these in supplement form has helped me immeasurably, and that includes neurological functioning. Magnesium is also known as the calming mineral. Look for the methylcobalamin form of B12, preferably in a sublingual lozenge/tablet. Make sure your B-complex has the co-enzyme forms, as this is needed for effective absorption.

angieInCA Apprentice
I agree completely with the recommendations of B vitamins, magnesium, vitamin D3, etc. Vitamin B12 is involved in the production of serotonin and melatonin, as are numerous other nutrients. Taking these in supplement form has helped me immeasurably, and that includes neurological functioning. Magnesium is also known as the calming mineral. Look for the methylcobalamin form of B12, preferably in a sublingual lozenge/tablet. Make sure your B-complex has the co-enzyme forms, as this is needed for effective absorption.

In working with my endocrinologist I was put on all of these supplements as well. A few weeks later she added SAM-E which is a great mood leveler. I take a daily dose of 400 (mg?) which I get at CVS (their brand) and is Gluten free. I have noticed a hugh differance in my anxiety issues and can tell if I forget to take it.

K-Dawg Explorer

RiceGuy -- thanks for the tips

Is it necessary to have a B12 pill AND a B Complex? I take D, calcium (and iron) daily -- that's it. nothing else so I"m not very knowledgable about supplements

thanks

I agree completely with the recommendations of B vitamins, magnesium, vitamin D3, etc. Vitamin B12 is involved in the production of serotonin and melatonin, as are numerous other nutrients. Taking these in supplement form has helped me immeasurably, and that includes neurological functioning. Magnesium is also known as the calming mineral. Look for the methylcobalamin form of B12, preferably in a sublingual lozenge/tablet. Make sure your B-complex has the co-enzyme forms, as this is needed for effective absorption.
Vollaire Newbie

I have been gluten free for about 2 months and dairy free since April. Changing my diet to battle my RA. It has been a hard transition to give up pizza, cheese of my burgers etc. I am the only one in my family with this disease and it makes family dinners hard. Trying to accomodate the needs of my family with mine. My husband has been supportive and once I bought a book and we both read it, it was easier for him to understand and then to make some serious changes. But it gets hard and anxious always reading labels (having nto put back old favorites), saying no thank you when offered a homemade treat from a well intending friend. Always double checking and never really free to trust how something is made. I am nervous about eating out and having to scrutenize every step of my dinner process, so have not been out to eat since having to change eating habits. The adjustment has been a crazy roller coaster and emotions are always ready to spill. The best advice I could give you sounds cheesy but it works for me. Find something, anything to smile about. The simple beauty of a flower, nice blue sky, nicely trimmed lawn, a courtious driver. Hold the door for someone and make then smile. Smiles have an almost magical way of making one feel better. Each week gets better as I add recipes and learn to bake my own goodies for parties, etc. I stopped looking at is as giving up foods and began enjoying the challenge of finding great replacements. Having a body with joints that love me back is great. Just keep smiling even small things count.

eyeaspire Newbie

The increased heart rate might also be due to your thyroid. When my levels are too high, my heart races and it feels just like anxiety. After my medication is adjusted, my heart rate returns to normal.

beaniebabe Newbie

Hi there! Just thought I would comment about this as well. I think these guys are right and you got some really great advice. I went to a seminar a couple of weeks ago where a doctor spoke to us about many health related topics. One of the most important things he talked about was magnesium. He says virtually everyone is deficient in magnesium and he recommended that everyone take magnesium. But not just any kind. The kind he most recommended was magnesium lotion. From what he explained, magnesium is getting increasingly hard to get in our diets due to modern farming techniques. Crops are planted and re-planted in the same spots over and over and causes the depletion of nutrients. Magnesium is also harder to get through supplements and has a low rate of getting into our systems. There are many kinds of these supplements though and he said the best kind out of those is to get magnesium taurate. This is supposedly the least likely kind to give stomach upsets which is a common side effect of magnesium supplementation, but still takes many months for the body to get back to normal levels of magnesium.

There are many kinds of magnesium lotions that can be found online. I've bought the kind the doctor recommended which he uses with his patients and have been having great success with it so far. The kind I get is Dr. Shealy's brand. The anxiety has gone down so much and I notice that if I don't use it every day, it comes back. If I use it only once, some of the anxiety comes back but still much less noticeably than without it at all. But there are many other kinds online too which I am sure you could research about. The stuff is really great and it has helped so much with the stomach issues I sometimes have still even after 3 years on the gluten-free diet. I hope this helps you!!!

Oh and I also wanted to say thanks to everyone who talked about the B vitamins. I think I will get some myself!!

cabrea3 Newbie
I was diagnosed with major generalized anxiety in high school. Probably 2001. I have been gluten free around the same time, and my anxiety has not improved yet. I'm taking Zoloft for it starting today. I know that this helped my anxiety in high school. Maybe it would help to discuss it with your PCP or GI.

I was diagnoised with Celiac Disease just over a month ago...Ive suffered severe anxiety n depression cuz I have been sick for over 2 years n they just barely found out whats wrong.I am not sure if its related but I know how hard this all is.I will going to see a NaturoPath doctor who specializes in Celiac Disease..U may wnat to look into that.I may have had this for years.I suffered infertility issues as well as having a thyroid issue all of a sudden.Which Celiac Disease causes those issues.But I think going the vitamin natural route will be better.U dont know all that crap they put into meds n stuff.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,556
    • Most Online (within 30 mins)
      7,748

    Majesticrb
    Newest Member
    Majesticrb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.