Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ttg Level Drop... Opinions?

Kim27

Recommended Posts

Kim27 Contributor
Kim27
Posted

Hi All!!

So to reiterate my story quickly, I was diagnosed with Celiac disease in April. In March I had a ttg level of 168. I've been completely gluten-free since 4/28 (biopsy date) (that I know of!!!). My doctor wanted to check some vitamin levels last week and so she said while we're at it we might as well check your ttg-iga level. I protested because I had only been gluten-free for 5 weeks and thought it wouldn't be enough time for my levels to drop really or be normal. She insisted saying let's just see to see if your body is dropping/responding at all. I had read that most people don't get rechecked until 4 to 5 months after being gluten-free. So I heard from the nurse today that as of last Friday my ttg level is at 65. The doctor hasn't had a chance to talk to me about it yet, but the nurse did divulge the level number. So what do you all think??? At 5 weeks gluten-free should it lower??? Should it be closer to normal????!!! The normal range they use it 0-19. I want to be encouraged that it has dropped to 65 and just think my body needs more time, but I also want others opinions to see if they think it should be lower than that by now and gluten might be sneaking in somewhere!

Thanks for any opinions!

Kim

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

You're doing great! It usually takes a few months for Ab levels to drop so seeing results after five weeks is good news.

WheatChef Apprentice
WheatChef
Posted

Some IgA levels can take half a year or so to drop to normal levels. You're certainly on the right track!

Kim27 Contributor
Kim27
Posted
  • Author

My doctor called later this afternoon & said she's very happy with these results so far & that Im doing good with it. She said normally within 5-6 months, the ttg should be closer to the normal range. Thanks everyone for the encouragement! Knowing that it has dropped by 103 already makes the hassle worth it! ;)

DonaldandAlanda Evans Apprentice
DonaldandAlanda Evans
Posted

My TTG went back to normal after a little less than 3 months

kayo Explorer
kayo
Posted

Can you remind me, what's the normal range for ttg?

Jestgar Rising Star
Jestgar
Posted

The normal range will depend on the lab that does the testing.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


WheatChef Apprentice
WheatChef
Posted

Normally anywhere from <8 to <19

Kim27 Contributor
Kim27
Posted
  • Author

My lab uses <19 as normal. I know labs can vary but from what I've read from others on here for the TTG IGA that seems to be pretty typical. 0-19 is normal, 20-30 lowly positive, >30 very positive (at least that's what my Dr. told me)

Kim27 Contributor
Kim27
Posted
  • Author

I have a typo in my previous post, not <19 normal, it's 19 and <

sa1937 Community Regular
sa1937
Posted

I think it definitely depends on the lab. My lab said:

< 5 Negative

5 - 8 Equivocal

> 8 Positive

My tTG was > 100 (definitely positive followed up with EGD/biopsy - also positive)

  • 2 months later...
SaraKat Contributor
SaraKat
Posted

Hello- my TTG level was 38 and my lab said <5 negative. I have my biopsy Tuesday morning- did you have a lot of intestinal damage? I am so nervous about that. I have this horrible pain in my left side (just under the ribs and wraps around the the lower back).

Does a higher TTG level indicate more intestinal damage?

Skylark Collaborator
Skylark
Posted
.

Does a higher TTG level indicate more intestinal damage?

Not really. Don't worry. Even if there is damage, it will heal when you go off gluten.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,085
    • Most Online (within 30 mins)
      7,748
    kk007
    Newest Member
    kk007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      New issue

      By knitty kitty · Posted

      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      Blood Test for Celiac wheat type matters?

      By knitty kitty · Posted

      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      Severe severe mouth pain

      By trents · Posted

      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals.  Dietary changes (low carb/paleo) may be beneficial for you.  Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet?   It's harder to get all the vitamins needed from a gluten free diet.  Gluten containing products are required to be enriched or fortified with vitamins and minerals lost in processing.  Gluten free facsimile processed foods are not required to be enriched nor fortified.  So we have to buy our own vitamin supplements.   Glad to be of help.  Keep us posted on your progress!
    • Caligirl57
      Severe severe mouth pain

      By Caligirl57 · Posted

      I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant.  I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.