Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Asking Too Much Of My Boyfriend?


Eli2003

Recommended Posts

Eli2003 Newbie

I've been gluten-free for almost a year now and originally started the diet in a weird way. I live in South Korea as a teacher, and started seeing a traditional doctor because of my all-around poor health and fatigue. He recommended losing wheat from my diet, and I found it to be incredibly helpful. I know I eventually need to go to a proper doctor and get tested, but it's difficult to find one and know what I should be testing for.

I feel a million times better now that I'm gluten-free, but it's really demanding to stay gluten-free while living in South Korea (finding food can be a pain, and reading labels in hangul takes forever, etc etc). I find that my boyfriend isn't very helpful, and sometimes I'm sure that he thinks I'm crazy- I feel incredibly high-maintenance because of the diet. How much support should I expect from him at this point?

I could really use any advice as I feel a bit adrift out here in SK, with absolutely no friends with food allergies...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luvs2eat Collaborator

I've been gluten-free for almost a year now and originally started the diet in a weird way. I live in South Korea as a teacher, and started seeing a traditional doctor because of my all-around poor health and fatigue. He recommended losing wheat from my diet, and I found it to be incredibly helpful. I know I eventually need to go to a proper doctor and get tested, but it's difficult to find one and know what I should be testing for.

I feel a million times better now that I'm gluten-free, but it's really demanding to stay gluten-free while living in South Korea (finding food can be a pain, and reading labels in hangul takes forever, etc etc). I find that my boyfriend isn't very helpful, and sometimes I'm sure that he thinks I'm crazy- I feel incredibly high-maintenance because of the diet. How much support should I expect from him at this point?

I could really use any advice as I feel a bit adrift out here in SK, with absolutely no friends with food allergies...

Would you feel less "high maintenance" if you had a peanut allergy or were a vegan? You've chosen to eat food that nourishes you and makes you feel healthy. Expecting your boyfriend to be supportive of you seems like a no-brainer to me. He'd surely be supportive of a possibly deadly allergy... and one would hope one's boyfriend would be supportive of a lifestyle like veganism.

tarnalberry Community Regular

Two things:

1) what does "isn't very helpful" mean? is he sabotaging your food, trying to talk you into eating gluten, eating gluten around you, what?

2) within reasonable bounds, "how much support you should expect" depends on your needs - some people need more, some people need less. And it's ok to ask for what you need, within those reasonable bounds, of course. :)

I would encourage you to consider the part you play in this: if you are not STRONG in your decision, he has less (apparent) reason to respect it. If you call him out when he's being counterproductive, he'll at least learn where the line is. For example, let's say you're at a restaurant, and he orders something that has (or just might have) soy sauce:

Him: "This is really good."

You: "Smells tasty. I'm glad you're enjoying it."

Him: "Wanna try some?"

You: "No, I don't know what's in it."

Him: "Oh, I'm sure it's fine. Just give a little taste, you won't get sick. And it's sooo good."

-this is your make or break point, you have to let him know that his pressuring is unacceptable-

You: "I said no. I don't know that it won't make me sick, and so I choose not to eat it. Please respect my choice and stop pestering me to do something that I do not want to do. I'm quite fine with my own meal [even if it's just plain white rice, I'd say this, because, relative to being sick, you are fine with just plain white rice] and I'd prefer to enjoy a pleasant meal without bickering."

(I'm not necessarily suggesting this to a friend, but to someone you're around a lot, who you have a more significant relationship with... yeah.

As for what *I* think is reasonable to expect, and this is just my opinion:

1) Bare minimum - basically, you go it alone without assistance from him, but without interference either: He doesn't offer you foods he KNOWS have gluten, though he may make mistakes on foods he doesn't know. He immediately respects your decisions on what food you will and won't eat, no questions asked. He does not try to contaminate your food. He does not harp on you about foods you can't eat.

