Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Little Curiosity Poll


conniebky

Gluten Reactions  

114 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

conniebky Collaborator

And if other, what's your other? :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Looks like I was the first to vote! I voted 'both':)

conniebky Collaborator

Looks like I was the first to vote! I voted 'both':)

LOL I forgot to vote on my own poll! :P

polarbearscooby Explorer

I voted both :P

Roda Rising Star

I voted gi issues. I usually get heartburn, bloating and contipation.

knittingmonkey Newbie

I voted gi issues. I usually get heartburn, bloating and contipation.

I voted G.I. issues, but am not going to disclose them because they're quite embarrassing. :huh:

Korwyn Explorer

My other is neuro and psychological. Anxiety, black moods, insomnia are my primary psychological.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jencat Rookie

Both. I have GI issues and depression, anxiety and fatigue, body aches, numbness to extremities and brain fog.-Jen

  • 4 weeks later...
Coinkey Apprentice

Still discovering my reactions to gluten. I've only been free of it for a month. So far: neuro first then GI. FUN. :angry:

  • 2 months later...
Cheryl-C Enthusiast

I voted for GI even though I also get some neuro - my GI responses are more severe than the neuro, so that's why I voted GI. I get the runs for a day, followed by constipation for about 4 or 5. Bloating, gas, rumbly gut. Not fun.

On the neuro side, I get anxious, depressed, anti-social and grumpy.

I also get sinus migraines, but I'm not sure which category that fits into.

Boo to gluten. <_<

Skylark Collaborator

I'm calling my depression and insomnia from gluten neuro. This poll is getting really interesting...

brendab Contributor

I first get stomach pain that turns into constipation in a couple of days. The rest is anxiety, depression, brain fog, grouchiness, headaches/migraines, forgetfulness, bloating, slight weight gain, insomnia, chronic fatigue, intense cravings for wheat products...........I forgot what else..........I had gluten yesterday! LOL

Chattyaholic Rookie

I voted G.I. issues. If I stick to my gluten-free diet religiously then I'm fine, but if I give in to a craving and have something with gluten then I pretty much just stay home the next day (at least the morning/early afternoon) because of "bathroom issues." :(

It's interesting to see what others are saying. I have been thinking my foggy brain and forgetfulness was because of menopause, but maybe not???

Superfudge Rookie

I said both, but I'm a newbie to this

sweeeeet Rookie

basically bloating, distention, diarrhea vs. constipation (IBS) stomach cramps.

Also extreme fatigue, spinning head, headache, dry eyes, brain fog. I didn't know if that was neuro related so I put GI related.

  • 2 weeks later...
Bennie Rookie

GI issues and feel very tired

  • 1 month later...
pickyguin Newbie

I voted other. I have Muscle and Joint pain when I eat gluten. I've been poked, prodded, stuck, Biopsyed and still tested Neg. When not eating gluten I can move and I have no pain or muscle tremmers. This has been a painful 25 years and finally @ 48 years old I live vertually pain free unless something unknowen to me is in my eats.

  • 3 months later...
Sarah B Apprentice

I get a little stomach pain and fatigue. The one thing other than fatigue that I notice is neuro problems. I can't think straight or remember things.

I'm still trying to figure out if its gluten but so far going gluten free is the only thing that seems to work.

India Contributor

I've been gluten-free for a year and I'm lucky that I've only been glutened properly once. However, as well as GI issues, tiredness, brain fog etc, the longest-lasting effect was a big increase in my word muddling. Weird.

LivesIntheSun Apprentice

I go 'mental' and I get a canker sore in my throat

Emilushka Contributor

I get stomach pains, bloating, nausea, reflux for about the first 12 hours after the glutening. Then it moves into plain old bloating and GI cramping for a day or two. Then it moves into diarrhea and discomfort for another 5-6 days. All in all, I've had a week's worth of symptoms from 2 bites of wheat pasta (accidentally given to me by a waiter). I've also had a couple hours of plain old stomach cramping without anything else after a contaminated pan was used. I don't get neurological symptoms, though.

revenant Enthusiast

Hmmm I have equal neuro and G.I

GI: Constipation 1 day, and then diarrhea 2 days. Bloating, acid reflux, grumbling tummy... tummy pain :o

neuro: Anxiety, 'black cloud' depression, paranoia, anxiety, going from mania/hyperactivity on and off with intense fatigue/sloww moods, horrible attention span, visual disturbances, rage

So, this is more neuro for me actually but I put both

Muffy Rookie

I voted both but I don't feel my GI symptoms much, but they do take a lot of damage. The neuro affects are what actually bother me and they are similar to the others listed here. One thing that is very common for me as well is a difficulty swallowing. Like to the point where I have almost actually chocked on food that I can't neither swallow or move out of the back of my throat. It happens right away.

Does anyone get this? Do you think this would fit as a neuro or GI?

Cypressmyst Explorer

I get this. :P The choking I mean. I'd put it as GI not neuro, but next to GI symptoms neuro are the most common.

I don't know why Michael J. Fox hasn't been able to find a cure for Parkinsons, it's right there on his plate.

jeannieknits Rookie

I turn into a raving jerk! and it's funny (?) how long it took me to realize the connection. (my poor kids)

YEARS.

so, neuro issues: anxiety, rage, hyperactivity then brain fog.

gastro: first sign is a sharp pain across the top of my belly under my ribs....then I know what's coming. then it's the IBS, constipation for a day the D for the next 2-3 days. all the while grumbling belly and bloating and discomfort, insomnia....ugh.

I got glutened 2 weeks ago from a "gluten free" cupcake--from a bakery that I trusted. obvious CC issue, that I alerted them to. I was scared to death to try another cupcake, but I did, this week and was fine, thankfully.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,671
    • Most Online (within 30 mins)
      7,748

    Paul1567
    Newest Member
    Paul1567
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.