Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Never Ending Bloating -


pufffee

Recommended Posts

pufffee Apprentice

Hi

I got officially diagnosed two weeks ago. Second Endo and all positive blood work. My mother has it as well.

I have been doing great on diet and have a lot of help from this site and of course my mother. I have gurgling noises and what seems to be stomach acid issues but never get heartburn ever. I was given Bentyl and only take one pill three times a day. This comes from months of taking pepermint, Ginger, etc with no help. Still, this is not working either, but it has only been two weeks. BUT I have been bloated for over a year and half. Now that I am officially diagnosed and on diet, will this ever go away? I have lost about 7lbs over last 6 months but belly looks like I am pregnant or have little bowling ball in stomach.( i am 6"3 190lbs . I was told I have lactose intolerence but drink milk and eat cheese in small doses and see feel no reactions. Also I have given up all Lactose containing products for a month at a time and still bloated. Everyone on here gets the Big D, tired constantly, and have muscle issues during recovery and prior to diagnoses. I will admit I am tired a lot but muscles are fine and all vitamin levels are fine.

Anyone with similar issues or advise with bloating. I have come so far with this but can't get this one thing fixed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Are you taking probiotics?

Have you looked into any other foods which may tend to bother you?

pufffee Apprentice

Are you taking probiotics?

Have you looked into any other foods which may tend to bother you?

I have been eating yogurt. Yoplait gluten-free yogurt for the first time in my life so that is my only probiotic I take. I have taken then in the past as well with no luck. Maybe try again? Rice Works chips bother my stomach alot so no more of those. But other then that not much really bothers me. I am just constantly bloated

Wolicki Enthusiast

I am thinking it's secondary food intolerances. Why not try an elimination diet? The common culprits for Celiacs are dairy, rice, corn, soy, nighshades and eggs.

bluebonnet Explorer

i've dealt with bloating and i'm 3 months into gluten free. i started feeling less bloated after about 3 to 4 weeks. somewhere in week 5 or 6 i accidentally ate it somewhere though and my stomach bloated out 3" and that lasted for 4 days!! crazy.

i also drink a lot of water and take hikes and walk a lot so that makes me feel better too. i try to make ginger tea often with hopes that it will ease some discomfort but i think that ends up being more pyschological. :)

it will get better ... just hang in there!

pufffee Apprentice

i've dealt with bloating and i'm 3 months into gluten free. i started feeling less bloated after about 3 to 4 weeks. somewhere in week 5 or 6 i accidentally ate it somewhere though and my stomach bloated out 3" and that lasted for 4 days!! crazy.

i also drink a lot of water and take hikes and walk a lot so that makes me feel better too. i try to make ginger tea often with hopes that it will ease some discomfort but i think that ends up being more pyschological. :)

it will get better ... just hang in there!

Thank you! I hope it does get better it is a dumb problem to have lol

DonaldandAlanda Evans Apprentice

I have been eating yogurt. Yoplait gluten-free yogurt for the first time in my life so that is my only probiotic I take. I have taken then in the past as well with no luck. Maybe try again? Rice Works chips bother my stomach alot so no more of those. But other then that not much really bothers me. I am just constantly bloated

This could be part of your problem if your lactose intolerant.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Puffee,

It seems like you really just got started on the gluten-free diet. It's not a light switch where you can just throw it and you get better instantly. It takes time. Your gut has a microsystem of bacteria that changes based on what you eat. Some bacteria do better with the gluten and others do better without it. So you can go through a re-balancing period at first and that can last for a while. A couple things that might help are getting rid of all diary, and sugar in your diet. From what I can see, Bentyl has lactose in it, which can be a problem at first.

Being you are new to the diet, you have a learning curve to master. So be a little patient with yourself as you go along, cause it can take a while.

The easiest way to start the diet is to stick with all home cooked meals made from whole ingredients. NO processed foods or spice blends, or multi-vitamins with tons of ingredients in tiny type. Remember everything you eat or drink needs to be gluten-free.

After you have been at a a few months, you could try an elimination diet if things don't improve.

pufffee Apprentice

Hi Puffee,

It seems like you really just got started on the gluten-free diet. It's not a light switch where you can just throw it and you get better instantly. It takes time. Your gut has a microsystem of bacteria that changes based on what you eat. Some bacteria do better with the gluten and others do better without it. So you can go through a re-balancing period at first and that can last for a while. A couple things that might help are getting rid of all diary, and sugar in your diet. From what I can see, Bentyl has lactose in it, which can be a problem at first.

Being you are new to the diet, you have a learning curve to master. So be a little patient with yourself as you go along, cause it can take a while.

The easiest way to start the diet is to stick with all home cooked meals made from whole ingredients. NO processed foods or spice blends, or multi-vitamins with tons of ingredients in tiny type. Remember everything you eat or drink needs to be gluten-free.