2) Moderately supportive - Ditto all the above, plus he cleans up after himself in any kitchen you two might share, lets you know about foods he knows are not safe so you avoid them, eats gluten free meals with you on occasion.

3) Very supportive - Everything listed above, plus he will maintain a entirely or mostly gluten free kitchen (either just yours or both of yours if you live separately), reads labels right along with you, will cook gluten free for you, and reminds you to bring your own food when you go places you can't get safe food. (I'm sure I missed a few here, but you get the idea.)

I would not EXPECT anyone to goes entirely gluten free with me. If they opt to, great, but I would never expect it.

ReneeBTX Newbie

I've been gluten-free for almost a year now and originally started the diet in a weird way. I live in South Korea as a teacher, and started seeing a traditional doctor because of my all-around poor health and fatigue. He recommended losing wheat from my diet, and I found it to be incredibly helpful. I know I eventually need to go to a proper doctor and get tested, but it's difficult to find one and know what I should be testing for.

I feel a million times better now that I'm gluten-free, but it's really demanding to stay gluten-free while living in South Korea (finding food can be a pain, and reading labels in hangul takes forever, etc etc). I find that my boyfriend isn't very helpful, and sometimes I'm sure that he thinks I'm crazy- I feel incredibly high-maintenance because of the diet. How much support should I expect from him at this point?

I could really use any advice as I feel a bit adrift out here in SK, with absolutely no friends with food allergies...

How much support should you expect? Total and complete support. And nothing less than that. Just because you have no been diagnosed with some deadly disease does not mean your significant others shouldn't support your decisions for your health 100%. If there's anything less than 100% support for your decisions in a relationship......then that relationship is doomed anyway. This would just be the beginning. What if he didn't support how you felt about how to raise children, or what if he didn't want kids but you did? How about if he didn't like your religion? Two people who expect to share their lives, HAVE to support each other 100%, no ifs, no ands, and no buts. So, I don't think you're expecting too much, on the contrary. You are not high maintenance, but I wonder how he'd feel if it were deadly for your to consume a particular food....would he still think you were "crazy"?? Might be a red flag, might not be.

sandsurfgirl Collaborator

He needs to support you. Now that doesn't mean it isn't irritating or difficult at times. It's hard for us and it's hard for our significant others too at times. But he should be supportive and be there for you for sure.

About testing, you will get false negatives if you are already gluten free. If it were me, there's no way I would go back on gluten to make myself sick to get a positive on a test. If the doc diagnosed you by symptoms and dietary response that is in itself a diagnostic tool. If you are willing to do the diet with that alone then do it.

TrillumHunter Enthusiast

It would help if you could share how he's not being supportive before we all crucify him. :D Part of it may be the learning curve we and the people who love us have to go through for awhile.

This isn't directed at you Renee, but I have to respectfully disagree with about the 100% thing. I'm looking forward to 20 years next month and there have been plenty of times we've absolutely been (and are!) on opposite sides of an issue. Agreeing 100% of the time and the 50/50 thing are two myths of a "good marriage" to me.

debmidge Rising Star

I've been gluten-free for almost a year now and originally started the diet in a weird way. I live in South Korea as a teacher, and started seeing a traditional doctor because of my all-around poor health and fatigue. He recommended losing wheat from my diet, and I found it to be incredibly helpful. I know I eventually need to go to a proper doctor and get tested, but it's difficult to find one and know what I should be testing for.

I feel a million times better now that I'm gluten-free, but it's really demanding to stay gluten-free while living in South Korea (finding food can be a pain, and reading labels in hangul takes forever, etc etc). I find that my boyfriend isn't very helpful, and sometimes I'm sure that he thinks I'm crazy- I feel incredibly high-maintenance because of the diet. How much support should I expect from him at this point?

I could really use any advice as I feel a bit adrift out here in SK, with absolutely no friends with food allergies...

