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Gi Symptoms Vs No Gi Symptoms


Googles

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Googles Community Regular

I have had my diagnosis for a year now this month. I was wondering if I can get the neurological symptoms of celiac without getting the GI symptoms. It is hard to tell apart because I usually have depression and anxiety and so it is hard to tell that apart from when I get glutened. If I have had GI symptoms before would I always have the GI symptoms? The symptoms tend to be a little bit different. But I don't know. Any insight would be appreciated. Thanks.


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Mari Enthusiast

I get some neuological symptoms when my intestinal flora are imbalanced but it is mostly that creepy crawly feeling in my extremities. I certainly have less anxiety and depression when I'm gluten free but still get episodes when I get overgrowths of certain bacteria in my gut which produce toxins or yeasts. I use alternative/herbal methods to cope with these problems but have been reading lately that Drs now have some good tests and effective treatments. However you do it you need to improve the health of your digestive system and try to identify food allergies and intolerances. You may want to go cow's dairy free, goat's milk is a good substitute. Also look at the Specific Carbohydrate Diet, I have found it very helpful.

Coolclimates Collaborator

I'm wondering about that myself. I do not have any GI symptoms except for acid reflux and some weight loss. I've been on the gluten-free diet for 6 weeks now (with little improvement, unfortunately) but I cannot tell when I've been "glutened." Are there any telltale symptoms if we are "glutened" for those of us who have Celiac without the classic GI symptoms?

Coolclimates Collaborator

I have had my diagnosis for a year now this month. I was wondering if I can get the neurological symptoms of celiac without getting the GI symptoms. It is hard to tell apart because I usually have depression and anxiety and so it is hard to tell that apart from when I get glutened. If I have had GI symptoms before would I always have the GI symptoms? The symptoms tend to be a little bit different. But I don't know. Any insight would be appreciated. Thanks.

Did you ever suffer from GI symptoms before you were diagnosed? I assume that if you don't have GI problems to begin with, then it will be harder to tell if you are glutened?

lucia Enthusiast

You all may be interested in this article from the Lancet: Gluten sensitivity: from gut to brain which came out this year. It seems like the newest research in this field is interested in exploring the neurological symptoms associated with gluten. Some researchers have speculated that there may be a form of gluten intolerance that not only looks different than celiac but actually is a distinct condition with its own pathologies, primarily (& sometimes exclusively) neurological.

Coolclimates,

According to this article, you're not alone (as below). Unfortunately, you may be hard pressed to find an M.D. who may even be aware of this research since it is so current. I was hoping that the article would provide me with some avenues to recovery from my neurological symptoms, but it only detailed them and hypothesized about their existence. In ten years, I'm sure that the field will look very different, but that doesn't help us now. :( Still, it's good to at least see what other people have gone through.

Although neurological manifestations in patients with established coeliac disease have been reported since 1966, it was not until 30 years later that, in some individuals, gluten sensitivity was shown to manifest solely with neurological dysfunction.

Googles Community Regular

Did you ever suffer from GI symptoms before you were diagnosed? I assume that if you don't have GI problems to begin with, then it will be harder to tell if you are glutened?

I've had GI symptoms both before and after I was diagnosed. It just seemed like this weekend I was getting depression more like when I get glutened than when I just get depression (different symptom set). So I was wondering if I could get one without the other.

Coolclimates Collaborator

I can't find the link to the article.


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Skylark Collaborator

Here you go.

Open Original Shared Link

From the article:

Summary

Gluten sensitivity is a systemic autoimmune disease with diverse manifestations. This disorder is characterised by abnormal immunological responsiveness to ingested gluten in genetically susceptible individuals. Coeliac disease, or gluten-sensitive enteropathy, is only one aspect of a range of possible manifestations of gluten sensitivity. Although neurological manifestations in patients with established coeliac disease have been reported since 1966, it was not until 30 years later that, in some individuals, gluten sensitivity was shown to manifest solely with neurological dysfunction. Furthermore, the concept of extraintestinal presentations without enteropathy has only recently become accepted. In this Personal View, we review the range of neurological manifestations of gluten sensitivity and discuss recent advances in the diagnosis and understanding of the pathophysiological mechanisms underlying neurological dysfunction related to gluten sensitivity.

T.H. Community Regular

THAT is VERY interesting. I was just chatting with an acquaintance whose husband has been having a number of neurological problems that no one can figure out, that look very similar what is described here! I'm printing this out right now to pass on to her!

Thank you!

Here you go.

Open Original Shared Link

From the article:

Summary

Gluten sensitivity is a systemic autoimmune disease with diverse manifestations. This disorder is characterised by abnormal immunological responsiveness to ingested gluten in genetically susceptible individuals. Coeliac disease, or gluten-sensitive enteropathy, is only one aspect of a range of possible manifestations of gluten sensitivity. Although neurological manifestations in patients with established coeliac disease have been reported since 1966, it was not until 30 years later that, in some individuals, gluten sensitivity was shown to manifest solely with neurological dysfunction. Furthermore, the concept of extraintestinal presentations without enteropathy has only recently become accepted. In this Personal View, we review the range of neurological manifestations of gluten sensitivity and discuss recent advances in the diagnosis and understanding of the pathophysiological mechanisms underlying neurological dysfunction related to gluten sensitivity.

Googles Community Regular

Thank you for the article. I will take a look at it.

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    • trents
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    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
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