Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Or Not?


jasonD2

Recommended Posts

jasonD2 Experienced

So my lower GI was doing great for several months..i was on a super strict diet then started Alinia for parasites and repopulated my flora with high dose probiotics. a few weeks ago I ate some coconut sorbet and ever since my regularity is off and i have been bloating constantly. Not sure if i just triggered an IBS flare up or if i exposed myself to gluten somewhere. The sorbet was gluten free so i dont know if it was that. i have been much more liberal with food lately and have been eating more fruits and stuff but my whole system is out of whack. Even a few months ago when i was stable I was able to eat new things without any problem and even felt fine after eating out in restaurants. For the past few days i have had difficulty going to the bathroom and my stools have been thin and floating. I get this every once and a while and still dont know if its gluten or something else.

I just started dating a wonderful girl and i can live in a bubble and go back to a super restricted diet now...i want to take her out for dinner and enjoy myself. But what am i supposed to do? There are too many what ifs...what if i still have parasites? what if the gum she chews or her make up has gluten in it? What if eating out puts me at risk for more problems like autoimmune issues, lowering of intestinal sIGA which will cause more bugs to proliferate, etc, etc.

As some of you know my mental attitude has been great for severeal months...i almost feel like a new person...but i am just scared s**tless about eating again


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

So my lower GI was doing great for several months..i was on a super strict diet then started Alinia for parasites and repopulated my flora with high dose probiotics. a few weeks ago I ate some coconut sorbet and ever since my regularity is off and i have been bloating constantly. Not sure if i just triggered an IBS flare up or if i exposed myself to gluten somewhere. The sorbet was gluten free so i dont know if it was that. i have been much more liberal with food lately and have been eating more fruits and stuff but my whole system is out of whack. Even a few months ago when i was stable I was able to eat new things without any problem and even felt fine after eating out in restaurants. For the past few days i have had difficulty going to the bathroom and my stools have been thin and floating. I get this every once and a while and still dont know if its gluten or something else.

Are you certain that you reacted to ingredients in the coconut sorbet and not some other food that might have contained one of your other allergens? What do you mean by "my whole system is out of whack"? I usually don't continue to react more than 2 weeks even after consuming gluten and much less to any of my other 6 food allergens. Are you certain that you don't have a new intestinal infection (parasites or bacteria)? You said you haven't retested after treating for parasites. I encourage you to retest before you start restricting your diet even more. Have you continued taking the high dose probiotics?

SUE

K8ling Enthusiast

I am allergic to coconut as well as being celiac...It complicates things. I would start looking for other allergies or seeing if possibly the sorbet was cc'd

jasonD2 Experienced

i was initially able to tolerate a small amount of the sorbet but i had a large quantity which did me in- dont think it was CC'd

jerseyangel Proficient

I was also going to suggest a problem with coconut. I'm intolerant to it--gives me terrible indigestion and migraines.

i-geek Rookie

i was initially able to tolerate a small amount of the sorbet but i had a large quantity which did me in- dont think it was CC'd

Could it be the sugar? Or maybe a combination of sugar and coconut? Too much sugar upsets my stomach.

sickchick Community Regular

Poor guy.

Doesn't enterolab do parasite testing?

We'll get you all fixed up, eventually!! B)

lovelove

sickchick


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

I'm wondering about the probiotic. People tolerate different probiotics differently. Sometimes a probiotic that works great for one person makes another quite sick.

julandjo Explorer

I'm another one who can't tolerate coconut. It's almost as bad as getting glutened.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,915
    • Most Online (within 30 mins)
      7,748

    DRIZZE
    Newest Member
    DRIZZE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.