It all depends on how long you've been in this relationship. If it's only been a few months or just a casual relationship, then he's just learning the gluten-free "ropes". Is he "just passing" through your life? If not and you're thinking of long-term or marriage with him, then I look at it this way: Dating is sort of like am extended "job interview". He has to meet your requirements and expectations; if he fails to meet them, then he's not for you in the long run. If he's balking about your health issues and gluten-free diet from now, then perhaps he's not all there for you. Even as a "close friend" he should be very helpful - more so as the boyfriend in a relationship there is an extra level of trust and relationship responsiblity he must meet.

Please understand that my credentials in this is that I am in a 31-year marriage to a former misdiagnosed celiac. While my husband does read his own food labels, and cooks his own meals (and I get from your post that the ingredients are in Korean and perhaps a "second eye" would help immensely) I am the person he trusts the most to help him when he asks for help and he trusts me to respect his dietary limitations. I guess I take the hard-line of "if you're not for me, you're against me."


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



acaligal Newbie

I know how you feel about trying to read all the labels in a foreign language. I just spent a few months in South Korea myself and had a hard time eating anything. Basically, avoid eating out because pretty much every sauce has gluten in it. And when grocery shopping, stick to basic foods like fruits, veggies, chicken, fish, rice.

Or if you're really desperate to find new foods, maybe look stuff up online and translate the labels before you even go to the store.

As for the support from your boyfriend, I wouldn't expect him to change his diet as well, but he should be understanding of you doing this for health reasons and not pressure you to eat things. I know I get really frustrated when my boyfriend is eating something I want and I can't have it, which in turn makes him frustrated with me. Just keep reminding him that this is a life long diet change and sometimes it can be emotionally draining. There's a learning curve for both of you, so just try to stay strong and work together.

Bobbijo6681 Apprentice

To say how supportive someone should be is tough...I started dating someone "post" diagnosis and he has been GREAT about my diet. He wants me to either choose where we eat, or makes sure that there is something there that I can eat. He has also done research on his own so that he knows what to look for when he wants to make dinner. We have only been seeing one another for 1 month, and he asked me to Easter Dinner with his family. At first I TOTALLY freaked out, first time meeting the family and having to have food involved, YIKES! Then yesterday we were making dinner and his mom called to run over the dinner menu because he had mentioned my issues and she wanted to make sure that I could eat. I am still pretty scared about eating at someone's house where I know they eat gluten regularly...and CC can be a big issue, but was in shock that he had made sure to go over this with his mom that would be cooking. He also told her that we would bring something that I knew I could eat and drink.

Anyway, I know that not everyone may be this GREAT about what I am dealing with, as it is still so new to me too. However as others have suggested just decide what you are able to accept as his support level and leave it at that.

Good Luck on the diet and I hope that it makes some great changes in your health!!

martabrianna Newbie

I could really use any advice as I feel a bit adrift out here in SK, with absolutely no friends with food allergies...

I have been gluten free for two years, and my boyfriend is the most supportive person when it comes to my diet. I think it is very important for there to be support. Maybe he does not fully understand how much gluten effects you.

modiddly16 Enthusiast

I've been a Celiac for over 6 years, I've been dating my current boyfriend for about a year of that. Him and my last 2 boyfriends have never given me anything but complete support. Has it been difficult at some times? Absolutely. But if a person cares about you and is a large part of your life, they shouldn't have any problems accepting and supporting you for who you are. Celiac Disease is a part of who we are. I don't expect my boyfriend to always eat my diet and never eat anything with gluten and I make sure he knows that when he eats that, even if I'm around, that it doesn't bother me and for him not to feel badly. In all actuality, my boyfriend loves that I'm a celiac because it's made me a good cook!! If someone isn't going to show you love, compassion and support...do you really want them in your life? It's a life altering disease...but you can tolerate it with minimum life interruptions once you get a handle on it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,244
    • Most Online (within 30 mins)
      7,748

    tmperrella
    Newest Member
    tmperrella
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.