After you have been at a a few months, you could try an elimination diet if things don't improve.

Thank you, this helps! I am gonna look into cutting as much of lactose out of diet as possible. I do have handle though on what has gluten and what does not but need to focus a bit on lactose more I guess

GFinDC Veteran

You are very welcome Puffee. Lactose iintolerance is common with us because the lactase enzyme that digests milk sugar( lactose) is produced by the villi.

The villi lining the small instestine get damaged by the antibodies to gluten, and then no more lactase enzyme. The nice thing is, some times after people have been gluten free a while and healed up, the villi start producing lactase again. So, you might want to try it every 4 months or so and see if you can eat dairy again.

For me it took 2 years on the diet to get back to eating dairy. But I had an intolerance to soy that was causing me lots of problems. When I eliminated soy everything started getting much better.

CecilyF Rookie

Puffee, I just posted something about this same problem! Pregnant-looking, severely bloated for over a year and a half. Cannot figure out what's causing it. Some days are better, but the bloating is taking over my life. I get very fatigued, sleepy, nauseated and unable to function. I cannot wear my clothes unless they have a stretchy waistband because I never know when it's going to swell.

My food intolerances: wheat, soy, peanuts and aspartame

Anyone else have a similar story or any advice for us?

Tummy Frustration Rookie

Puffee, I just posted something about this same problem! Pregnant-looking, severely bloated for over a year and a half. Cannot figure out what's causing it. Some days are better, but the bloating is taking over my life. I get very fatigued, sleepy, nauseated and unable to function. I cannot wear my clothes unless they have a stretchy waistband because I never know when it's going to swell.

My food intolerances: wheat, soy, peanuts and aspartame

Anyone else have a similar story or any advice for us?

I have the same problem too with the depressing bloated belly that looks pregnant! It is sooooooooo extremely frustrating to only see my stomach flat and "normal" maybe once a month--it sucks that bloated tends to be my normal belly that I forget what it's really supposed to look like. I feel super uncomfortable with certain shirts/jeans b/c of it also. I'm attempting to be strict with no gluten--have not been diagnosed with anything besides IBS, hiatal hernia, and gastritis.

Ahorsesoul Enthusiast

BUT I have been bloated for over a year and half. Now that I am officially diagnosed and on diet, will this ever go away? I have lost about 7lbs over last 6 months but belly looks like I am pregnant or have little bowling ball in stomach.I was told I have lactose intolerence but drink milk and eat cheese in small doses and see feel no reactions.

You have no reaction? But you are bloated? Is bloating not a reaction?

pufffee Apprentice

You have no reaction? But you are bloated? Is bloating not a reaction?

I don't consider it a reaction because I have given up both lactose and gluten for a month at a time and still bloated everysingle day and when I drink milk or eat icecream, nothing new happens I was already bloated. I will give it up again now that I am strictly gluten-free now.

newgfcali Rookie

I'm with ahorsesoul... bloating IS a reaction, so maybe there is another food you're sensitive to. Try deep-sixing the soy and yeast and see if that helps. If all else fails, you can do an extreme elimination diet, starting with very simple things like lamb and pears, then start adding one thing at a time. It takes a really long time, but at least you'll know exactly what's getting you.

KateGrace Newbie

As soon as I eat anything disagreeable, I bloat up (and get constipated). I feel your pain!

Yes, an elimination diet is the way to go. It helped me tremendously. Your body IS reacting to something; keeping a food diary will help you pinpoint what it is.

Experimenting in this way helped me discover that, besides no gluten, my body developed "issues" with dairy, eggs, soy, corn, and beans. And grains...I can only handle rice-cakes or plain white rice (it's very refined and thus easy to digest, but oh, I miss my wild rice!).

Most surprising discovery? My bloating was down 90% (after six weeks gluten-free), but when I stopped eating meat for a few days (by chance), my bloating went down 100%! My cheekbones popped, I suddenly had abs...it was unbelievable.

I added meat back in the next day, and within hours,my face softened up a bit and I got a little constipated.

I love meat :( But it's probably too much for my body to handle right now.

I'm very happy with my current diet, which is very restrictive but makes me feel OH so good. I wish you the same, and good luck with being a detective!

tomtom009 Apprentice

I've had nothing but bloating for 6-8 years! So I'm with you on this one. I've been gluten free for about month now and they bloating has decreased considerably. At about the 3 week mark things started to really settle down, although I wouldn't say it's 100% gone. Just stick it out, track your foods and know there is a light at the end of the tunnel. It's always darkest before dawn.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,921
    • Most Online (within 30 mins)
      7,748

    Rusty49
    Newest Member
    Rusty49
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.